RECAP preterm: Research on European Children and Adults born Preterm

Resultado final

Project brochure on results at the end of the project

Oneweek winter school for young investigators

Development of a predictive risk score for adult outcomes among VP/VLBW child cohorts

Regression functions will be built based on the propective data in the cohorts who have reached adulthood to predict adult outcomes eg cogitive outcome employment status health psychiatric problems etc These will then applied to child cohorts including similar data colleted in childhood Eg GNN PIPARI EPICELollipop to estimate their projected adult outcome

Translation of Research into policy brief

A workshop which brings together health professionals parents and patients at national European and international levels to discuss the results of the RECAP preterm consortium

Go-online of the public project website and factsheet

Corporate design and public part of the RECAP preterm website set up to disseminate results to the public. Factsheet ready to make RECAP preterm known to the public.

Final report on dissemination activities

Summary of disseemination activities conducted during RECAP preterm

Workshop for project members on conceptual framework

The methodology developed in D5.1 will be presented in a workshop for members of the consortium. The 2-day workshop covers the conceptual framework and its application to harmonisation, loss to follow up and prediction, and provides hands-on experience with the actual use of the tools.

Report of cohort descriptions to aid future research

Report describing the characteristics, exposures and outcomes of very preterm infants in participating cohorts using comparable indicators

Guidelines for quality assurance registers finalised

Guidelines about the types of data that should be included in quality assurance registers or audits in obstetric and paediatric hospitals

The establishment of the EAHL-IAB interest group on governance of research

Publicaciones

Common Core Assessments in follow‐up studies of adults born preterm—Recommendation of the Adults Born Preterm International Collaboration

Autores: Eero Kajantie, Samantha Johnson, Kati Heinonen, Peter J. Anderson, Dieter Wolke, Kari Anne I. Evensen, Katri Räikkönen, Brian A. Darlow, Sylvia Pal, Marit S. Indredavik, Julia Jaekel, Petteri Hovi, Katherine Morrison, Erik Verrips, Lex W. Doyle
Publicado en: Paediatric and Perinatal Epidemiology, Edición 35/3, 2021, Página(s) 371-387, ISSN 0269-5022
Editor: Blackwell Publishing Inc.
DOI: 10.1111/ppe.12694

Strategies for assessing the impact of loss to follow-up on estimates of neurodevelopmental impairment in a very preterm cohort at 2 years of age

Autores: Aurélie Piedvache, Stef van Buuren, Henrique Barros, Ana Isabel Ribeiro, Elizabeth Draper, Jennifer Zeitlin, E. Martens, G. Martens, P. Van Reempts, K. Boerch, A. Hasselager, L. D. Huusom, O. Pryds, T. Weber, L. Toome, H. Varendi, Ile-de France, P. Y. Ancel, B. Blondel, A. Burguet, P. H. Jarreau, P. Truffert, R. F. Maier, B. Misselwitz, S. Schmidt, L. Gortner, D. Baronciani, G. Gargano, R. Agosti
Publicado en: BMC Medical Research Methodology, Edición 21/1, 2021, ISSN 1471-2288
Editor: BioMed Central
DOI: 10.1186/s12874-021-01264-3

Prenatal stress and offspring depression in adulthood: The mediating role of childhood trauma

Autores: Yiwen Liu, Jon Heron, Matthew Hickman, Stanley Zammit, Dieter Wolke
Publicado en: Journal of Affective Disorders, Edición 297, 2022, Página(s) 45-52, ISSN 0165-0327
Editor: Elsevier BV
DOI: 10.1016/j.jad.2021.10.019

The role of parental education on the relationship between gestational age and school outcomes

Autores: Josephine Funck Bilsteen, Claus Thorn Ekstrøm, Klaus Børch, Anne‐Marie Nybo Andersen
Publicado en: Paediatric and Perinatal Epidemiology, Edición 35/6, 2021, Página(s) 726-735, ISSN 0269-5022
Editor: Blackwell Publishing Inc.
DOI: 10.1111/ppe.12766

