Design-based Data-Driven Decision-support Tools: Producing Improved Cancer Outcomes Through User-Centred Research

Project Information

4D PICTURE

Grant agreement ID: 101057332

DOI

10.3030/101057332

EC signature date 24 May 2022

Start date 1 October 2022

End date 30 September 2027

Funded under

• Health

Total cost

€ 9 033 750,00

EU contribution

€ 9 033 750,00

Coordinated by

ERASMUS UNIVERSITAIR MEDISCH CENTRUM ROTTERDAM
Netherlands

CORDIS provides links to public deliverables and publications of HORIZON projects.

Links to deliverables and publications from FP7 projects, as well as links to some specific result types such as dataset and software, are dynamically retrieved from OpenAIRE .

Deliverables

Other (2)

Quality assurance manual including data management plan

Quality assurance manual including data management plan (M6, M60)

Reports about main results of literature review and qualitative interview study

Reports about main results of literature review (M12) and qualitative interview study (M42)

Documents, reports (2)

Report describing themes, values, preferences and concerns summarising experiences of cancer patients to act as input for WP4

Report describing themes, values, preferences and concerns summarising experiences of cancer patients to act as input for WP4 (M18)

Manual for the in-person training and e-learnings for the MetroMapping methodology

Manual for the in-person training and e-learnings for the MetroMapping methodology (M12)

Websites, patent fillings, videos etc. (1)

Letter to describe launch of project website

Letter to describe launch of project website (M6)

Publications

Peer reviewed articles (8)

Breast

Author(s): Ellen G. Engelhardt; Mary Ann E. Binuya; Paul D.P. Pharoah; Coralie Poncet; Emiel J.T. Rutgers; Martine Piccart; Fatima Cardoso; Laura J. van ‘t Veer; Ewout W. Steyerberg; Sabine C. Linn; Marjanka K. Schmidt
Published in: The Breast, 2025, ISSN 0960-9776
Publisher: Elsevier
DOI: 10.1016/J.BREAST.2025.104542

Improving shared decision-making about cancer treatment through design-based data-driven decision-support tools and redesigning care paths: an overview of the 4D PICTURE project

Author(s): Judith A. C. Rietjens, Ingeborg Griffioen, […], and Anne M. Stiggelbout
Published in: Palliative Care and Social Practice, 2024, ISSN 2632-3524
Publisher: Sage
DOI: 10.1177/26323524231225249

Effective Sample Size for the Kaplan-Meier Estimator: A Valuable Measure of Uncertainty?

Author(s): Toby Hackmann, Doranne Thomassen, Anne M. Stiggelbout, Saskia le Cessie, Hein Putter, Liesbeth C. de Wreede, Ewout W. Steyerberg, null null
Published in: The American Statistician, 2025, ISSN 0003-1305
Publisher: Informa UK Limited
DOI: 10.1080/00031305.2025.2542390

Ethical Design of Data-Driven Decision Support Tools for Improving Cancer Care: Embedded Ethics Review of the 4D PICTURE Project

Author(s): Marieke Bak; Laura Hartman; Charlotte Graafland; Ida J Korfage; Alena Buyx; Maartje Schermer
Published in: JMIR Cancer, 2025, ISSN 2369-1999
Publisher: JMIR Cancer
DOI: 10.2196/65566

Guidance for unbiased predictive information for healthcare decision-making and equity (GUIDE): considerations when race may be a prognostic factor

Author(s): Keren Ladin; John Cuddeback; O. Kenrik Duru; Sharad Goel; William Harvey; Jinny G. Park; Jessica K. Paulus; Joyce Sackey; Richard Sharp; Ewout Steyerberg; Berk Ustun; David van Klaveren; Saul N. Weingart; David M. Kent
Published in: npj Digital Medicine, 2024, ISSN 2398-6352
Publisher: Nature portfolio
DOI: 10.1038/S41746-024-01245-Y

Patient Education and Counseling

Author(s): Sañudo, Yeray; Akoglu, Canan; Rietjens, Judith A.C.; Snelders, Dirk; Stiggelbout, Anne M.; Sierra-Pérez, Jorge
Published in: Patient Education and Counseling, 2025, ISSN 0738-3991
Publisher: Elsevier B.V.
DOI: 10.1016/J.PEC.2024.108551

The EMPATHS method: assessing patients’ emotional reactions to healthcare from a service design approach

Author(s): Yeray Sañudo, Laura Aguado, Alba Medina Castillo, Jorge Sierra-Pérez
Published in: Journal of Engineering Design, 2025, ISSN 1466-1837
Publisher: Taylor & Francis
DOI: 10.1080/09544828.2025.2564620

