Design-based Data-Driven Decision-support Tools: Producing Improved Cancer Outcomes Through User-Centred Research

Informations projet

4D PICTURE

N° de convention de subvention: 101057332

DOI

10.3030/101057332

Date de signature de la CE 24 Mai 2022

Date de début 1 Octobre 2022

Date de fin 30 Septembre 2027

Financé au titre de

• Health

Coût total

€ 9 033 750,00

Contribution de l’UE

€ 9 033 750,00

Coordonné par

ERASMUS UNIVERSITAIR MEDISCH CENTRUM ROTTERDAM
Netherlands

CORDIS fournit des liens vers les livrables publics et les publications des projets HORIZON.

Les liens vers les livrables et les publications des projets du 7e PC, ainsi que les liens vers certains types de résultats spécifiques tels que les jeux de données et les logiciels, sont récupérés dynamiquement sur OpenAIRE .

Livrables

Other (2)

Quality assurance manual including data management plan

Quality assurance manual including data management plan (M6, M60)

Reports about main results of literature review and qualitative interview study

Reports about main results of literature review (M12) and qualitative interview study (M42)

Documents, reports (2)

Report describing themes, values, preferences and concerns summarising experiences of cancer patients to act as input for WP4

Report describing themes, values, preferences and concerns summarising experiences of cancer patients to act as input for WP4 (M18)

Manual for the in-person training and e-learnings for the MetroMapping methodology

Manual for the in-person training and e-learnings for the MetroMapping methodology (M12)

Websites, patent fillings, videos etc. (1)

Letter to describe launch of project website

Letter to describe launch of project website (M6)

Publications

Peer reviewed articles (8)

Breast

Auteurs: Ellen G. Engelhardt; Mary Ann E. Binuya; Paul D.P. Pharoah; Coralie Poncet; Emiel J.T. Rutgers; Martine Piccart; Fatima Cardoso; Laura J. van ‘t Veer; Ewout W. Steyerberg; Sabine C. Linn; Marjanka K. Schmidt
Publié dans: The Breast, 2025, ISSN 0960-9776
Éditeur: Elsevier
DOI: 10.1016/J.BREAST.2025.104542

Improving shared decision-making about cancer treatment through design-based data-driven decision-support tools and redesigning care paths: an overview of the 4D PICTURE project

Auteurs: Judith A. C. Rietjens, Ingeborg Griffioen, […], and Anne M. Stiggelbout
Publié dans: Palliative Care and Social Practice, 2024, ISSN 2632-3524
Éditeur: Sage
DOI: 10.1177/26323524231225249

Effective Sample Size for the Kaplan-Meier Estimator: A Valuable Measure of Uncertainty?

Auteurs: Toby Hackmann, Doranne Thomassen, Anne M. Stiggelbout, Saskia le Cessie, Hein Putter, Liesbeth C. de Wreede, Ewout W. Steyerberg, null null
Publié dans: The American Statistician, 2025, ISSN 0003-1305
Éditeur: Informa UK Limited
DOI: 10.1080/00031305.2025.2542390

Ethical Design of Data-Driven Decision Support Tools for Improving Cancer Care: Embedded Ethics Review of the 4D PICTURE Project

Auteurs: Marieke Bak; Laura Hartman; Charlotte Graafland; Ida J Korfage; Alena Buyx; Maartje Schermer
Publié dans: JMIR Cancer, 2025, ISSN 2369-1999
Éditeur: JMIR Cancer
DOI: 10.2196/65566

Guidance for unbiased predictive information for healthcare decision-making and equity (GUIDE): considerations when race may be a prognostic factor

Auteurs: Keren Ladin; John Cuddeback; O. Kenrik Duru; Sharad Goel; William Harvey; Jinny G. Park; Jessica K. Paulus; Joyce Sackey; Richard Sharp; Ewout Steyerberg; Berk Ustun; David van Klaveren; Saul N. Weingart; David M. Kent
Publié dans: npj Digital Medicine, 2024, ISSN 2398-6352
Éditeur: Nature portfolio
DOI: 10.1038/S41746-024-01245-Y

Patient Education and Counseling

Auteurs: Sañudo, Yeray; Akoglu, Canan; Rietjens, Judith A.C.; Snelders, Dirk; Stiggelbout, Anne M.; Sierra-Pérez, Jorge
Publié dans: Patient Education and Counseling, 2025, ISSN 0738-3991
Éditeur: Elsevier B.V.
DOI: 10.1016/J.PEC.2024.108551

The EMPATHS method: assessing patients’ emotional reactions to healthcare from a service design approach

