Resultado final Documents, reports (20) WP Planning and Contingency Reports In the first trimester an acknowledge report regarding work package planning and contingency plan will be reported Kick-off Meeting A summary of the kick-off meeting will be detailed including list of participants, agenda, minutes, etc. 1st Mid-Term Dissemination plan of MyCyFAPP An evaluation of the results and the action to detect strength and weaknesses and to improve the action in orden to improve the results based on the dissemination plan. Interviews A compilation of videos of the interviews which give a global vision of the project will be sent to the EC. The main aim of the video is to show how EC policies help to create qualified jobs and to bring closer research to general public 1st Annual Progress and Annual Financial Report to the Commission Report on annual progress and annual financial report will be presented. Dissemination plan of MyCyFAPP A detailed dissemination plan with objectives, target, messages and tools used to reach the goals of the WP7 will be send to the EC. The plan will have a detailed structure of the main channels of the communication and the objectives of each one of them. Characterisation of dishes report Each participant partner in WP1 will provide a detailed report on the most consumed foods and dishes regarding ingredients, size, cooking techniques, etc. This information will be further used in the fats digestibility studies. Register follow-up on conferences and meetings All partners have an active role in the dissemination plan as from different fields they disseminate their jobs. At the end of the project, a report on the conferences and meetings attended will be presented. 2nd mid-term dissemination report A second report on performance and KPI analysis will be sent to the EC to evaluate the impact of the dissemination strategy. Minutes of the 2nd EBM and 1st General Assambly Meeting (GAM) Statement agreed on 2nd Executive Board Meeting and 1st General Assembly Meeting will be collected in a minute. Training material Several videos and information material will be designed to help professionals and partners involved in the project to guide patients on the use of the APP. In order to teach health-carers and patients how to use the APP and how to get involved in the project, some audiovisual materials such as videos, posters and leaflets will be designed and digitally send to the EC. Nutritional Evaluation report of all the collected FRs It will include the method and resources applied to perform the nutritional assessment. It will also include the results obtained and the statistical data analyses. Nutritional Recommendations Guideline for the CF patients The information generated in WP1 will be analyzed both by nutritionists and pediatric gastroenterologists and will be complied into a Guideline. It will include general recommendations on nutritional and care aspects of the disease and will be integrated as an interactive tool within the APP software. Minutes of the 3rd EBM Statements agreed on the 3rd Executive Board Meeting will be collected in a minute. Document on MyCyFAPP poster and leaflet Paper documentation such as posters, leaflets, and additional printed resources used in conferences and other events will be compiled. Final Dissemination report MyCyFAPP directly benefits end users and health care service providers involved in the treatment of the Cystic Fibrosis. The Dissemination plan aims at all the stakeholders related with the project. A report detailing the consecution and achievement of all the dissemination goals will be presented on month 48. Clipping and press release Along the project there will be sent at least two press releases: one at the beginning and the second one by the end. However, as there are many areas of the project that can be promoted as are of public interest, other press releases will be send when required. By the end of the project the press releases, the clipping and the impact evaluation will be sent. Protocol for the survey and the FR A common consensus protocol to develop all the tasks in WP1. It will include specifications on timing and formal aspects. MyCyFAPP press release After the grant agreement signature, MyCyFAPP will be presented in the general media (e.g. newsletters, local newspapers, etc). Minutes of the 1st Executive Board Meeting (EBM) Statements agreed on the 1st Executive Board Meeting will be collected in a minute. Other (2) Data base with the FRs A database will be