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ERA-NET rare disease research implementing IRDiRC objectives

Objective

Rare diseases (RD) are diseases that affect not more than 5 per 10 000 persons (according to the EU definition). 7000 distinct rare diseases exist, affecting between 6% and 8% of the population (about 30 million EU citizens). The lack of specific health policies for rare diseases and the scarcity of the expertise, translate into delayed diagnosis, few medicinal products and difficult access to care. That is why rare diseases are a prime example of a research area that strongly profits from coordination on a European scale. At present only few European countries fund research on rare diseases through specific dedicated programmes. Therefore, the funding of transnational collaborative research is the most effective joint activity to enhance the cooperation between scientists working on rare diseases in Europe and beyond. The E-Rare consortium was built to link responsible funding bodies that combine the scarce resources and fund rare disease research via Joint Transnational Calls (JTCs). The current E-Rare-3 project proposal will extend and strengthen the transnational cooperation by building on the experience and results of the previous E-Rare-1&2 programmes. The consortium comprises 26 institutions from 17 European, Associated and non-European countries. Its international dimension will be directly translated into close collaboration with IRDiRC and other relevant European and international initiatives. IRDiRC guidelines and policies will be implemented in the four JTCs and representatives of the IRDiRC Scientific Committees will be invited to join the Advisory Board of E-Rare-3. Members of the EUCERD group will be involved in identifying rare disease research needs. Patients’ organizations from Europe (represented by EURORDIS) and beyond will be invited as a key partner towards collaborative efforts for research promotion and funding. The collaboration with European Research Infrastructures will be consolidated to enhance efficient and participative research.

Call for proposal

H2020-HCO-2014-2015

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Sub call

H2020-HCO-2014

Coordinator

AGENCE NATIONALE DE LA RECHERCHE
Net EU contribution
€ 710 253,00
Address
50 Avenue Daumesnil
75012 Paris
France

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Region
Ile-de-France Ile-de-France Val-de-Marne
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
Other funding
€ 710 253,00

Participants (25)

DEUTSCHES ZENTRUM FUR LUFT - UND RAUMFAHRT EV
Germany
Net EU contribution
€ 59 018,00
Address
Linder Hohe
51147 Koln

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Region
Nordrhein-Westfalen Köln Köln, Kreisfreie Stadt
Activity type
Research Organisations
Other funding
€ 59 018,00
BUNDESMINISTERIUM FUER BILDUNG UND FORSCHUNG
Germany
Net EU contribution
€ 1 035 870,00
Address
Heinemannstrasse 2
53175 Bonn

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Region
Nordrhein-Westfalen Köln Bonn, Kreisfreie Stadt
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
Other funding
€ 1 035 870,00
INSTITUTO DE SALUD CARLOS III
Spain
Net EU contribution
€ 221 827,00
Address
Monforte De Lemos 5
28029 Madrid

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Region
Comunidad de Madrid Comunidad de Madrid Madrid
Activity type
Research Organisations
Other funding
€ 221 827,00
FONDS DE LA RECHERCHE SCIENTIFIQUE- FNRS
Belgium
Net EU contribution
€ 137 166,00
Address
Rue D'egmont 5
1000 Bruxelles

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Region
Région de Bruxelles-Capitale/Brussels Hoofdstedelijk Gewest Région de Bruxelles-Capitale/ Brussels Hoofdstedelijk Gewest Arr. de Bruxelles-Capitale/Arr. Brussel-Hoofdstad
Activity type
Research Organisations
Other funding
€ 137 166,00
FONDS VOOR WETENSCHAPPELIJK ONDERZOEK-VLAANDEREN
Belgium
Net EU contribution
€ 124 142,00
Address
Egmontstraat 5
1000 Brussel

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Region
Région de Bruxelles-Capitale/Brussels Hoofdstedelijk Gewest Région de Bruxelles-Capitale/ Brussels Hoofdstedelijk Gewest Arr. de Bruxelles-Capitale/Arr. Brussel-Hoofdstad
Activity type
Research Organisations
Other funding
€ 124 142,00
MINISTRY OF HEALTH
Israel
Net EU contribution
€ 137 166,00
Address
Yirmiyahu 39
9101002 Jerusalem

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Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
Other funding
€ 137 166,00
ISTITUTO SUPERIORE DI SANITA
Italy
Net EU contribution
€ 59 018,00
Address
Viale Regina Elena 299
00161 Roma

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Region
Centro (IT) Lazio Roma
Activity type
Research Organisations
Other funding
€ 59 018,00
MINISTERO DELLA SALUTE
Italy
Net EU contribution
€ 384 635,00
Address
Via Giorgio Ribotta 5
00144 Roma

