Objective Over the last 40 years, treatment for childhood and adolescent cancer has improved greatly; 5- year survival after childhood cancer is now 80% in developed countries. Approximately 1 individual in 750 of young adults is now a childhood cancer survivor. Epidemiologic data on the number of European childhood cancer long-term survivors are not available, but estimates suggest a number between 300,000 and 500,000. However, significant differences in both survival and services for long-term follow-up exist across Europe. Recent research from North America has shown that the frequency of late complications continues to rise as the length of follow-up increases with, so far, no evidence of a plateau of incidence. Some late complications of treatment lead to chronic ill health or disability, and thereby constitute a significant burden both on individuals and families, and on health services and society. However, there is considerable opportunity for early identification and appropriate management of complications to improve the survivors’ health and quality of life, and to maximise efficient use of health services. PanCareSurFup proposes an integrated group of research and service projects to meet these needs. PanCareSurFup will, through cooperation with existing registries and databases, collect data on the risks of complications of cancer treatments to create a retrospective European cohort. Using this cohort research will centre on cardiac toxicity, second cancers and late mortality, with service projects based on a study of models of follow-up and transition to adult care. PanCareSurFup will describe risks of complications of treatment received. Risk prediction and guidelines for care and education will be based on our research and existing evidence, and tailored for each country. The expected benefit is to provide every European childhood cancer survivor with better access to care and better long-term health. Fields of science social sciencessociologydemographymortalitynatural sciencescomputer and information sciencesdatabasesmedical and health sciencesclinical medicineoncology Programme(s) FP7-HEALTH - Specific Programme "Cooperation": Health Topic(s) HEALTH.2010.2.4.1-7 - Predicting long-term side effects to cancer therapy. FP7-HEALTH-2010-two-stage Call for proposal FP7-HEALTH-2010-two-stage See other projects for this call Funding Scheme CP-FP - Small or medium-scale focused research project Coordinator LUNDS UNIVERSITET EU contribution € 926 438,40 Address Paradisgatan 5c 22100 Lund Sweden See on map Region Södra Sverige Sydsverige Skåne län Activity type Higher or Secondary Education Establishments Administrative Contact Lars Hjorth (Dr.) Links Contact the organisation Opens in new window Website Opens in new window Total cost No data Participants (16) Sort alphabetically Sort by EU Contribution Expand all Collapse all UNIVERSITY OF NEWCASTLE UPON TYNE United Kingdom EU contribution € 212 000,00 Address KINGS GATE NE1 7RU Newcastle Upon Tyne See on map Region North East (England) Northumberland and Tyne and Wear Tyneside Activity type Higher or Secondary Education Establishments Administrative Contact Aleona Blinova (Ms.) Links Contact the organisation Opens in new window Website Opens in new window Total cost No data ISTITUTO GIANNINA GASLINI Italy EU contribution € 250 780,00 Address VIA GEROLAMO GASLINI 5 16147 Genova See on map Region Nord-Ovest Liguria Genova Activity type Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments) Administrative Contact Maria Gabriella Marinari (Dr.) Links Contact the organisation Opens in new window Website Opens in new window Total cost No data UNIVERSITAETSMEDIZIN DER JOHANNES GUTENBERG-UNIVERSITAET MAINZ Germany EU contribution € 331 041,00 Address Langenbeckstrasse 1 55131 Mainz See on map Region Rheinland-Pfalz Rheinhessen-Pfalz Mainz, Kreisfreie Stadt Activity type Higher or Secondary Education Establishments Administrative Contact Uta Veith (Dr.) Links Contact the organisation Opens in new window Website Opens in new window Total cost No data BOYNE RESEARCH INSTITUTE LIMITED Ireland EU contribution € 243 181,20 Address DUKE STREET DUKE HOUSE UNIT ONE A92 RY6K DROGHEDA See on map Activity type Research Organisations Administrative Contact Julianne Byrne (Dr.) Links Contact the organisation Opens in new window Website Opens in new window Total cost No data ST.ANNA KINDERSPITAL GMBH Austria EU