generated to store all the nutritional information collected via the FRs. This information will be further used both for the nutritional assessment of the diets and for the dishes characterization. Nutritional composition database of the selected dishes We will produce a macro nutritional composition database including not only foods but most frequently consumed dishes in the different participating countries. This database will be included in the software and will allow for the automatic calculation of the nutritional composition of the diet. Publicaciones Peer reviewed articles (18) User Needs in the Development of a Health App Ecosystem for Self-Management of Cystic Fibrosis: User-Centered Development Approach Autores: Jacqueline Floch, Annabel Zettl, Lena Fricke, Tina Weisser, Lisbet Grut, Thomas Vilarinho, Erlend Stav, Antonio Ascolese, Cornelia Schauber Publicado en: JMIR mHealth and uHealth, Issue 6/5, 2018, Page(s) e113, ISSN 2291-5222 Editor: JMIR mHealth and uHealth DOI: 10.2196/mhealth.8236 A first approach for an evidence-based in vitro digestion method to adjust pancreatic enzyme replacement therapy in cystic fibrosis Autores: Joaquim Calvo-Lerma, Victoria Fornés-Ferrer, Irene Peinado, Ana Heredia, Carmen Ribes-Koninckx, Ana Andrés Publicado en: PLOS ONE, Issue 14/2, 2019, Page(s) e0212459, ISSN 1932-6203 Editor: Public Library of Science DOI: 10.1371/journal.pone.0212459 In vitro study of cheese digestion: Effect of type of cheese and intestinal conditions on macronutrients digestibility Autores: A. Asensio-Grau, I. Peinado, A. Heredia, A. Andrés Publicado en: LWT, Issue 113, 2019, Page(s) 108278, ISSN 0023-6438 Editor: Academic Press DOI: 10.1016/j.lwt.2019.108278 Influence of particle size and intestinal conditions on in vitro lipid and protein digestibility of walnuts and peanuts Autores: Carolina Paz-Yépez, Irene Peinado, Ana Heredia, Ana Andrés Publicado en: Food Research International, Issue 119, 2019, Page(s) 951-959, ISSN 0963-9969 Editor: Elsevier BV DOI: 10.1016/j.foodres.2018.11.014 Nutritional status, nutrient intake and use of enzyme supplements in paediatric patients with Cystic Fibrosis; a European multicentre study with reference to current guidelines Autores: Joaquim Calvo-Lerma, Jessie M. Hulst, Inês Asseiceira, Ine Claes, Maria Garriga, Carla Colombo, Victoria Fornés, Sandra Woodcock, Tiago Martins, Mieke Boon, Mar Ruperto, Sylvia Walet, Chiara Speziali, Peter Witters, Etna Masip, Celeste Barreto, Kris de Boeck, Carmen Ribes-Koninckx Publicado en: Journal of Cystic Fibrosis, Issue 16/4, 2017, Page(s) 510-518, ISSN 1569-1993 Editor: Elsevier BV DOI: 10.1016/j.jcf.2017.03.005 Effect of cooking methods and intestinal conditions on lipolysis, proteolysis and xanthophylls bioaccessibility of eggs Autores: Andrea Asensio-Grau, Irene Peinado, Ana Heredia, Ana Andrés Publicado en: Journal of Functional Foods, Issue 46, 2018, Page(s) 579-586, ISSN 1756-4646 Editor: Elsevier BV DOI: 10.1016/j.jff.2018.05.025 Fat digestibility in meat products: influence of food structure and gastrointestinal conditions Autores: Andrea Asensio-Grau, Joaquim Calvo-Lerma, Ana Heredia, Ana Andrés Publicado en: International Journal of Food Sciences and Nutrition, Issue 70/5, 2019, Page(s) 530-539, ISSN 0963-7486 Editor: Taylor & Francis DOI: 10.1080/09637486.2018.1542665 In Vitro Digestion of Lipids in Real Foods: Influence of Lipid Organization Within the Food Matrix and Interactions with Nonlipid Components Autores: Joaquim Calvo-Lerma, Victoria Fornés-Ferrer, Ana Heredia, Ana Andrés Publicado en: Journal of Food Science, Issue 83/10, 2018, Page(s) 2629-2637, ISSN 0022-1147 Editor: Institute of Food Technologists DOI: 10.1111/1750-3841.14343 In vitro digestion models to assess lipolysis: The impact of the simulated conditions of gastric and intestinal pH, bile salts and digestive fluids Autores: Joaquim Calvo-Lerma, Victoria Fornés-Ferrer, Ana Heredia, Ana Andrés Publicado en: Food Research International, Issue 125, 2019, Page(s) 108511, ISSN 0963-9969 Editor: Elsevier BV DOI: 10.1016/j.foodres.2019.108511 Lipids digestibility and polyphenols release under in vitro digestion of dark, milk and white chocolate Autores: Carolina Paz-Yépez, Irene Peinado, Ana Heredia, Ana Andrés Publicado en: Journal of Functional Foods, Issue 52, 2019, Page(s) 196-203, ISSN 1756-4646 Editor: Elsevier BV DOI: 10.1016/j.jff.2018.10.028 Clinical validation of an evidence-based method to adjust Pancreatic Enzyme Replacement Therapy through a prospective interventional