Cancer experience in metaphors: patients, carers, professionals, students – a scoping review

Author(s): Liu, Yufeng; Semino, Elena; Rietjens, Judith; Payne, Sheila; Romero Piqueras, Carlos; Sierra Pérez, Jorge; Pitarch, Lucía; Pazo Cid, Roberto; Puertolas, Teresa; On behalf of 4D PICTURE Consortium
Published in: BMJ Support Palliat Care, 2024, ISSN 2045-4368
Publisher: BMJ Publishing Group
DOI: 10.1136/SPCARE-2024-004927

Conference proceedings (8)

MEAN: Metaphoric Erroneous ANalogies dataset for PTLMs metaphor knowledge probing

Author(s): Lucia Pitarch, Jorge Bernad, Jorge Gracia
Published in: Proceedings of the 4th Conference on Language, Data and Knowledge, 2023
Publisher: NOVA CLUNL, Portugal

Health-economic evaluation of MetroMapping – decision analysis within the EU HORIZON EUROPE project 4DPICTURE

Author(s): Lára Rún Hallsson, Petra Mösl, [...], Gaby Sroczynski
Published in: 24. Jahrestagung des Netzwerks Evidenzbasierte Medizin e. V., 22. - 24.03.2023, Potsdam, 2023
Publisher: Netzwerk Evidenzbasierte Medizin e. V. (EbM-Netzwerk)
DOI: 10.3205/23EBM087

Analysing palliative care concerns: Exploring patient and carer narratives with GPT-3.5 as part of the 4D Picture Project

Author(s): Daisy Lal1, Paul Rayson1, Sheila Payne2, Yufeng Liu3, Ida Korfage4, Judith Rietjens5, On behalf of the 4D Picture Consortium6
Published in: Palliative MedicineVolume 39, Issue 2_suppl: The 19th World Congress of the European Association for Palliative Care 29 – 31 May 2025, 2025
Publisher: Sage Journals
DOI: 10.1177/02692163251335482

Analysing Emotions in Cancer Narratives: A Corpus-Driven Approach

Author(s): Daisy Monika Lal, Paul Rayson, Sheila A. Payne, Yufeng Liu
Published in: Proceedings of the First Workshop on Patient-Oriented Language Processing (CL4Health) @ LREC-COLING 2024, 2024
Publisher: ELRA and ICCL

No clues good clues: out of context Lexical Relation Classification

Author(s): Pitarch, Lucia; Bernad, Jordi; Dranca, Lacramioara; Bobed Lisbona, Carlos; Gracia, Jorge
Published in: Proceedings of the 61st Annual Meeting of the Association for Computational Linguistics (Volume 1: Long Papers), 2023
Publisher: Association for Computational Linguistics
DOI: 10.18653/V1/2023.ACL-LONG.308

Embedding Ethics in Practice: Preempting Ethical Issues in the Field by Reflecting on the Methodology of Shadowing Within Cancer Care Services.

Author(s): Renedo Illaguerri, Erika; Sañudo, Yeray; Hartman, Laura; Bak, Marieke; Sierra-Pérez, Jorge
Published in: Proceedings of DRS, 2024
Publisher: Design Research Society
DOI: 10.21606/DRS.2024.959

LENS: Learning Entities from Narratives of Skin Cancer

Author(s): Daisy Monika Lal, Paul Rayson, Christopher Peter, Ignatius Ezeani, Mo El-Haj, Yafei Zhu, and Yufeng Liu.
Published in: COLING 2025, Issue Proceedings of the 31st International Conference on Computational Linguistics: System Demonstrations, 2025
Publisher: Association for Computational Linguistics

Medical-FLAVORS: A Figurative Language and Vocabulary Open Repository for Spanish in the Medical Domain

Author(s): Lucia Pitarch, Emma Angles-Herrero, Yufeng Liu, Daisy Monika Lal, Jorge Gracia, Paul Rayson, Judith Rietjens
Published in: ACL Anthology, Issue (CL4Health) @ LREC-COLING 2024, 2024
Publisher: ELRA and ICCL

Other (1)

Workshop: How to account for solidarity in risk prediction models? A case study from the 4D PICTURE project

Author(s): Charlotte Graafland, Laura Hartman, David van Klaveren, Maartje Schermer on behalf of 4D PICTURE
Published in: archive.illc.uva.nl, 2023
Publisher: Institute for Logic, Language and Computation Universiteit van Amsterdam