INTEGRATING A PALLIATIVE CARE APPROACH FOR PATIENTS WITH HEART FAILURE

Informazioni relative al progetto

RAPHAEL

ID dell’accordo di sovvenzione: 101137170

DOI

10.3030/101137170

Data della firma CE 14 Dicembre 2023

Data di avvio 1 Gennaio 2024

Data di completamento 31 Dicembre 2028

Finanziato da

• Health

Costo totale

€ 6 231 127,50

Contributo UE

€ 6 207 365,00

Coordinato da

UNIVERSITAIR MEDISCH CENTRUM UTRECHT
Netherlands

CORDIS fornisce collegamenti ai risultati finali pubblici e alle pubblicazioni dei progetti ORIZZONTE.

I link ai risultati e alle pubblicazioni dei progetti del 7° PQ, così come i link ad alcuni tipi di risultati specifici come dataset e software, sono recuperati dinamicamente da .OpenAIRE .

Risultati finali

Documents, reports (6)

Review and Survey Results

Insight into guidelines for the management of HF patients with PC needs across Europe and how they are translated into daily clinical practice.

RAPHAEL DECP

First draft of the DECP, updated for mid-term and final review, including AFTER-RAPHAEL plan

Validated qualitative interview & results

Insights into the social, financial, and existential needs of patients and caregivers and a validated qualitative interview to obtain these insights.

Scoping review

Scoping review of ethical and cultural issues related to patients with HF and care provision

Review Results

Insight into the multidimensional needs of patients and caregivers

Project Handbook

Project handbook, incl. templates, procedures,meetings and planning

Websites, patent fillings, videos etc. (2)

RAPHAEL website and social media

Public facing website and social media accounts to disseminate project results and key messages

Communication Toolkit

Toolkit for project communication, logos and an identity plan. Updated throughout the project.

Pubblicazioni

Peer reviewed articles (4)

Mapping of Current Practices of Palliative Care for Patients with Heart Failure Throughout Europe: A Scoping Review

Autori: Tania Pastrana, Matthew Grant, Paula Hidalgo Andrade, Daniele Marelli, Klaus Witte, Geert-Jan Geersing, Carla Ripamonti, Roman Rolke, Marco Metra, Matteo Pagnesi, Everlien De Graaf, Cosimo Chelazzi, null null
Pubblicato in: ESC Heart Failure, Numero 12, 2026, ISSN 2055-5822
Editore: Oxford University Press (OUP)
DOI: 10.1002/EHF2.15431

The current state of palliative care research in heart failure

Autori: Charlotte Gross, Ankit Gupta, Ruth Burgess, Lucy Ziegler, Everlien De Graaf, Tiny Jaarsma, Klaus K Witte, Sam Straw
Pubblicato in: ESC Heart Failure, Numero 13, 2026, ISSN 2055-5822
Editore: Oxford University Press (OUP)
DOI: 10.1093/ESCHF/XVAG067

Remote Monitoring Instruments in Palliative Care for People With Heart Failure: A Scoping Review

Autori: Jeanine C.B. De Leeuw, Yvonne M.J. Goërtz, Malin K. Wallin, Tiny Jaarsma, Maria Friedrichsen, Pier Jaarsma, Anna Strömberg, Donata Kurpas, Dorota Stefanicka-Wojtas, Geert-Jan Geersing, Everlien de Graaf, Hans-Peter Brunner-La Rocca, Daisy J.A. Janssen, Thomas Grice-Jackson
Pubblicato in: Journal of Pain and Symptom Management, Numero 71, 2026, ISSN 0885-3924
Editore: Elsevier BV
DOI: 10.1016/J.JPAINSYMMAN.2026.02.016

The multidimensional needs of chronic heart failure patients and caregivers from a dyadic perspective: a scoping review

Autori: Cosimo Chelazzi, Daniele Marelli, Carla Ida Ripamonti, Matteo Pagnesi, Marco Metra, Philip Larkin, Geert-Jan Geersing, Carlo Leget, Klaus K. Witte, Everlien de Graaf
Pubblicato in: Heart Failure Reviews, Numero 31, 2026, ISSN 1573-7322
Editore: Springer Science and Business Media LLC
DOI: 10.1007/S10741-026-10616-4