International comparisons of neurodevelopmental outcomes in infants born very preterm

Autores: Héloïse Torchin, Andreï S. Morgan, Pierre-Yves Ancel
Publicado en: Seminars in Fetal and Neonatal Medicine, Edición 25/3, 2020, Página(s) 101109, ISSN 1744-165X
Editor: Elsevier BV
DOI: 10.1016/j.siny.2020.101109

Impact of macro-socioeconomic determinants on sustainable perinatal health care in Portugal: a qualitative study on the opinion of healthcare professionals and experts

Autores: Julia Nadine Doetsch, Sandra C. S. Marques, Thomas Krafft, Henrique Barros
Publicado en: BMC Public Health, Edición 21/1, 2021, ISSN 1471-2458
Editor: BioMed Central
DOI: 10.1186/s12889-021-10194-0

The Role of Executive and General Cognitive Functioning in the Attention Problems of Very and Extremely Preterm Adults

Autores: Robert Eves, Adrian von Mühlenen, Marina Mendonça, Samantha Johnson, Helen O'Reilly, Peter Bartmann, Neil Marlow, Dieter Wolke
Publicado en: Journal of Developmental & Behavioral Pediatrics, Edición 41/6, 2020, Página(s) 461-469, ISSN 0196-206X
Editor: Lippincott Williams & Wilkins Ltd.
DOI: 10.1097/dbp.0000000000000806

Variation in very preterm extrauterine growth in a European multicountry cohort.

Autores: Rym El Rafei; Pierre-Henri Jarreau; Mikael Norman; Rolf F. Maier; Rolf F. Maier; Henrique Barros; Patrick Van Reempts; Pernille Pedersen; Marina Cuttini; Jennifer Zeitlin; Jennifer Zeitlin
Publicado en: Arch Dis Child Fetal Neonatal Ed., Edición 2021 May;106(3), 2021, Página(s) 316-323, ISSN 1359-2998
Editor: BMJ Publishing Group
DOI: 10.1136/archdischild-2020-319946

Association of Very Preterm Birth or Very Low Birth Weight With Intelligence in Adulthood

Autores: Robert Eves, Marina Mendonça, Nicole Baumann, Yanyan Ni, Brian A. Darlow, John Horwood, Lianne J. Woodward, Lex W. Doyle, Jeanie Cheong, Peter J. Anderson, Peter Bartmann, Neil Marlow, Samantha Johnson, Eero Kajantie, Petteri Hovi, Chiara Nosarti, Marit S. Indredavik, Kari-Anne I. Evensen, Katri Räikkönen, Kati Heinonen, Jennifer Zeitlin, Dieter Wolke
Publicado en: JAMA Pediatrics, Edición 175/8, 2021, Página(s) e211058, ISSN 2168-6203
Editor: American Medical Association
DOI: 10.1001/jamapediatrics.2021.1058

Low socio‐economic conditions and prematurity‐related morbidities explain healthcare use and costs for 2‐year‐old very preterm children

Autores: Michela Meregaglia, Ileana Croci, Carla Brusco, Lena C. Herich, Domenico Di Lallo, Giancarlo Gargano, Virgilio Carnielli, Jennifer Zeitlin, Giovanni Fattore, Marina Cuttini
Publicado en: Acta Paediatrica, Edición 109/9, 2020, Página(s) 1791-1800, ISSN 0803-5253
Editor: Taylor & Francis
DOI: 10.1111/apa.15183

The epigenetic clock and pubertal, neuroendocrine, psychiatric, and cognitive outcomes in adolescents

Autores: Anna Suarez, Jari Lahti, Darina Czamara, Marius Lahti-Pulkkinen, Polina Girchenko, Sture Andersson, Timo E. Strandberg, Rebecca M. Reynolds, Eero Kajantie, Elisabeth B. Binder, Katri Raikkonen
Publicado en: Clinical Epigenetics, Edición 10/1, 2018, ISSN 1868-7075
Editor: Springer Verlag
DOI: 10.1186/s13148-018-0528-6

Record linkage of population-based cohort data from minors with national register data: a scoping review and comparative legal analysis of four European countries

Autores: Julia Nadine Doetsch, Vasco Dias, Marit S. Indredavik, Jarkko Reittu, Randi Kallar Devold, Raquel Teixeira, Eero Kajantie, Henrique Barros
Publicado en: Open Research Europe, Edición 1, 2021, Página(s) 58, ISSN 2732-5121
Editor: Open Research Europe
DOI: 10.12688/openreseurope.13689.1

Editorial: Is Preterm Birth Overlooked in Child and Adolescent Psychiatry?

