Objective This project aims at creating a set of tools intended to facilitate collaborations between academic teams, SMEs and even major companies, in the field of rare diseases (RD). These tools will contribute to building up a community of stakeholders with the ultimate goal of speeding up RD research and development, providing diagnostic tools and therapies as quickly as possible. The specific objectives are to: - identify expert groups in Europe, on-going funded research projects, technological platforms, databases and biobanks relevant to RD research and to release the information in a user-friendly manner on the existing Orphanet website. - identify, among research projects funded at the MS level and at the EU level, those which are in need of partnership with other academic teams and/or which have a potential for market development and may benefit from a partnership with Industry. - release the information on partnership opportunities on the existing OrphanXchange website and adapt the website to meet the needs of all the types of partnerships identified so far. - develop partner search facilities based on the above mentioned databases and on an ad-hoc basis. - develop an electronic newsletter informing the community about newly posted partnership requests and business opportunities. - organise two workshops with top experts to analyse areas in need of collaborative research projects. The new facilities will be developed from three existing RD websites previously funded through EC grants: - www.orphanplatform.org serving as a management tool and a follow-up tool between partners. - www.orphanXchange.org serving as a tool to facilitate partnership between academic researchers, Industry, and private companies - www.orpha.net providing information on on-going research activities in Europe. This project is based on input from four EU projects: Orphanet, OrphanPlatform, E-Rare (www.erare.eu) and the RD Task Force (www.rdtf.org). Fields of science natural sciencescomputer and information sciencesdatabases Keywords genetic diseases knowledge database networking orphan drugs platform rare diseases translational research Programme(s) FP7-HEALTH - Specific Programme "Cooperation": Health Topic(s) HEALTH-2007-2.4.4-2 - Research capacity-building in the field of rare diseases Call for proposal FP7-HEALTH-2007-A See other projects for this call Funding Scheme CSA-SA - Support actions Coordinator INSTITUT NATIONAL DE LA SANTE ET DE LA RECHERCHE MEDICALE Address Rue de tolbiac 101 75654 Paris France See on map Region Ile-de-France Ile-de-France Paris Activity type Research Organisations Administrative Contact Ségolène Aymé (Dr.) Links Contact the organisation Opens in new window Website Opens in new window EU contribution € 402 901,00 Participants (12) Sort alphabetically Sort by EU Contribution Expand all Collapse all KATHOLIEKE UNIVERSITEIT LEUVEN Belgium EU contribution € 48 150,00 Address Oude markt 13 3000 Leuven See on map Region Vlaams Gewest Prov. Vlaams-Brabant Arr. Leuven Activity type Higher or Secondary Education Establishments Administrative Contact Maria Vereeken (Ms.) Links Contact the organisation Opens in new window Website Opens in new window FONDAZIONE CASA SOLLIEVO DELLA SOFFERENZA Italy EU contribution € 42 933,00 Address Viale cappuccini sc 71013 San giovanni rotondo fg See on map Region Sud Puglia Foggia Activity type Research Organisations Administrative Contact Giovanni Piano (Mr.) Links Contact the organisation Opens in new window Website Opens in new window AGENCIA ESTATAL CONSEJO SUPERIOR DE INVESTIGACIONES CIENTIFICAS Spain EU contribution € 48 150,00 Address Calle serrano 117 28006 Madrid See on map Region Comunidad de Madrid Comunidad de Madrid Madrid Activity type Research Organisations Administrative Contact Mar Garcia Ferrer (Ms.) Links Contact the organisation Opens in new window Website Opens in new window THE UNIVERSITY OF MANCHESTER United Kingdom EU contribution € 99 000,00 Address Oxford road M13 9PL Manchester See on map Region North West (England) Greater Manchester Manchester Activity type Higher or Secondary Education Establishments Administrative Contact Liz Fay (Ms.) Links Contact the organisation Opens in new window Website Opens in new window MEDIZINISCHE HOCHSCHULE HANNOVER Germany EU contribution € 96 300,00 Address Carl-neuberg-strasse 1 30625 Hannover See on map Region Niedersachsen Hannover Region Hannover Activity type Higher or Secondary Education Establishments Administrative Contact Joerg Schmidtke (Prof.) Links Contact the organisation Opens in new window Website Opens in new window MEDIZINISCHE UNIVERSITAET WIEN Austria EU contribution € 36 113,00 Address Spitalgasse 23 1090 Wien See on map Region Ostösterreich Wien Wien Activity type Higher or Secondary Education Establishments Administrative Contact Herbert Budka (Prof.) Links Contact the organisation Opens in new window Website Opens in new window EESTI BIOKESKUS Estonia EU contribution € 24 775,00 Address Riia 23b 51010 Tartu See on map Activity type Research Organisations Administrative Contact Andres Metspalu (Prof.) Links Contact the organisation Opens in new window Website Opens in new window UNIVERZITA KARLOVA Czechia EU contribution € 20 063,00 Address Ovocny trh 560/5 116 36 Praha 1 See on map Region Česko Praha Hlavní město Praha Activity type Higher or Secondary Education Establishments Administrative Contact Milan Macek (Prof.) Links Contact the organisation Opens in new window Website Opens in new window VAESTOLIITTO RY Finland EU contribution € 32 100,00 Address Kalevankatu 16 00100 Helsinki See on map Region Manner-Suomi Helsinki-Uusimaa Helsinki-Uusimaa Activity type Research Organisations Administrative Contact Riitta Salonen (Dr.) Links Contact the organisation Opens in new window Website Opens in new window INSTYTUT POMNIK CENTRUM ZDROWIA DZIECKA Poland EU contribution € 26 471,00 Address Aleja dzieci polskich 20 04730 Warszawa See on map Region Makroregion województwo mazowieckie Warszawski stołeczny Miasto Warszawa Activity type Research Organisations Administrative Contact Ewa Pronicka (Prof.) Links Contact the organisation Opens in new window Website Opens in new window ACADEMISCH ZIEKENHUIS LEIDEN Netherlands EU contribution € 48 150,00 Address Albinusdreef 2 2333 ZA Leiden See on map Region West-Nederland Zuid-Holland Agglomeratie Leiden en Bollenstreek Activity type Higher or Secondary Education Establishments Administrative Contact Linda Ouwerkerk (Ms.) Links Contact the organisation Opens in new window Website Opens in new window KAROLINSKA INSTITUTET Sweden EU contribution € 32 100,00 Address Nobels vag 5 17177 Stockholm See on map Region Östra Sverige Stockholm Stockholms län Activity type Higher or Secondary Education Establishments Administrative Contact Thomas Walstam (Mr.) Links Contact the organisation Opens in new window Website Opens in new window
