Objective
Research on rare diseases (RDs) is scarce and fragmented in the EU, leading to delayed diagnoses, limited availability of medicinal products and challenging access to care. Like in most RDs, data-driven research on rare haematological diseases (RHDs) is affected by the lack of data standardisation and the fragmentation of available data in close repositories. Adhering to the principle of making data findable, accessible, interoperable and reusable (FAIR) is pivotal in fostering collaborative research and maximising the potential of available data. FAIR principles are especially relevant in the context of RD research, as their use can help to tackle data fragmentation and accelerate scientific discoveries.
HemaFAIR aims to unravel the scientific excellence and innovation potential of a Widening country (Cyprus), through an EU network of excellence on the use of FAIR principles in RHD research. As a reference centre for most RDs in Cyprus, the Cyprus Institute of Neurology & Genetics (CING) can serve as a model for raising the scientific profile and competitiveness of Cyprus in RDs/RHDs and biomedical informatics and strengthening the research management and administrative skills. HemaFAIR brings together key experts in RHD research, biomedical informatics, patient-centred research and ethics and regulatory issues.
HemaFAIR will develop and implement a comprehensive training programme and numerous capacity-building and strategic networking activities, including summer schools, workshops, webinars, and transferrable skills lectures. Also, HemaFAIR will raise the profile of early-career researchers via the development of a mentoring programme, short-term staff exchanges and three collaborative research projects. Notably, the research component of HemaFAIR will demonstrate the FAIRification process on two existing platforms for haemoglobinopathies, a group of RHDs that are particularly prevalent in Cyprus, thus maximising the impact of the project on the local society.
Keywords
Project’s keywords as indicated by the project coordinator. Not to be confused with the EuroSciVoc taxonomy (Fields of science)
Project’s keywords as indicated by the project coordinator. Not to be confused with the EuroSciVoc taxonomy (Fields of science)
Programme(s)
Multi-annual funding programmes that define the EU’s priorities for research and innovation.
Multi-annual funding programmes that define the EU’s priorities for research and innovation.
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HORIZON.4.1 - Widening participation and spreading excellence
MAIN PROGRAMME
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Topic(s)
Calls for proposals are divided into topics. A topic defines a specific subject or area for which applicants can submit proposals. The description of a topic comprises its specific scope and the expected impact of the funded project.
Calls for proposals are divided into topics. A topic defines a specific subject or area for which applicants can submit proposals. The description of a topic comprises its specific scope and the expected impact of the funded project.
Funding Scheme
Funding scheme (or “Type of Action”) inside a programme with common features. It specifies: the scope of what is funded; the reimbursement rate; specific evaluation criteria to qualify for funding; and the use of simplified forms of costs like lump sums.
Funding scheme (or “Type of Action”) inside a programme with common features. It specifies: the scope of what is funded; the reimbursement rate; specific evaluation criteria to qualify for funding; and the use of simplified forms of costs like lump sums.
HORIZON-CSA - HORIZON Coordination and Support Actions
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Call for proposal
Procedure for inviting applicants to submit project proposals, with the aim of receiving EU funding.
Procedure for inviting applicants to submit project proposals, with the aim of receiving EU funding.
(opens in new window) HORIZON-WIDERA-2023-ACCESS-02
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Net EU financial contribution. The sum of money that the participant receives, deducted by the EU contribution to its linked third party. It considers the distribution of the EU financial contribution between direct beneficiaries of the project and other types of participants, like third-party participants.
2371 AGIOS DOMETIOS
Cyprus
The total costs incurred by this organisation to participate in the project, including direct and indirect costs. This amount is a subset of the overall project budget.