study in paediatric patients with Cystic Fibrosis Autores: Joaquim Calvo-Lerma, Jessie Hulst, Mieke Boon, Carla Colombo, Etna Masip, Mar Ruperto, Victoria Fornés-Ferrer, Els van der Wiel, Ine Claes, Maria Garriga, Maria Roca, Paula Crespo-Escobar, Anna Bulfamante, Sandra Woodcock, Sandra Martínez-Barona, Ana Andrés, Kris de Boeck, Carmen Ribes-Koninckx Publicado en: PLOS ONE, Issue 14/3, 2019, Page(s) e0213216, ISSN 1932-6203 Editor: Public Library of Science DOI: 10.1371/journal.pone.0213216 Optimisation of children z-score calculation based on new statistical techniques Autores: Antonio Martinez-Millana, Jessie M. Hulst, Mieke Boon, Peter Witters, Carlos Fernandez-Llatas, Ines Asseiceira, Joaquin Calvo-Lerma, Ignacio Basagoiti, Vicente Traver, Kris De Boeck, Carmen Ribes-Koninckx Publicado en: PLOS ONE, Issue 13/12, 2018, Page(s) e0208362, ISSN 1932-6203 Editor: Public Library of Science DOI: 10.1371/journal.pone.0208362 The Potential of Self-Management mHealth for Pediatric Cystic Fibrosis: Mixed-Methods Study for Health Care and App Assessment Autores: Antonio Martinez-Millana, Annabel Zettl, Jacqueline Floch, Joaquim Calvo-Lerma, Jose Luis Sevillano, Carmen Ribes-Koninckx, Vicente Traver Publicado en: JMIR mHealth and uHealth, Issue 7/4, 2019, Page(s) e13362, ISSN 2291-5222 Editor: JMIR Publications DOI: 10.2196/13362 Innovative approach for self-management and social welfare of children with cystic fibrosis in Europe: development, validation and implementation of an mHealth tool (MyCyFAPP) Autores: Joaquim Calvo-Lerma, Celia P Martinez-Jimenez, Juan-Pablo Lázaro-Ramos, Ana Andrés, Paula Crespo-Escobar, Erlend Stav, Cornelia Schauber, Lucia Pannese, Jessie M Hulst, Lucrecia Suárez, Carla Colombo, Celeste Barreto, Kris de Boeck, Carmen Ribes-Koninckx Publicado en: BMJ Open, Issue 7/3, 2017, Page(s) e014931, ISSN 2044-6055 Editor: BMJ Publishing Group DOI: 10.1136/bmjopen-2016-014931 The Relative Contribution of Food Groups to Macronutrient Intake in Children with Cystic Fibrosis: A European Multicenter Assessment Autores: Joaquim Calvo-Lerma, Jessie Hulst, Mieke Boon, Tiago Martins, Mar Ruperto, Carla Colombo, Victoria Fornés-Ferrer, Sandra Woodcock, Ine Claes, Inês Asseiceira, María Garriga, Anna Bulfamante, Etna Masip, Sylvia Walet, Paula Crespo, Lauretta Valmarana, Sandra Martínez-Barona, Luisa Pereira, Kris de Boeck, Carmen Ribes-Koninckx Publicado en: Journal of the Academy of Nutrition and Dietetics, Issue 119/8, 2019, Page(s) 1305-1319, ISSN 2212-2672 Editor: Elsevier USA DOI: 10.1016/j.jand.2019.01.003 WS12.6 MyCyFAPP project: validation of the PEDsQL GI symptom scale to evaluate gastro-intestinal symptoms in children with cystic fibrosis Autores: M. Boon, I. Claes, T. Havermans, V. Fornés-Ferrer, I. Asseiceira, A. Bulfamente, M. Garriga, E. Masip, S. Woodcock, S. Walet, C. Barreto, J. Calvo-Lerma, C. Colombo, P. Crespo, E. Van der Wiel, J. Hulst, S. Martinez-Barona, R. Nobili, L. Pereira, M. Ruperto, K. De Boeck, C. Ribes-Koninckx, MyCyFAPP study group Publicado en: Journal of Cystic Fibrosis, Issue 17, 2018, Page(s) S23, ISSN 1569-1993 Editor: Elsevier BV DOI: 10.1016/s1569-1993(18)30189-9 ePS5.08 MyCyFAPP project: use of a mobile application for self-management of PERT improves gastrointestinal related quality of life in children with cystic fibrosis Autores: M. Boon, J. Calvo-Lermo, I. Claes, T. Havermans, V. Fornes, I. Asseiceira, A. Bulfamente, M. Garriga, E. Massip, S. Walet, C. Barreto, C. Colombo, P. Crespo, H.M. Janssens, M. Ruperto, J. Hulst, R. Nobili, L. Pereira, E. Van der Wiel, S. Vicente, K. De Boeck, C. Ribes-Koninckx Publicado en: Journal of Cystic Fibrosis, Issue 18, 2019, Page(s) S52-S53, ISSN 1569-1993 Editor: Elsevier BV DOI: 10.1016/s1569-1993(19)30286-3 Lipolysis kinetics of milk-fat catalyzed by an enzymatic supplement under simulated gastrointestinal conditions Autores: Irene Peinado, Virginia Larrea, Ana Heredia, Ana Andrés Publicado en: Food Bioscience, Issue 23, 2018, Page(s) 1-8, ISSN 2212-4292 Editor: Elsevier BV DOI: 10.1016/j.fbio.2018.02.011 Book chapters (1) Co-designing a mHealth Application for Self-management of Cystic Fibrosis Autores: Thomas Vilarinho, Jacqueline Floch, Erlend Stav Publicado en: Human-Computer Interaction – INTERACT 2017, Issue 10515, 2017, Page(s) 3-22, ISBN 978-3-319-67686-9 Editor: Springer International Publishing DOI: 10.1007/978-3-319-67687-6_1 Buscando datos de OpenAIRE... Se ha producido un error en la búsqueda de datos de OpenAIRE No hay resultados disponibles