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Region
Centro (IT) Lazio Roma
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
Other funding
€ 384 635,00
REGIONE EMILIA ROMAGNA
Italy
Net EU contribution
€ 303 231,00
Address
Viale Aldo Moro 52
40127 Bologna

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Region
Nord-Est Emilia-Romagna Bologna
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
Other funding
€ 303 231,00
ZORGONDERZOEK NEDERLAND ZON
Netherlands
Net EU contribution
€ 645 129,00
Address
Laan Van Nieuw Oost Indie 334
2593 CE Den Haag

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Region
West-Nederland Zuid-Holland Agglomeratie ’s-Gravenhage
Activity type
Research Organisations
Other funding
€ 645 129,00
TURKIYE BILIMSEL VE TEKNOLOJIK ARASTIRMA KURUMU
Türkiye
Net EU contribution
€ 384 635,00
Address
Ataturk Bulvari 221
06100 Ankara

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Region
Batı Anadolu Ankara Ankara
Activity type
Research Organisations
Other funding
€ 384 635,00
FUNDACAO PARA A CIENCIA E A TECNOLOGIA
Portugal
Net EU contribution
€ 164 844,00
Address
Avenida D Carlos I 126
1249 074 Lisboa

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Region
Continente Área Metropolitana de Lisboa Área Metropolitana de Lisboa
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
Other funding
€ 164 844,00
FONDS ZUR FÖRDERUNG DER WISSENSCHAFTLICHEN FORSCHUNG
Austria
Net EU contribution
€ 303 231,00
Address
Sensengasse 1
1090 Wien

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Region
Wien Wien
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
Other funding
€ 303 231,00
GENIKI GRAMMATIA EREVNAS KAI KAINOTOMIAS
Greece
Net EU contribution
€ 150 597,00
Address
Mesogeion Avenue 14-18
115 10 Athens

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Region
Κεντρικός Τομέας Αθηνών Aττική Αττική
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
Other funding
€ 150 597,00
NEMZETI KUTATASI FEJLESZTESI ES INNOVACIOS HIVATAL
Hungary
Net EU contribution
€ 107 861,00
Address
Kethly Anna Ter 1
1077 Budapest

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Region
Közép-Magyarország Budapest Budapest
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
Other funding
€ 107 861,00
UNITATEA EXECUTIVA PENTRU FINANTAREA INVATAMANTULUI SUPERIOR A CERCETARII DEZVOLTARII SI INOVARII
Romania
Net EU contribution
€ 221 827,00
Address
Str D I Mendeleev 21-25
010362 Bucuresti

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Region
Macroregiunea Trei Bucureşti-Ilfov Bucureşti
Activity type
Research Organisations
Other funding
€ 221 827,00
NARODOWE CENTRUM BADAN I ROZWOJU
Poland
Net EU contribution
€ 221 827,00
Address
Ul. Chmielna 69
00-801 Warszawa

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Region
Makroregion województwo mazowieckie Warszawski stołeczny Miasto Warszawa
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
Other funding
€ 221 827,00
LATVIJAS ZINATNU AKADEMIJA

Participation ended

Latvia
Net EU contribution
€ 0,00
Other funding
€ 0,00
DEUTSCHE FORSCHUNGSGEMEINSCHAFT EV
Germany
Net EU contribution
€ 384 635,00
Address
Kennedyallee 40
53175 Bonn

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Region
Nordrhein-Westfalen Köln Bonn, Kreisfreie Stadt
Activity type
Other
Other funding
€ 384 635,00
CANADIAN INSTITUTES OF HEALTH RESEARCH
Canada
Net EU contribution
€ 0,00
Address
Elgin Street 9th Floor Address Locator 4809a 160
K1T 4H8 Ottawa Ontario

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Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
Other funding
€ 0,00
FONDS DE RECHERCHE DU QUEBEC - SANTE
Canada
Net EU contribution
€ 0,00
Other funding
€ 0,00
GENOME CANADA
Canada
Net EU contribution
€ 0,00
Other funding
€ 0,00
SCHWEIZERISCHER NATIONALFONDS ZUR FORDERUNG DER WISSENSCHAFTLICHEN FORSCHUNG
Switzerland
Net EU contribution
€ 0,00
Address
Wildhainweg 3
3012 Bern

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Region
Schweiz/Suisse/Svizzera Espace Mittelland Bern / Berne
Activity type
Research Organisations
Other funding
€ 0,00
OSTERREICHISCHE FORSCHUNGSFORDERUNGSGESELLSCHAFT MBH
Austria
Net EU contribution
€ 0,00
VALSTS IZGLITIBAS ATTISTIBAS AGENTURA
Latvia
Net EU contribution
€ 127 398,00
Address
Valnu Iela 1
1050 Riga

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Region
Latvija Latvija Rīga
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
Other funding
€ 127 398,00