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PUBLIC ENGAGEMENT IN RESEARCH INFRASTRUCTURES FOR MISSION CANCER: MANAGING COMPLEXITY OF EMERGING TECHNOLOGIES

Project description

Advancing cancer research through inclusive biobanking

Enhancing stakeholder engagement in cancer research is vital for improving the relevance, impact, ethics, and equity of outcomes. The EU-funded PERIFORMANCE project will advance local action under the Mission: Cancer initiative, using federated biobanking as a key platform for transdisciplinary research and innovation across Europe. By adopting a quadruple helix model that includes patients, healthcare professionals, industry partners, and policymakers, the project goes beyond standard Patient/Public Involvement (PPI) practices. Focusing on the role of artificial intelligence (AI) and the European Health Data Space (EHDS) in biobanking, the project aligns with promoting systemic solutions amid sociotechnical transformations. Its emphasis on ethical and societal dimensions aims to build public trust in technological advancements.

Objective

Enhancing stakeholder engagement in cancer research is essential for advancing the relevance, impact, ethicality, and equity of research outcomes. Engaging patients, caregivers, clinicians, researchers, and community representatives in the research process enables synergistic optimisation of potential impact. The PERIFORMANCE project focuses on promoting local action for Mission: Cancer and aims to leverage the federated biobanking domain as focal points for transdisciplinary research and innovation activities with European outreach. Biobanks, particularly those using population cohorts dedicated to cancer research, set the sampling frame to explore best practices and identify needs in the context of stakeholder engagement. PERIFORMANCE goes beyond the standard patient/public involvement (PPI) practices and adopts a quadruple helix perspective on stakeholders, which includes patients and donors, research and healthcare professionals, industry partners, and policymakers. By addressing the use of AI and EHDS in biobanking within cancer research, the project aligns with the call’s objectives to foster systemic solutions at a time of major sociotechnical transformations. Its emphasis on ethical, legal, and societal dimensions resonates with the call’s focus on ensuring that technological advancements contribute positively to public trust and societal well-being. PERIFORMANCE prioritises broad dissemination and training, ensuring its outcomes are widely accessible and scalable. Its approach supports the call’s goal of achieving broad, lasting impact across Europe, reinforced by an open call for bottom-up engagement exercises in diverse contexts, considering local or regional needs. PERIFORMANCE will contribute to the EU’s Mission: Cancer by fostering informed participation among stakeholders, enhancing the ethical use of new technologies and boosting the relevance and equity in public policy and research outcomes.

Fields of science (EuroSciVoc)

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Keywords

Project’s keywords as indicated by the project coordinator. Not to be confused with the EuroSciVoc taxonomy (Fields of science)

Programme(s)

Multi-annual funding programmes that define the EU’s priorities for research and innovation.

Topic(s)

Calls for proposals are divided into topics. A topic defines a specific subject or area for which applicants can submit proposals. The description of a topic comprises its specific scope and the expected impact of the funded project.

Funding Scheme

Funding scheme (or “Type of Action”) inside a programme with common features. It specifies: the scope of what is funded; the reimbursement rate; specific evaluation criteria to qualify for funding; and the use of simplified forms of costs like lump sums.

HORIZON-RIA - HORIZON Research and Innovation Actions

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Call for proposal

Procedure for inviting applicants to submit project proposals, with the aim of receiving EU funding.

(opens in new window) HORIZON-MISS-2024-CROSS-02

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Coordinator

BIOBANKS AND BIOMOLECULAR RESOURCES RESEARCH INFRASTRUCTURE CONSORTIUM (BBMRI-ERIC)
Net EU contribution

Net EU financial contribution. The sum of money that the participant receives, deducted by the EU contribution to its linked third party. It considers the distribution of the EU financial contribution between direct beneficiaries of the project and other types of participants, like third-party participants.

€ 856 250,00
Address
NEUE STIFTINGTALSTRASSE 2/B/6
8010 GRAZ
Austria

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Region
Südösterreich Steiermark Graz
Activity type
Research Organisations
Links
Total cost

The total costs incurred by this organisation to participate in the project, including direct and indirect costs. This amount is a subset of the overall project budget.

€ 856 250,00

Participants (12)

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