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European society of paediatric oncology neuroblastoma research network

Objective

The SIOPE-R-NET project aims to create a WEB-based Neuroblastoma (NBL) IT Network to optimise the use of pre-existing research infrastructures in European countries to improve complementarity. Integration of clinical and research efforts will allow to reach a critical mass of consistent data for new insight into disease mechanisms. A high risk NBL trial will randonise safety and efficacy of new and existing drugs to improve survival of affected children The IT infrastructure comprises a web portal, a high performance central data base, user interface (remote data entry, retrieval, verification) supporting clinical trials and specific tasks of 11 ESIOP NBL subcommittees, a clinical study environment (eligibility checks, online randomisation, continuous monitoring of recruitment and severe adverse events), and a system for telemedical central review of imaging data. The IT structure will support to create a virtual tumour and serum bank.

Funding Scheme

THN - Thematic network contracts

Coordinator

CHILDRENS CANCER RESEARCH INSTITUTE
Address
Kinderspitalgasse 6
1090 Wien
Austria

Participants (17)

"AGHIA SOPHIA" CHILDREN'S HOSPITAL OF ATHENS
Greece
Address
Thivon And Livadias Ave.
115 27 Athens
CENTRE HOSPITALIER UNIVERSITAIRE VAUDOIS
Switzerland
Address
Rue Du Bugnon 46
1011 Lausanne
HOSPITAL UNIVERSITARIO DE LA FE SEVASA
Spain
Address
Avenida De Campanar 21
46009 Valencia
INSTITUT GUSTAVE ROUSSY
France
Address
Rue Camille Desmoulins 39
94805 Villejuif
INSTITUTO PORTUGUES DE ONCOLOGIA DE FRANCISCO GENTIL - CENTRO REGIONAL DE LISBOA S.A.
Portugal
Address
Rua Professor Lima Bastos
1099-023 Lisboa
ISTITUTO GIANNINA GASLINI
Italy
Address
Largo Gerlamo Gaslini 5
16148 Genova
JAGIELLONIAN UNIVERSITY
Poland
Address
C/o Polish American Children's Hospital, Wielicka
30 663 Krakow
KAROLINSKA INSTITUTE
Sweden
Address
Karolinska Hospital
171 76 Stockholm
ROYAL MARSDEN NHS TRUST
United Kingdom
Address
Fulham Road
SW3 6JJ London
SCHNEIDER CHILDREN'S MEDICAL CENTER OF ISRAEL
Israel
Address
Kaplan Street 14
49202 Petach-tika
SEMMELWEIS UNIVERSITY
Hungary
Address
Tuezolto U. 7-9
1094 Budapest
SKEJBY HOSPITAL - AARHUS UNIVERSITY HOSPITAL
Denmark
Address
Brendstrupgaardsvej 100
8200 Aarhus C
THE NATIONAL HOSPITAL UNIVERSITY OF OSLO
Norway
Address
Sognsvannsveien 20
0027 Oslo
UNIVERSITAETSKLINIKUM CHARITE - MEDIZINISCHE FAKULTAET DER HUMBOLDT-UNIVERSITAET ZU BERLIN
Germany
Address
Augustenburgerplatz 1
13353 Berlin
UNIVERSITY HOPSITAL OF GENT
Belgium
Address
De Pintelaan 185
9000 Gent
UNIVERSITY HOSPITAL MOTOL
Czechia
Address
V Uvalu 85
150 06 Praha 5
UNIVERSITY OF VIENNA
Austria
Address
Waehringer Cuertel 18-20
1090 Wien