contribution € 128 000,40 Address KINDERSPITALGASSE 6 1090 WIEN See on map Activity type Research Organisations Administrative Contact Werner Eibler (Mr.) Links Contact the organisation Opens in new window Website Opens in new window Total cost No data ACADEMISCH MEDISCH CENTRUM BIJ DE UNIVERSITEIT VAN AMSTERDAM Netherlands EU contribution € 888 251,00 Address MEIBERGDREEF 15 1105AZ Amsterdam See on map Region West-Nederland Noord-Holland Groot-Amsterdam Activity type Higher or Secondary Education Establishments Administrative Contact Leontien Kremer (Dr.) Links Contact the organisation Opens in new window Website Opens in new window Total cost No data VAS MEGYEI MARKUSOVSZKY LAJOS ALTALANOS, REHABILITACIOS ES GYOGYFURDOKORHAZ, EGYETEMI OKTATO KORHAZ ZARTKORUEN MUKODO NONPROFIT RESZVENYTA Participation ended Hungary EU contribution No data Address HUNYADI JANOS UTCA 31 9970 SZENTGOTTHARD See on map Activity type Research Organisations Administrative Contact Edit Bárdi (Dr.) Links Contact the organisation Opens in new window Website Opens in new window Total cost No data UNIVERSITA DEGLI STUDI DI TORINO Italy EU contribution € 222 727,00 Address VIA GIUSEPPE VERDI 8 10124 Torino See on map Region Nord-Ovest Piemonte Torino Activity type Higher or Secondary Education Establishments Administrative Contact Antonietta Davello (Ms.) Links Contact the organisation Opens in new window Website Opens in new window Total cost No data GREAT ORMOND STREET HOSPITAL FOR CHILDREN NHS FOUNDATION TRUST United Kingdom EU contribution € 85 000,00 Address GREAT ORMOND STREET WC1N 3JH London See on map Region London Inner London — West Camden and City of London Activity type Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments) Administrative Contact Claire Newton (Ms.) Links Contact the organisation Opens in new window Total cost No data UNIVERSITAET BERN Switzerland EU contribution € 427 896,00 Address HOCHSCHULSTRASSE 6 3012 Bern See on map Region Schweiz/Suisse/Svizzera Espace Mittelland Bern / Berne Activity type Higher or Secondary Education Establishments Administrative Contact Claudia Kühni (Dr.) Links Contact the organisation Opens in new window Website Opens in new window Total cost No data INSTITUT GUSTAVE ROUSSY France EU contribution € 909 112,00 Address Rue Camille Desmoulins 39 94805 Villejuif See on map Region Ile-de-France Ile-de-France Val-de-Marne Activity type Research Organisations Administrative Contact Arnauld Forest (Mr.) Links Contact the organisation Opens in new window Website Opens in new window Total cost No data THE UNIVERSITY OF BIRMINGHAM United Kingdom EU contribution € 898 908,00 Address Edgbaston B15 2TT Birmingham See on map Region West Midlands (England) West Midlands Birmingham Activity type Higher or Secondary Education Establishments Administrative Contact Robert Fekete (Mr.) Links Contact the organisation Opens in new window Website Opens in new window Total cost No data FONDAZIONE MONZA E BRIANZA PER IL BAMBINO E LA SUA MAMMA ONLUS Italy EU contribution € 125 200,00 Address Via Pergolesi 33 20052 Monza See on map Region Nord-Ovest Lombardia Monza e della Brianza Activity type Other Administrative Contact Momcilo Jankovic (Dr.) Links Contact the organisation Opens in new window Total cost No data SIOP EUROPE Belgium EU contribution € 76 522,00 Address CLOS CHAPELLE-AUX-CHAMPS 30 1200 Bruxelles / Brussel See on map Region Région de Bruxelles-Capitale/Brussels Hoofdstedelijk Gewest Région de Bruxelles-Capitale/ Brussels Hoofdstedelijk Gewest Arr. de Bruxelles-Capitale/Arr. Brussel-Hoofdstad Activity type Other Administrative Contact Samira Essiaf (Ms.) Links Contact the organisation Opens in new window Website Opens in new window Total cost No data CENTRE INTERNATIONAL DE RECHERCHE SUR LE CANCER France EU contribution € 132 901,00 Address 25 AVENUE TONY GARNIER 69007 Lyon 7eme See on map Region Auvergne-Rhône-Alpes Rhône-Alpes Rhône Activity type Research Organisations Administrative Contact Olaf Kelm (Dr.) Links Contact the organisation Opens in new window Website Opens in new window Total cost No data SEMMELWEIS EGYETEM Hungary EU contribution € 135 737,00 Address ULLOI UTCA 26 1085 Budapest See on map Region Közép-Magyarország Budapest Budapest Activity type Higher or Secondary Education Establishments Administrative Contact Edit Bárdi (Dr.) Links Contact the organisation Opens in new window Website Opens in new window Total cost No data