Description du projet
Planification des soins avancés pour les patients souffrant de BPCO
La bronchopneumopathie chronique obstructive (BPCO) constitue un défi sanitaire mondial de taille, elle est en effet la troisième cause de décès dans le monde. En dépit de la gravité de la maladie, les soins palliatifs et l’accompagnement en fin de vie des patients atteints de BPCO font souvent défaut en Europe. Dans cette optique, le projet EU PAL-COPD, financé par l’UE, propose l’intervention ICLEAR-EU, conçue pour intégrer de manière homogène les soins palliatifs au traitement de la BPCO au sein de divers systèmes de soins de santé. En mettant l’accent sur la prise de décision partagée et la planification de soins avancés, le projet entend améliorer la gestion des symptômes et réduire les taux de ré-hospitalisation. Par le biais d’un essai international à grande échelle qui implique 18 hôpitaux dans six pays, EU PAL-COPD entend révolutionner les soins de la BPCO, en privilégiant le bien-être du patient et de sa famille.
Objectif
Chronic Obstructive Pulmonary Disease (COPD) is a devastating life-limiting lung disease with a high personal and societal burden. Worldwide, COPD is the third leading cause of death. The symptom burden of people with COPD is as severe and burdensome as the symptom burden of people with lung COPD. While palliative care in many countries is available for people with lung COPD, palliative care and good end-of-life care for people with COPD are not well integrated into their treatment by respiratory hospital teams in Europe.
The EU PAL-COPD project is a multidisciplinary, interprofessional, international and intersectoral project aiming at evaluating the clinical and cost-effectiveness of the ICLEAR-EU intervention for people with advanced COPD in different healthcare systems in Europe.
ICLEAR-EU is a person-centred and family-centred non-pharmacological service intervention in which respiratory teams in the hospital collaborate with interdisciplinary palliative care teams and with primary care to promote shared decision-making and advance care planning, improve symptom treatment and comfort care, and prevent re-hospitalization after an exacerbation. ICLEAR-EU is based on an existing intervention developed and pilot tested in the UK.
In EU PAL-COPD, the effectiveness of ICLEAR-EU will be assessed with a stepped wedge cluster RCT in 1,224 people with advanced COPD in 18 hospitals across six European countries. It is hence the first large-scale international trial on systematic integration of palliative care in respiratory care for people with advanced COPD. Cost-effectiveness, robust mixed methods subgroup analyses and in-depth process and implementation evaluations are also included.
EU PAL-COPD will improve the well-being and empowerment of people with COPD and their families and advance the state of the art by providing an innovative service model to the complex palliative and end-of-life care needs. User and stakeholder involvement is crucial throughout the project.
Mots‑clés
Programme(s)
Appel à propositions
(s’ouvre dans une nouvelle fenêtre) HORIZON-HLTH-2023-DISEASE-03
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HORIZON-RIA - HORIZON Research and Innovation ActionsCoordinateur
1050 Bruxelles / Brussel
Belgique