INTEGRATING A PALLIATIVE CARE APPROACH FOR PATIENTS WITH HEART FAILURE

Project Information

RAPHAEL

Grant agreement ID: 101137170

DOI

10.3030/101137170

EC signature date 14 December 2023

Start date 1 January 2024

End date 31 December 2028

Funded under

• Health

Total cost

€ 6 231 127,50

EU contribution

€ 6 207 365,00

Coordinated by

UNIVERSITAIR MEDISCH CENTRUM UTRECHT
Netherlands

CORDIS provides links to public deliverables and publications of HORIZON projects.

Links to deliverables and publications from FP7 projects, as well as links to some specific result types such as dataset and software, are dynamically retrieved from OpenAIRE .

Deliverables

Documents, reports (6)

Review and Survey Results

Insight into guidelines for the management of HF patients with PC needs across Europe and how they are translated into daily clinical practice.

RAPHAEL DECP

First draft of the DECP, updated for mid-term and final review, including AFTER-RAPHAEL plan

Validated qualitative interview & results

Insights into the social, financial, and existential needs of patients and caregivers and a validated qualitative interview to obtain these insights.

Scoping review

Scoping review of ethical and cultural issues related to patients with HF and care provision

Review Results

Insight into the multidimensional needs of patients and caregivers

Project Handbook

Project handbook, incl. templates, procedures,meetings and planning

Websites, patent fillings, videos etc. (2)

RAPHAEL website and social media

Public facing website and social media accounts to disseminate project results and key messages

Communication Toolkit

Toolkit for project communication, logos and an identity plan. Updated throughout the project.

Publications

Peer reviewed articles (4)

Mapping of Current Practices of Palliative Care for Patients with Heart Failure Throughout Europe: A Scoping Review

Author(s): Tania Pastrana, Matthew Grant, Paula Hidalgo Andrade, Daniele Marelli, Klaus Witte, Geert-Jan Geersing, Carla Ripamonti, Roman Rolke, Marco Metra, Matteo Pagnesi, Everlien De Graaf, Cosimo Chelazzi, null null
Published in: ESC Heart Failure, Issue 12, 2026, ISSN 2055-5822
Publisher: Oxford University Press (OUP)
DOI: 10.1002/EHF2.15431

The current state of palliative care research in heart failure

Author(s): Charlotte Gross, Ankit Gupta, Ruth Burgess, Lucy Ziegler, Everlien De Graaf, Tiny Jaarsma, Klaus K Witte, Sam Straw
Published in: ESC Heart Failure, Issue 13, 2026, ISSN 2055-5822
Publisher: Oxford University Press (OUP)
DOI: 10.1093/ESCHF/XVAG067

Remote Monitoring Instruments in Palliative Care for People With Heart Failure: A Scoping Review

Author(s): Jeanine C.B. De Leeuw, Yvonne M.J. Goërtz, Malin K. Wallin, Tiny Jaarsma, Maria Friedrichsen, Pier Jaarsma, Anna Strömberg, Donata Kurpas, Dorota Stefanicka-Wojtas, Geert-Jan Geersing, Everlien de Graaf, Hans-Peter Brunner-La Rocca, Daisy J.A. Janssen, Thomas Grice-Jackson
Published in: Journal of Pain and Symptom Management, Issue 71, 2026, ISSN 0885-3924
Publisher: Elsevier BV
DOI: 10.1016/J.JPAINSYMMAN.2026.02.016

The multidimensional needs of chronic heart failure patients and caregivers from a dyadic perspective: a scoping review

Author(s): Cosimo Chelazzi, Daniele Marelli, Carla Ida Ripamonti, Matteo Pagnesi, Marco Metra, Philip Larkin, Geert-Jan Geersing, Carlo Leget, Klaus K. Witte, Everlien de Graaf
Published in: Heart Failure Reviews, Issue 31, 2026, ISSN 1573-7322
Publisher: Springer Science and Business Media LLC
DOI: 10.1007/S10741-026-10616-4