Auteurs: Yeray Sañudo, Laura Aguado, Alba Medina Castillo, Jorge Sierra-Pérez
Publié dans: Journal of Engineering Design, 2025, ISSN 1466-1837
Éditeur: Taylor & Francis
DOI: 10.1080/09544828.2025.2564620

Cancer experience in metaphors: patients, carers, professionals, students – a scoping review

Auteurs: Liu, Yufeng; Semino, Elena; Rietjens, Judith; Payne, Sheila; Romero Piqueras, Carlos; Sierra Pérez, Jorge; Pitarch, Lucía; Pazo Cid, Roberto; Puertolas, Teresa; On behalf of 4D PICTURE Consortium
Publié dans: BMJ Support Palliat Care, 2024, ISSN 2045-4368
Éditeur: BMJ Publishing Group
DOI: 10.1136/SPCARE-2024-004927

Conference proceedings (8)

MEAN: Metaphoric Erroneous ANalogies dataset for PTLMs metaphor knowledge probing

Auteurs: Lucia Pitarch, Jorge Bernad, Jorge Gracia
Publié dans: Proceedings of the 4th Conference on Language, Data and Knowledge, 2023
Éditeur: NOVA CLUNL, Portugal

Health-economic evaluation of MetroMapping – decision analysis within the EU HORIZON EUROPE project 4DPICTURE

Auteurs: Lára Rún Hallsson, Petra Mösl, [...], Gaby Sroczynski
Publié dans: 24. Jahrestagung des Netzwerks Evidenzbasierte Medizin e. V., 22. - 24.03.2023, Potsdam, 2023
Éditeur: Netzwerk Evidenzbasierte Medizin e. V. (EbM-Netzwerk)
DOI: 10.3205/23EBM087

Analysing palliative care concerns: Exploring patient and carer narratives with GPT-3.5 as part of the 4D Picture Project

Auteurs: Daisy Lal1, Paul Rayson1, Sheila Payne2, Yufeng Liu3, Ida Korfage4, Judith Rietjens5, On behalf of the 4D Picture Consortium6
Publié dans: Palliative MedicineVolume 39, Numéro 2_suppl: The 19th World Congress of the European Association for Palliative Care 29 – 31 May 2025, 2025
Éditeur: Sage Journals
DOI: 10.1177/02692163251335482

Analysing Emotions in Cancer Narratives: A Corpus-Driven Approach

Auteurs: Daisy Monika Lal, Paul Rayson, Sheila A. Payne, Yufeng Liu
Publié dans: Proceedings of the First Workshop on Patient-Oriented Language Processing (CL4Health) @ LREC-COLING 2024, 2024
Éditeur: ELRA and ICCL

No clues good clues: out of context Lexical Relation Classification

Auteurs: Pitarch, Lucia; Bernad, Jordi; Dranca, Lacramioara; Bobed Lisbona, Carlos; Gracia, Jorge
Publié dans: Proceedings of the 61st Annual Meeting of the Association for Computational Linguistics (Volume 1: Long Papers), 2023
Éditeur: Association for Computational Linguistics
DOI: 10.18653/V1/2023.ACL-LONG.308

Embedding Ethics in Practice: Preempting Ethical Issues in the Field by Reflecting on the Methodology of Shadowing Within Cancer Care Services.

Auteurs: Renedo Illaguerri, Erika; Sañudo, Yeray; Hartman, Laura; Bak, Marieke; Sierra-Pérez, Jorge
Publié dans: Proceedings of DRS, 2024
Éditeur: Design Research Society
DOI: 10.21606/DRS.2024.959

LENS: Learning Entities from Narratives of Skin Cancer

Auteurs: Daisy Monika Lal, Paul Rayson, Christopher Peter, Ignatius Ezeani, Mo El-Haj, Yafei Zhu, and Yufeng Liu.
Publié dans: COLING 2025, Numéro Proceedings of the 31st International Conference on Computational Linguistics: System Demonstrations, 2025
Éditeur: Association for Computational Linguistics

Medical-FLAVORS: A Figurative Language and Vocabulary Open Repository for Spanish in the Medical Domain

Auteurs: Lucia Pitarch, Emma Angles-Herrero, Yufeng Liu, Daisy Monika Lal, Jorge Gracia, Paul Rayson, Judith Rietjens
Publié dans: ACL Anthology, Numéro (CL4Health) @ LREC-COLING 2024, 2024
Éditeur: ELRA and ICCL

Other (1)

Workshop: How to account for solidarity in risk prediction models? A case study from the 4D PICTURE project

Auteurs: Charlotte Graafland, Laura Hartman, David van Klaveren, Maartje Schermer on behalf of 4D PICTURE
Publié dans: archive.illc.uva.nl, 2023
Éditeur: Institute for Logic, Language and Computation Universiteit van Amsterdam