RARE-BESTPRACTICES final conference
The aim of the conference is to disseminate the findings from the RARE-BESTPRACTICES project and offer a forum for discussing with relevant stakeholders how this work could be taken into account in delivering better health decision making and health policies for rare diseases.
The event will bring together leading experts in the area of evidence synthesis documents to discuss the methodological advancements and knowledge resources developed by the RARE-BESTPRACTICES consortium and focuses on mechanisms for ensuring the production of reliable, relevant, usable evidence in a bid to increase the value of research on rare disease.
For more information, please see:
project event webpage