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ERA-NET rare disease research implementing IRDiRC objectives

Objective

Rare diseases (RD) are diseases that affect not more than 5 per 10 000 persons (according to the EU definition). 7000 distinct rare diseases exist, affecting between 6% and 8% of the population (about 30 million EU citizens). The lack of specific health policies for rare diseases and the scarcity of the expertise, translate into delayed diagnosis, few medicinal products and difficult access to care. That is why rare diseases are a prime example of a research area that strongly profits from coordination on a European scale. At present only few European countries fund research on rare diseases through specific dedicated programmes. Therefore, the funding of transnational collaborative research is the most effective joint activity to enhance the cooperation between scientists working on rare diseases in Europe and beyond. The E-Rare consortium was built to link responsible funding bodies that combine the scarce resources and fund rare disease research via Joint Transnational Calls (JTCs). The current E-Rare-3 project proposal will extend and strengthen the transnational cooperation by building on the experience and results of the previous E-Rare-1&2 programmes. The consortium comprises 26 institutions from 17 European, Associated and non-European countries. Its international dimension will be directly translated into close collaboration with IRDiRC and other relevant European and international initiatives. IRDiRC guidelines and policies will be implemented in the four JTCs and representatives of the IRDiRC Scientific Committees will be invited to join the Advisory Board of E-Rare-3. Members of the EUCERD group will be involved in identifying rare disease research needs. Patients’ organizations from Europe (represented by EURORDIS) and beyond will be invited as a key partner towards collaborative efforts for research promotion and funding. The collaboration with European Research Infrastructures will be consolidated to enhance efficient and participative research.

Call for proposal

H2020-HCO-2014
See other projects for this call

Funding Scheme

ERA-NET-Cofund - ERA-NET Cofund

Coordinator

AGENCE NATIONALE DE LA RECHERCHE
Address
50 Avenue Daumesnil
75012 Paris
France
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
EU contribution
€ 710 253

Participants (25)

DEUTSCHES ZENTRUM FUR LUFT - UND RAUMFAHRT EV
Germany
EU contribution
€ 59 018
Address
Linder Hohe
51147 Koln
Activity type
Research Organisations
BUNDESMINISTERIUM FUER BILDUNG UND FORSCHUNG
Germany
EU contribution
€ 1 035 870
Address
Heinemannstrasse 2
53175 Bonn
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
INSTITUTO DE SALUD CARLOS III
Spain
EU contribution
€ 221 827
Address
Monforte De Lemos 5
28029 Madrid
Activity type
Research Organisations
FONDS DE LA RECHERCHE SCIENTIFIQUE- FNRS
Belgium
EU contribution
€ 137 166
Address
Rue D'egmont 5
1000 Bruxelles
Activity type
Research Organisations
FONDS VOOR WETENSCHAPPELIJK ONDERZOEK-VLAANDEREN
Belgium
EU contribution
€ 124 142
Address
Egmontstraat 5
1000 Brussel
Activity type
Research Organisations
MINISTRY OF HEALTH
Israel
EU contribution
€ 137 166
Address
Yirmiyahu 39
9101002 Jerusalem
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
ISTITUTO SUPERIORE DI SANITA
Italy
EU contribution
€ 59 018
Address
Viale Regina Elena 299
00161 Roma
Activity type
Research Organisations
MINISTERO DELLA SALUTE
Italy
EU contribution
€ 384 635
Address
Via Giorgio Ribotta 5
00144 Roma
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
REGIONE EMILIA ROMAGNA
Italy
EU contribution
€ 303 231
Address
Via Aldo Moro 52
40127 Bologna
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
ZORGONDERZOEK NEDERLAND ZON
Netherlands
EU contribution
€ 645 129
Address
Laan Van Nieuw Oost Indie 334
2593CE Den Haag
Activity type
Research Organisations
TURKIYE BILIMSEL VE TEKNOLOJIK ARASTIRMA KURUMU
Turkey
EU contribution
€ 384 635
Address
Ataturk Bulvari 221
06100 Ankara
Activity type
Research Organisations
FUNDACAO PARA A CIENCIA E A TECNOLOGIA
Portugal
EU contribution
€ 164 844
Address
Avenida D Carlos I 126
1249 074 Lisboa
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
FONDS ZUR FÖRDERUNG DER WISSENSCHAFTLICHEN FORSCHUNG
Austria
EU contribution
€ 303 231
Address
Sensengasse 1
1090 Wien
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
GENIKI GRAMMATIA EREVNAS KAI KAINOTOMIAS
Greece
EU contribution
€ 150 597
Address
Mesogeion Avenue 14-18
115 10 Athens
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
NEMZETI KUTATASI FEJLESZTESI ES INNOVACIOS HIVATAL
Hungary
EU contribution
€ 107 861
Address
Kethly Anna Ter 1
1077 Budapest
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
Unitatea Executiva pentru Finantarea Invatamantului Superior, a Cercetarii, Dezvoltarii si Inovarii
Romania
EU contribution
€ 221 827
Address
Mendeleev Street 21-25
010362 Bucharest
Activity type
Research Organisations
NARODOWE CENTRUM BADAN I ROZWOJU
Poland
EU contribution
€ 221 827
Address
Ul. Nowogrodzka 47A
00 695 Warszawa
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
LATVIJAS ZINATNU AKADEMIJA

Participation ended

Latvia
EU contribution
€ 0
Address
Akademijas Laukums 1
1050 Riga
Activity type
Research Organisations
DEUTSCHE FORSCHUNGSGEMEINSCHAFT
Germany
EU contribution
€ 384 635
Address
Kennedyallee 40
53175 Bonn
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
CANADIAN INSTITUTES OF HEALTH RESEARCH
Canada
EU contribution
€ 0
Address
Elgin Street 9Th Floor Address Locator 4809A 160
K1T 4H8 Ottawa Ontario
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
FONDS DE RECHERCHE DU QUEBEC - SANTE
Canada
EU contribution
€ 0
Address
Rue Sherbrooke Ouest 500
H3A3C6 Montreal Quebec
Activity type
Other
GENOME CANADA
Canada
EU contribution
€ 0
Address
150 Metcalfe Street Suite 2100
K2P 1P1 Ottawa
Activity type
Other
SCHWEIZERISCHER NATIONALFONDS ZUR FORDERUNG DER WISSENSCHAFTLICHEN FORSCHUNG
Switzerland
EU contribution
€ 0
Address
Wildhainweg 3
3012 Bern
Activity type
Research Organisations
OSTERREICHISCHE FORSCHUNGSFORDERUNGSGESELLSCHAFT MBH
Austria
EU contribution
€ 0
Address
Sensengasse 1
1090 Wien
Activity type
Other
VALSTS IZGLITIBAS ATTISTIBAS AGENTURA
Latvia
EU contribution
€ 127 398
Address
Valnu Iela 1
1050 Riga
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)