CORDIS provides links to public deliverables and publications of HORIZON projects.
Links to deliverables and publications from FP7 projects, as well as links to some specific result types such as dataset and software, are dynamically retrieved from OpenAIRE .
Deliverables
The Data Management Plan (DMP) will be a living document and evolve during the lifetime of the project in order to describe the data management life cycle for the data that is currently available (retrospective data) and the data to be collected (prospective data), processed and/or generated by IDERHA project and how to provide FAIRfication for research data. It will also cover data flows within consortia, GDPR, data privacy and security and long-term sustainability.
Consensus policy recommendations for data sharing, access and use governance policies (opens in new window)A report detailing consensus policy recommendations to create clarity on responsible data governance to enable more streamlined multi-stakeholder partnerships for health research. The recommendations will include approaches to address patient privacy, legal, ethical, regulatory and institutional concerns for accessing, sharing and using heterogeneous health data
Data and analysis platform architecture (incl. different data sources and data types support) (1) (opens in new window)Report on the architecture principles, blueprint, governance, standardization, and interfaces that will guide the implementation, adoption, and integration. Describes the architecture for the different platforms and their interconnection in area of care and research
Report on Global Regulatory Best Practices Analysis (opens in new window)Inventory and analysis of current assessment approaches and policies of evidence generated from heterogeneous health data to identify 1) potential best practices for broader adoption, and 2) current gaps in policies for criteria for regulatory, HTA and payer acceptance of evidence generated using heterogeneous health care data.
Analysis of current and emerging policies for data access/sharing, research use and transparency requirements (opens in new window)Inventory and comparative analysis of policy and legislative enablers, disablers and gaps impacting on the scale up of health data access for evidence generation. This will consider EU level instruments, selected national and health care center examples, and consider impacts from the perspective of different data stakeholders.
Website, newsletters, social media channels, video, animation, infographic, webinars, press releases, visual identity, template for Word and PowerPoint, style guide etc.
Publications
Author(s):
Holger Fröhlich, Anne Funck Hansen, Mika Hilvo, Gunther Jansen, Sumit Madan, Sobhan Moazemi, Sanziana Negreanu, Venkata Satagopam, Phil Gribbon, Christian Muehlendyck
Published in:
Journal of Medical Internet Research, 2025, ISSN 1438-8871
Publisher:
JMIR Publications Inc.
DOI:
10.2196/76491
Author(s):
Hussein, Rada; Balaur, Irina; Burmann, Anja; Ćwiek-Kupczyńska, Hanna; Gadiya, Yojana; Ghosh, Soumyabrata; Jayathissa, Prabath; Katsch, Florian; Kremer, Andreas; Lähteenmäki, Jaakko; Meng, Zhaoling; Morasek, Kathrin; C. Rancourt, Rebecca; Satagopam, Venkata; Sauermann, Stefan; Scheider, Simon; Stamm, Tanja; Muehlendyck, Christian; Gribbon, Philip
Published in:
Open Research Europe, 2024, ISSN 2732-5121
Publisher:
European Commission
DOI:
10.12688/OPENRESEUROPE.18179.1
Author(s):
Rada Hussein, Amelie Gyrard, Somayeh Abedian, Philip Gribbon, Sara Alabart Martínez
Published in:
Journal of Medical Internet Research, Issue 27, 2025, ISSN 1438-8871
Publisher:
JMIR Publications Inc.
DOI:
10.2196/69813
Author(s):
Madan, Sumit; Lentzen, Manuel; Brandt, Johannes; Rueckert, Daniel; Hofmann-Apitius, Martin; Fröhlich, Holger
Published in:
BMC Medical Informatics and Decision Making, 2024, ISSN 1472-6947
Publisher:
Springer
DOI:
10.1186/S12911-024-02600-5
Author(s):
Amelie Gyrard, Somayeh Abedian, Philip Gribbon, George Manias, Rick van Nuland, Kurt Zatloukal, Irina Emilia Nicolae, Gabriel Danciu, Septimiu Nechifor, Luis Marti-Bonmati, Pedro Mallol, Stefano Dalmiani, Serge Autexier, Mario Jendrossek, Ioannis Avramidis, Eva Garcia Alvarez, Petr Holub, Ignacio Blanquer, Anna Boden, Rada Hussein
Published in:
Journal of Medical Internet Research, Issue 27, 2025, ISSN 1438-8871
Publisher:
JMIR Publications Inc.
DOI:
10.2196/66273
Author(s):
Sumit Madan, Manuel Lentzen, Johannes Brandt, Daniel Rueckert, Martin Hofmann-Apitius, Holger Fröhlich
Published in:
BMC Medical Informatics and Decision Making, Issue 24, 2024, ISSN 1472-6947
Publisher:
Springer Science and Business Media LLC
DOI:
10.1186/S12911-024-02600-5
Author(s):
Simon Scheider; Mostafa Kamal Mallick
Published in:
JMIR Formative Research, 2025
Publisher:
JMIR Publications
DOI:
10.2196/63396
Author(s):
Geller, Dominik
Published in:
2025
Publisher:
Zenodo
DOI:
10.5281/ZENODO.17061411
Author(s):
Amelie Gyrard, Somayeh Abedian, Philip Gribbon, Stefano Dalmiani, Maria Giuffrida, George Manias, Serge Autexier, Rada Hussein
Published in:
Studies in Health Technology and Informatics, Intelligent Health Systems – From Technology to Data and Knowledge, 2025
Publisher:
IOS Press
DOI:
10.3233/SHTI250562
Author(s):
Amelie Gyrard, Philip Gribbon, Rada Hussein, Somayeh Abedian, Luis Marti Bonmati, Gibi Luisa Cabornero, George Manias, Gabriel Danciu, Stefano Dalmiani, Serge Autexier, Rick van Nuland, Mario Jendrossek, Ioannis Avramidis, Eva Garcia Alvarez
Published in:
Studies in Health Technology and Informatics, Digital Health and Informatics Innovations for Sustainable Health Care Systems, 2024
Publisher:
IOS Press
DOI:
10.3233/SHTI240649
Author(s):
Löwik, Judy
Published in:
2024
Publisher:
Zenodo
DOI:
10.5281/zenodo.10588707
Searching for OpenAIRE data...
There was an error trying to search data from OpenAIRE
No results available