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European Health Data and Evidence Network

Deliverables

Selected priority therapeutic areas

A short report on the completion of task 2.1

Yearly Progress report on technical framework (1)

A description of the progress on the technical platform and outlook for the following 12 months.

Report on key data source/s of interest for WP1 Use Cases

This report will provide the rationale for mapping different types of data as relevant for the proposed use cases.

Ethics Advisory Board nomination

Nomination of the Ethics Advisory Board pursuant to the Ethics Review

Selection of use cases for personalized medicine

We will perform a survey including all the stakeholders to develop a list to use cases for the personalized medicine pipeline. This will include prediction and risk effect estimation use cases.

ICHOM standards defined using OMOP terminology

This deliverable provides insight on how the prioritized ICHOM standard sets as defined in D2.1 can be implemented using the OMOP-CDM.

Report on SME Certification Procedure and Data Source Grant Awarding Procedure developed and implemented

Report on SME Certification Procedure and Data Source Grant Awarding Procedure developed and implemented. This will include the Open Call announcement text and instructions for applicants, definition of selection and evaluation committees and description of eligibility criteria.

Stakeholder mapping

This deliverable will report on the different stakeholder types that will need a value proposition for successful outreach, including if necessary sub-categories.

First Report on the implementation of the analytical pipeline for personalized medicine

This deliverable will provide an update on the analytical pipeline for patient-level prediction and risk effect estimation

First version of the Framework for quality benchmarking

This deliverable will contain the description of the quality management and control framework with a primary focus on the mapping process, also incorporating stakeholder consultations.

Technical framework design and architecture

The identification of the individual components, the functional and technical integration of these components in the EHDEN platform are the subject of this first deliverable.

Publications

Patient data discovery platforms as enablers of biomedical and translational research: A systematic review

Author(s): Alina Trifan, José Luís Oliveira
Published in: Journal of Biomedical Informatics, Issue 93, 2019, Page(s) 103154, ISSN 1532-0464
DOI: 10.1016/j.jbi.2019.103154

Opioid use, postoperative complications, and implant survival after unicompartmental versus total knee replacement: a population-based network study

Author(s): Edward Burn, James Weaver, Daniel Morales, Albert Prats-Uribe, Antonella Delmestri, Victoria Y Strauss, Ying He, Danielle E Robinson, Rafael Pinedo-Villanueva, Spyros Kolovos, Talita Duarte-Salles, William Sproviero, Dahai Yu, Michel Van Speybroeck, Ross Williams, Luis H John, Nigel Hughes, Anthony G Sena, Ruth Costello, Belay Birlie, David Culliford, Caroline O'Leary, Henry Morgan, Theresa Burkar
Published in: The Lancet Rheumatology, Issue 1/4, 2019, Page(s) e229-e236, ISSN 2665-9913
DOI: 10.1016/s2665-9913(19)30075-x

Developing Computational Solutions for Personalized Medicine.

Author(s): Reisberg Sulev
Published in: Issue 27/06/2019, 2019

Report on the EHDEN achievements during its foundational year (Nov 2018 - Oct 2019)

Author(s): The EHDEN consortium
Published in: 2020