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Intelligent Ecosystem to improve the governance, the sharing and the re-use of health Data for Rare Cancers

Project description

European data ecosystem for rare cancers

The EU-funded IDEA4RC project aims to establish an AI-assisted data ecosystem for rare cancers (RC) to enable access and the possibility to re-use existing health-related data from different sources. These include cancer registry data, electronic health records, electronic health care utilisation database across several European healthcare systems. The creation of the RC data ecosystem will increase understanding of these types of cancers, and promote research and improve the quality of care for patients. The project will be executed within the framework of the European reference network for rare adult solid cancers (ERN EURACAN).


"The main objective of this project is to establish a Data Space for rare cancers (RC) that will make possible the re-use of existing multisource health data (cancer registry data, national registries, data from biobanks etc.) across European healthcare systems leveraging emerging interoperability technologies and AI approaches. The realized ""Rare Cancer Data Ecosystem"" is expected to improve the quality and the organization of RC patients care, and to increase knowledge on rare cancers advancing health research, so that all patients have equal access to high quality specialist care. The project approach will be experienced in the framework of the European reference network for rare adult solid cancers (EURACAN)."


Net EU contribution
€ 849 280,00
Via Venezian 1
20133 Milan

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Nord-Ovest Lombardia Milano
Activity type
Research Organisations
Total cost
€ 849 280,00

Participants (25)