CORDIS proporciona enlaces a los documentos públicos y las publicaciones de los proyectos de los programas marco HORIZONTE.
Los enlaces a los documentos y las publicaciones de los proyectos del Séptimo Programa Marco, así como los enlaces a algunos tipos de resultados específicos, como conjuntos de datos y «software», se obtienen dinámicamente de OpenAIRE .
Resultado final
The Data Management Plan (DMP) will be a living document and evolve during the lifetime of the project in order to describe the data management life cycle for the data that is currently available (retrospective data) and the data to be collected (prospective data), processed and/or generated by IDERHA project and how to provide FAIRfication for research data. It will also cover data flows within consortia, GDPR, data privacy and security and long-term sustainability.
Consensus policy recommendations for data sharing, access and use governance policies (se abrirá en una nueva ventana)A report detailing consensus policy recommendations to create clarity on responsible data governance to enable more streamlined multi-stakeholder partnerships for health research. The recommendations will include approaches to address patient privacy, legal, ethical, regulatory and institutional concerns for accessing, sharing and using heterogeneous health data
Data and analysis platform architecture (incl. different data sources and data types support) (1) (se abrirá en una nueva ventana)Report on the architecture principles, blueprint, governance, standardization, and interfaces that will guide the implementation, adoption, and integration. Describes the architecture for the different platforms and their interconnection in area of care and research
Report on Global Regulatory Best Practices Analysis (se abrirá en una nueva ventana)Inventory and analysis of current assessment approaches and policies of evidence generated from heterogeneous health data to identify 1) potential best practices for broader adoption, and 2) current gaps in policies for criteria for regulatory, HTA and payer acceptance of evidence generated using heterogeneous health care data.
Analysis of current and emerging policies for data access/sharing, research use and transparency requirements (se abrirá en una nueva ventana)Inventory and comparative analysis of policy and legislative enablers, disablers and gaps impacting on the scale up of health data access for evidence generation. This will consider EU level instruments, selected national and health care center examples, and consider impacts from the perspective of different data stakeholders.
Website, newsletters, social media channels, video, animation, infographic, webinars, press releases, visual identity, template for Word and PowerPoint, style guide etc.
Publicaciones
Autores:
Holger Fröhlich, Anne Funck Hansen, Mika Hilvo, Gunther Jansen, Sumit Madan, Sobhan Moazemi, Sanziana Negreanu, Venkata Satagopam, Phil Gribbon, Christian Muehlendyck
Publicado en:
Journal of Medical Internet Research, 2025, ISSN 1438-8871
Editor:
JMIR Publications Inc.
DOI:
10.2196/76491
Autores:
Hussein, Rada; Balaur, Irina; Burmann, Anja; Ćwiek-Kupczyńska, Hanna; Gadiya, Yojana; Ghosh, Soumyabrata; Jayathissa, Prabath; Katsch, Florian; Kremer, Andreas; Lähteenmäki, Jaakko; Meng, Zhaoling; Morasek, Kathrin; C. Rancourt, Rebecca; Satagopam, Venkata; Sauermann, Stefan; Scheider, Simon; Stamm, Tanja; Muehlendyck, Christian; Gribbon, Philip
Publicado en:
Open Research Europe, 2024, ISSN 2732-5121
Editor:
European Commission
DOI:
10.12688/OPENRESEUROPE.18179.1
Autores:
Madan, Sumit; Lentzen, Manuel; Brandt, Johannes; Rueckert, Daniel; Hofmann-Apitius, Martin; Fröhlich, Holger
Publicado en:
BMC Medical Informatics and Decision Making, 2024, ISSN 1472-6947
Editor:
Springer
DOI:
10.1186/S12911-024-02600-5
Autores:
Geller, Dominik
Publicado en:
2025
Editor:
Zenodo
DOI:
10.5281/ZENODO.17061411
Autores:
Löwik, Judy
Publicado en:
2024
Editor:
Zenodo
DOI:
10.5281/zenodo.10588707
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