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Intelligent Ecosystem to improve the governance, the sharing and the re-use of health Data for Rare Cancers

Objective

"The main objective of this project is to establish a Data Space for rare cancers (RC) that will make possible the re-use of existing multisource health data (cancer registry data, national registries, data from biobanks etc.) across European healthcare systems leveraging emerging interoperability technologies and AI approaches. The realized ""Rare Cancer Data Ecosystem"" is expected to improve the quality and the organization of RC patients care, and to increase knowledge on rare cancers advancing health research, so that all patients have equal access to high quality specialist care. The project approach will be experienced in the framework of the European reference network for rare adult solid cancers (EURACAN)."

Coordinator

FONDAZIONE IRCCS ISTITUTO NAZIONALE DEI TUMORI
Net EU contribution
€ 849 280,00
Address
Via Venezian 1
20133 Milan
Italy

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Region
Nord-Ovest Lombardia Milano
Activity type
Research Organisations
Non-EU contribution
€ 0,00

Participants (24)

UNIVERSIDAD DE LA IGLESIA DE DEUSTO ENTIDAD RELIGIOSA
Spain
Net EU contribution
€ 351 337,50
Address
Avenida De Las Universidades 24
48007 Bilbao

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Region
Noreste País Vasco Bizkaia
Activity type
Higher or Secondary Education Establishments
Non-EU contribution
€ 0,00
MULTIMED ENGINEERS SRL
Italy
Net EU contribution
€ 325 922,50
Address
Strada Felice Cavallotti 11
43121 Parma

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SME

The organization defined itself as SME (small and medium-sized enterprise) at the time the Grant Agreement was signed.

Yes
Region
Nord-Est Emilia-Romagna Parma
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
Non-EU contribution
€ 0,00
UNIVERSIDAD POLITECNICA DE MADRID
Spain
Net EU contribution
€ 502 837,50
Address
Calle Ramiro De Maeztu 7 Edificio Rectorado
28040 Madrid

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Region
Comunidad de Madrid Comunidad de Madrid Madrid
Activity type
Higher or Secondary Education Establishments
Non-EU contribution
€ 0,00
HL7 INTERNATIONAL FONDATION
Belgium
Net EU contribution
€ 328 912,50
Address
Square De Meeus 38-40
1000 Brussels

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Region
Région de Bruxelles-Capitale/Brussels Hoofdstedelijk Gewest Région de Bruxelles-Capitale/ Brussels Hoofdstedelijk Gewest Arr. de Bruxelles-Capitale/Arr. Brussel-Hoofdstad
Activity type
Research Organisations
Non-EU contribution
€ 0,00
EUROPEAN CENTRE FOR CERTIFICATION AND PRIVACY
Luxembourg
Net EU contribution
€ 330 407,50
Address
20 Rue Eugene Ruppert
2453 Luxembourg

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Region
Luxembourg Luxembourg Luxembourg
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
Non-EU contribution
€ 0,00
ENGINEERING - INGEGNERIA INFORMATICA SPA
Italy
Net EU contribution
€ 467 205,00
Address
Piazzale Dell'agricoltura 24
00144 Roma

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Region
Centro (IT) Lazio Roma
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
Non-EU contribution
€ 0,00
ETHNIKO KENTRO EREVNAS KAI TECHNOLOGIKIS ANAPTYXIS
Greece
Net EU contribution
€ 398 681,12
Address
Charilaou Thermi Road 6 Km
57001 Thermi Thessaloniki

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Region
Θεσσαλονίκη Κεντρική Μακεδονία Βόρεια Ελλάδα
Activity type
Research Organisations
Non-EU contribution
€ 0,13
UNIVERSITEIT UTRECHT
Netherlands
Net EU contribution
€ 320 066,88
Address
Heidelberglaan 8
3584 CS Utrecht

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Region
West-Nederland Utrecht Utrecht
Activity type
Higher or Secondary Education Establishments
Non-EU contribution
€ 0,00
DIGITAL INSTITUTE FOR CANCER OUTCOMES RESEARCH
Belgium
Net EU contribution
€ 186 882,50
Address
Rue D'egmont 11
1000 Brussels

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Region
Région de Bruxelles-Capitale/Brussels Hoofdstedelijk Gewest Région de Bruxelles-Capitale/ Brussels Hoofdstedelijk Gewest Arr. de Bruxelles-Capitale/Arr. Brussel-Hoofdstad
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
Non-EU contribution
€ 0,00
FONDAZIONE BRUNO KESSLER
Italy
Net EU contribution
€ 246 683,75
Address
Via Santa Croce 77
38122 Trento

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Region
Nord-Est Provincia Autonoma di Trento Trento
Activity type
Research Organisations
Non-EU contribution
€ 0,00
STICHTING INTEGRAAL KANKERCENTRUM NEDERLAND
Netherlands
Net EU contribution
€ 331 123,75
Address
Godebaldkwartier 419
3511 DT Utrecht

