Objectif PRIVILEGED (Privacy in Law, Ethics and Genetic Data) will make recommendations for research practice and public policy-making, including regulatory options at the national and European level, to promote the optimal relation between research using genetic data and bio-banks and ethical interests in privacy. PRIVILEGED will identify, analyse and compare plural ethical, cultural, and social concepts of legitimate privacy interest engaged by research using genetic databases and bio-banks. It will articulate the relation between such concepts and the current regulation of research using genetic data and bio-banks.Describing areas of common understanding while also showing points of difference throughout the EU, EEA, NAS, Israel, Japan and Taiwan (the research area), PRIVILEGED will provide a comprehensive and systematic study of the inter-relationship between privacy interests and advances in genetic science and information technology within a diverse cultural and regulatory context. Assessment will be made of both the coherence and adequacy of existing regulation, in particular data protection, for the protection and promotion of both individual and group interests in privacy.PRIVILEGED will bring together experts in medicine, public health, philosophy, ethics, science and law from across the whole research area. A series of workshops, web-resources, national and comparative papers will be co-ordinated through three centres (Lithuania, Portugal and the UK) to address points of both potential conflict and synergy within and between the interests of science and privacy, individual and groups, and diverse cultures and fundamental ethical principles. Champ scientifique medical and health scienceshealth sciencespublic healthnatural sciencescomputer and information sciencesdatabasesnatural sciencescomputer and information sciencescomputer securitydata protectionhumanitiesphilosophy, ethics and religionethicsethical principlessocial scienceslaw Mots‑clés Biobanking Data Protection Genetic Information Human Rights Privacy Programme(s) FP6-SOCIETY - Science and society: specific programme for research, technological development and demonstration : "Structuring the European Research Area" under the Sixth Framework Programme 2002-2006 Thème(s) SOCIETY-WP2005-4.3.2.1(a) - Ethics conferences and training workshops Appel à propositions FP6-2005-SCIENCE-AND-SOCIETY-14 Voir d’autres projets de cet appel Régime de financement CA - Coordination action Coordinateur UNIVERSITY OF SHEFFIELD Contribution de l’UE Aucune donnée Adresse Firth Court, Western Bank SHEFFIELD Royaume-Uni Voir sur la carte Liens Site web Opens in new window Coût total Aucune donnée Participants (2) Trier par ordre alphabétique Trier par contribution de l’UE Tout développer Tout réduire CENTRO DE DIREITO BIOMEDICO - FACULDADE DE DIREITO DA UNIVERSIDADE DE COIMBRA Portugal Contribution de l’UE Aucune donnée Adresse Patio das Escolas COIMBRA Voir sur la carte Liens Site web Opens in new window Coût total Aucune donnée VILNIAUS UNIVERSITETAS Lituanie Contribution de l’UE Aucune donnée Adresse Universiteto str. 3 VILNIUS Voir sur la carte Liens Site web Opens in new window Coût total Aucune donnée
