Objective
PRIVILEGED (Privacy in Law, Ethics and Genetic Data) will make recommendations for research practice and public policy-making, including regulatory options at the national and European level, to promote the optimal relation between research using genetic data and bio-banks and ethical interests in privacy. PRIVILEGED will identify, analyse and compare plural ethical, cultural, and social concepts of legitimate privacy interest engaged by research using genetic databases and bio-banks. It will articulate the relation between such concepts and the current regulation of research using genetic data and bio-banks.
Describing areas of common understanding while also showing points of difference throughout the EU, EEA, NAS, Israel, Japan and Taiwan (the research area), PRIVILEGED will provide a comprehensive and systematic study of the inter-relationship between privacy interests and advances in genetic science and information technology within a diverse cultural and regulatory context. Assessment will be made of both the coherence and adequacy of existing regulation, in particular data protection, for the protection and promotion of both individual and group interests in privacy.
PRIVILEGED will bring together experts in medicine, public health, philosophy, ethics, science and law from across the whole research area. A series of workshops, web-resources, national and comparative papers will be co-ordinated through three centres (Lithuania, Portugal and the UK) to address points of both potential conflict and synergy within and between the interests of science and privacy, individual and groups, and diverse cultures and fundamental ethical principles.
Fields of science (EuroSciVoc)
CORDIS classifies projects with EuroSciVoc, a multilingual taxonomy of fields of science, through a semi-automatic process based on NLP techniques. See: The European Science Vocabulary.
CORDIS classifies projects with EuroSciVoc, a multilingual taxonomy of fields of science, through a semi-automatic process based on NLP techniques. See: The European Science Vocabulary.
- medical and health sciences health sciences public health
- natural sciences computer and information sciences databases
- natural sciences computer and information sciences computer security data protection
- humanities philosophy, ethics and religion ethics ethical principles
- social sciences law
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Keywords
Project’s keywords as indicated by the project coordinator. Not to be confused with the EuroSciVoc taxonomy (Fields of science)
Project’s keywords as indicated by the project coordinator. Not to be confused with the EuroSciVoc taxonomy (Fields of science)
Programme(s)
Multi-annual funding programmes that define the EU’s priorities for research and innovation.
Multi-annual funding programmes that define the EU’s priorities for research and innovation.
Topic(s)
Calls for proposals are divided into topics. A topic defines a specific subject or area for which applicants can submit proposals. The description of a topic comprises its specific scope and the expected impact of the funded project.
Calls for proposals are divided into topics. A topic defines a specific subject or area for which applicants can submit proposals. The description of a topic comprises its specific scope and the expected impact of the funded project.
Call for proposal
Procedure for inviting applicants to submit project proposals, with the aim of receiving EU funding.
Procedure for inviting applicants to submit project proposals, with the aim of receiving EU funding.
FP6-2005-SCIENCE-AND-SOCIETY-14
See other projects for this call
Funding Scheme
Funding scheme (or “Type of Action”) inside a programme with common features. It specifies: the scope of what is funded; the reimbursement rate; specific evaluation criteria to qualify for funding; and the use of simplified forms of costs like lump sums.
Funding scheme (or “Type of Action”) inside a programme with common features. It specifies: the scope of what is funded; the reimbursement rate; specific evaluation criteria to qualify for funding; and the use of simplified forms of costs like lump sums.
Coordinator
SHEFFIELD
United Kingdom
The total costs incurred by this organisation to participate in the project, including direct and indirect costs. This amount is a subset of the overall project budget.