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Innovative approach for self-management and social welfare of Cystic Fibrosis patients in Europe: development, validation and implementation of a telematics tool.

Objetivo

Cystic Fibrosis (CF) is a genetic disease with the higher incidence in Europe showing c.a. 5% mortality in childhood. The majority of patients suffer from lifelong pancreatic insufficiency leading to maldigestion of food and malabsorption and consequently with malnutrition and growth stunting. An accurate enzyme replacement arises as an early nutritional intervention able to provide better nutritional status and patients’ welfare from early stages avoiding complications associated to the development of the disease. By means of our innovative and portable ICT tool we will improve the socio-economic impact of the disease, promoting healthy lifestyle, intertwining patient empowerment, education and training with self-management and prevention of secondary CF-complications. The multidisciplinary and complementary approach of this co-developed integrative PROJECT guarantees the patient’s adherence to the treatment and the best outcome of the nutritional intervention mainly in childhood. The beneficiaries of the application comprise patients, care-givers, families and health professionals as well as health monitoring authorities. MyCyFAPP is tailored designed and will be clinically validated for CF self-management and monitoring becoming a competitive market product in Europe. This APP will have a key role as decision support system, boosting the growth and competitiveness of the participating SMEs in Europe which will ensure the commercial exploitation of the results, the market uptake and the MyCyFAPP distribution for the benefit of the patient.

Convocatoria de propuestas

H2020-PHC-2014-single-stage
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Coordinador

FUNDACION PARA LA INVESTIGACION DEL HOSPITAL UNIVERSITARIO LA FE DE LA COMUNIDAD VALENCIANA
Dirección
Av Fernando Abril Martorell 106
46026 Valencia
España
Tipo de actividad
Research Organisations
Aportación de la UE
€ 1 316 451,50

Participantes (12)

SOLUCIONES TECNOLOGICAS PARA LA SALUD Y EL BIENESTAR SA

La participación finalizó

España
Aportación de la UE
€ 94 700,06
Dirección
Ronda Auguste Y Louis Lumiere 23 Nave 13 Parque Tecnologico De Valencia
46980 Paterna Valencia
Tipo de actividad
Private for-profit entities (excluding Higher or Secondary Education Establishments)
YOUSE GmbH
Alemania
Aportación de la UE
€ 336 955,75
Dirección
Florastrasse 47
13187 Berlin
Tipo de actividad
Private for-profit entities (excluding Higher or Secondary Education Establishments)
IMAGINARY SRL
Italia
Aportación de la UE
€ 331 955,75
Dirección
Via Mauro Macchi 50
20124 Milano
Tipo de actividad
Private for-profit entities (excluding Higher or Secondary Education Establishments)
STIFTELSEN SINTEF

La participación finalizó

Noruega
Aportación de la UE
€ 661 325
Dirección
Strindveien 4
7034 Trondheim
Tipo de actividad
Research Organisations
UNIVERSITAT POLITECNICA DE VALENCIA
España
Aportación de la UE
€ 619 674,94
Dirección
Camino De Vera Sn Edificio 3A
46022 Valencia
Tipo de actividad
Higher or Secondary Education Establishments
KATHOLIEKE UNIVERSITEIT LEUVEN
Bélgica
Aportación de la UE
€ 526 375,50
Dirección
Oude Markt 13
3000 Leuven
Tipo de actividad
Higher or Secondary Education Establishments
Associação para Investigação e Desenvolvimento da Faculdade de Medicina
Portugal
Aportación de la UE
€ 318 191,75
Dirección
Av. Prof. Egas Moniz
1649-028 Lisbon
Tipo de actividad
Higher or Secondary Education Establishments
ERASMUS UNIVERSITAIR MEDISCH CENTRUM ROTTERDAM
Países Bajos
Aportación de la UE
€ 342 220
Dirección
Dr Molewaterplein 40
3015 GD Rotterdam
Tipo de actividad
Higher or Secondary Education Establishments
UNIVERSITA DEGLI STUDI DI MILANO
Italia
Aportación de la UE
€ 222 665,90
Dirección
Via Festa Del Perdono 7
20122 Milano
Tipo de actividad
Higher or Secondary Education Establishments
SERVICIO MADRILENO DE SALUD
España
Aportación de la UE
€ 130 674,85
Dirección
Plaza Carlos Trias Bertran 7
28020 Madrid
Tipo de actividad
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
CYSTIC FIBROSIS EUROPE EV
Alemania
Aportación de la UE
€ 108 816
Dirección
In Den Dauen 6
53117 Bonn
Tipo de actividad
Other
SINTEF AS
Noruega
Aportación de la UE
€ 77 500
Dirección
Strindvegen 4
7034 Trondheim
Tipo de actividad
Research Organisations