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enabling Clinical Research in Emergency and Acute care Medicine through automated data extraction

Objective

To date, the possibility of doing research on quality-of-care assessment in emergency medicine has clashed against sustainability problems. The vast number of patients visiting an ED and the staff shortage that often afflicts these departments make ad hoc data collections unattainable.
The only way to fill the gap between the need for clinical research and the availability of robust data is to directly extract such data from the EDs electronic health records (EHRs), avoiding dedicated data collection. Achieving this goal would enable distributed clinical research, which is now too much restricted to academic centres, and allow to leverage of clinical information to address a multitude of research questions.
Nonetheless, obtaining consistent data from EHRs is a complex task. While a small part of the data registered in EHRs is structured (such as lab test results and vital parameters), most of the useful information on patients' conditions is variably contained in free text (e.g. presence of signs and symptoms, suspected and confirmed diagnosis, anamnesis, etc.). Moreover, as a proactive follow-up of ED patients is unfeasible, relying on the existing data sources is also necessary to measure the outcome of the patients at the most appropriate time interval for the research question of interest.
This proposal has three main aims:
1) to develop new technical solutions to extract reliable clinical information from structured and unstructured data contained in different electronic patient files;
2) to FAIRify (i.e. making data Findable, Accessible, Interoperable, and Re-usable) the established databases for clinicians, researchers, health policymakers and citizens while respecting the European and national legislations;
3) to pilot the exploitation of the established databases in two relevant use cases: i) assessment of ED propensity to hospitalise a patient, and ii) development of a dashboard to be used by citizens and policymakers to improve the quality of care in ED.

Coordinator

ISTITUTO DI RICERCHE FARMACOLOGICHE MARIO NEGRI
Net EU contribution
€ 2 221 937,00
Address
Via Mario Negri 2
20156 Milano
Italy

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Region
Nord-Ovest Lombardia Milano
Activity type
Research Organisations
Non-EU contribution
€ 0,50

Participants (8)

OROBIX LIFE SRL
Italy
Net EU contribution
€ 374 375,00
Address
Via Gabriele Camozzi 144
24121 Bergamo Bg

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Region
Nord-Ovest Lombardia Bergamo
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
Non-EU contribution
€ 0,00
FONDAZIONE BRUNO KESSLER
Italy
Net EU contribution
€ 1 411 250,00
Address
Via Santa Croce 77
38122 Trento

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Region
Nord-Est Provincia Autonoma di Trento Trento
Activity type
Research Organisations
Non-EU contribution
€ 0,00
DIOIKHSH YGEIONOMIKHS PERIFEREIAS KRHTHS
Greece
Net EU contribution
€ 455 250,00
Address
3rd Km National Road Heraklion Moires
71500 Heraklion

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Region
Ηράκλειο Κρήτη Νησιά Αιγαίου
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
Non-EU contribution
€ 0,00
ASTIR SRL
Italy
Net EU contribution
€ 1 231 937,00
Address
Via Giovanni Battista Pirelli 30
20124 Milano

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SME

The organization defined itself as SME (small and medium-sized enterprise) at the time the Grant Agreement was signed.

Yes
Region
Nord-Ovest Lombardia Milano
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
Non-EU contribution
€ 0,50
ECRIN EUROPEAN CLINICAL RESEARCH INFRASTRUCTURE NETWORK
France
Net EU contribution
€ 275 000,00
Address
5 Rue Watt
75013 Paris

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Region
Ile-de-France Ile-de-France Paris
Activity type
Research Organisations
Non-EU contribution
€ 0,00
Univerzitetni klinicni center Maribor
Slovenia
Net EU contribution
€ 546 000,00
Address
Ljubljanska Ulica 5
2000 Maribor

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Region
Slovenija Vzhodna Slovenija Podravska
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
Non-EU contribution
€ 0,00
UNIVERZITA PAVLA JOZEFA SAFARIKA V KOSICIACH
Slovakia
Net EU contribution
€ 394 625,00
Address
Srobarova 2
04180 Kosice

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Region
Slovensko Východné Slovensko Košický kraj
Activity type
Higher or Secondary Education Establishments
Non-EU contribution
€ 0,00
UNIWERSYTET JAGIELLONSKI
Poland
Net EU contribution
€ 383 875,00
Address
Ul. Golebia 24
31-007 Krakow

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Region
Makroregion południowy Małopolskie Miasto Kraków
Activity type
Higher or Secondary Education Establishments
Non-EU contribution
€ 0,00