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Region
West-Nederland Utrecht Utrecht
Activity type
Research Organisations
Non-EU contribution
€ 0,00
CENTRE DE LUTTE CONTRE LE CANCER LEON BERARD
France
Net EU contribution
€ 336 387,50
Address
Rue Laennec 28
69373 Lyon

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Region
Auvergne-Rhône-Alpes Rhône-Alpes Rhône
Activity type
Research Organisations
Non-EU contribution
€ 0,00
ASSISTANCE PUBLIQUE HOPITAUX DE PARIS
France
Net EU contribution
€ 318 945,00
Address
3 Avenue Victoria
75000 Paris

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Region
Ile-de-France Ile-de-France Paris
Activity type
Research Organisations
Non-EU contribution
€ 0,00
INSTITUTO INVESTIGACION SANITARIA FUNDACION JIMENEZ DIAZ
Spain
Net EU contribution
€ 332 026,25
Address
Avenida De Los Reyes Catolicos 2
28040 Madrid

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Region
Comunidad de Madrid Comunidad de Madrid Madrid
Activity type
Research Organisations
Non-EU contribution
€ 0,00
VÄSTRA GÖTALANDSREGIONEN
Sweden
Net EU contribution
€ 331 280,00
Address
Regionens Hus
462 80 Vanersborg

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Region
Södra Sverige Västsverige Västra Götalands län
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
Non-EU contribution
€ 0,00
Narodowy Instytut Onkologii im. Marii Sklodowskiej-Curie - Panstwowy Instytut Badawczy
Poland
Net EU contribution
€ 330 157,50
Address
Ul. W K Roentgena 5
02781 Warszawa

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Region
Makroregion województwo mazowieckie Warszawski stołeczny Miasto Warszawa
Activity type
Research Organisations
Non-EU contribution
€ 0,00
FAKULTNI NEMOCNICE V MOTOLE
Czechia
Net EU contribution
€ 227 996,25
Address
V Uvalu 84
150 06 Praha 5

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Region
Praha Hlavní město Praha
Activity type
Research Organisations
Non-EU contribution
€ 0,00
OSLO UNIVERSITETSSYKEHUS HF
Norway
Net EU contribution
€ 351 337,50
Address
Kirkeveien 166 Tarnbygget
0450 Oslo

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Region
Norge Oslo og Viken Oslo
Activity type
Higher or Secondary Education Establishments
Non-EU contribution
€ 0,00
MASARYKUV ONKOLOGICKY USTAV
Czechia
Net EU contribution
€ 289 043,75
Address
Zluty Kopec 7
656 53 Brno

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Region
Jihovýchod Jihomoravský kraj
Activity type
Research Organisations
Non-EU contribution
€ 0,00
CLININOTE SPOLKA Z OGRANICZONA ODPOWIEDZIALNOSCIA
Poland
Net EU contribution
€ 247 182,50
Address
Ul. Melgiewska Nr 7-9 Lok. 122
20-952 Lublin

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SME

The organization defined itself as SME (small and medium-sized enterprise) at the time the Grant Agreement was signed.

Yes
Region
Makroregion wschodni Lubelskie Lubelski
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
Non-EU contribution
€ 0,00
FUNDACION PROFESOR NOVOA SANTOS
Spain
Net EU contribution
€ 209 307,50
Address
Calle Xubias De Arriba 84
15006 A Coruna

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Region
Galicia A Coruña
Activity type
Research Organisations
Non-EU contribution
€ 0,00
NEDERLANDSE ORGANISATIE VOOR TOEGEPAST NATUURWETENSCHAPPELIJK ONDERZOEK TNO
Netherlands
Net EU contribution
€ 206 192,50
Address
Anna Van Buerenplein 1
2595 DA Den Haag

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Region
West-Nederland Zuid-Holland Agglomeratie ’s-Gravenhage
Activity type
Research Organisations
Non-EU contribution
€ 0,00
INFERENZE SOC. COOP.
Italy
Net EU contribution
€ 149 505,00
Address
Via Ricciarelli 29
20148 Milano

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SME

The organization defined itself as SME (small and medium-sized enterprise) at the time the Grant Agreement was signed.

Yes
Region
Nord-Ovest Lombardia Milano
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
Non-EU contribution
€ 0,00
UNIVERSITAETSKLINIKUM ESSEN
Germany
Net EU contribution
€ 221 766,25
Address
Hufelandstrasse 55
45147 Essen

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Region
Nordrhein-Westfalen Düsseldorf Essen, Kreisfreie Stadt
Activity type
Higher or Secondary Education Establishments
Non-EU contribution
€ 0,00