Autores: Eilis Kennedy, Elizabeth O’Nions, Dieter Wolke, Samantha Johnson
Publicado en: Journal of the American Academy of Child & Adolescent Psychiatry, Edición 60/9, 2021, Página(s) 1066-1068, ISSN 0890-8567
Editor: Elsevier BV
DOI: 10.1016/j.jaac.2020.12.011

Head Growth and Intelligence from Birth to Adulthood in Very Preterm and Term Born Individuals

Autores: Julia Jaekel, Christian Sorg, Josef Baeuml, Peter Bartmann, Dieter Wolke
Publicado en: Journal of the International Neuropsychological Society, Edición 25/1, 2019, Página(s) 48-56, ISSN 1355-6177
Editor: Cambridge University Press
DOI: 10.1017/s135561771800084x

Mental health outcomes of adults born very preterm or with very low birth weight: A systematic review

Autores: Rachel Robinson, Marius Lahti-Pulkkinen, Daniel Schnitzlein, Falk Voit, Polina Girchenko, Dieter Wolke, Sakari Lemola, Eero Kajantie, Kati Heinonen, Katri Räikkönen
Publicado en: Seminars in Fetal and Neonatal Medicine, Edición 25/3, 2020, Página(s) 101113, ISSN 1744-165X
Editor: Elsevier BV
DOI: 10.1016/j.siny.2020.101113

Psychiatric disorders in individuals born very preterm / very low-birth weight: An individual participant data (IPD) meta-analysis

Autores: Peter J Anderson, Debora Marques de Miranda, Maicon Rodrigues Albuquerque, Marit Sæbø Indredavik, Kari Anne I. Evensen, Ryan Van Lieshout, Saroj Saigal, H. Gerry Taylor, Katri Raikkonen, Eero Kajantie, Neil Marlow, Samantha Johnson, Lianne J. Woodward, Nicola Austin, Chiara Nosarti, Julia Jaekel, Dieter Wolke, Jeanie LY Cheong, Alice Burnett, Karli Treyvaud, Katherine J Lee, Lex W Doyle
Publicado en: EClinicalMedicine, Edición 42, 2021, Página(s) 101216, ISSN 2589-5370
Editor: The Lancet
DOI: 10.1016/j.eclinm.2021.101216

3rd Congress of Joint European Neonatal Societies (jENS 2019)

Autores: van der Pal SM, Steinhof M, Grevinga M, Wolke D, Verrips E
Publicado en: Pediatric Research, Edición 86/S1, 2019, Página(s) 1-64, ISSN 0031-3998
Editor: Lippincott Williams & Wilkins Ltd.
DOI: 10.1038/s41390-019-0521-6

Maternal depressive symptoms during and after pregnancy and child developmental milestones

Autores: Soile Tuovinen, Marius Lahti-Pulkkinen, Polina Girchenko, Jari Lipsanen, Jari Lahti, Kati Heinonen, Rebecca M. Reynolds, Esa Hämäläinen, Eero Kajantie, Hannele Laivuori, Anu-Katriina Pesonen, Pia M. Villa, Katri Räikkönen
Publicado en: Depression and Anxiety, Edición 35/8, 2018, Página(s) 732-741, ISSN 1091-4269
Editor: John Wiley & Sons Inc.
DOI: 10.1002/da.22756

Maternal early pregnancy obesity and related pregnancy and pre-pregnancy disorders: associations with child developmental milestones in the prospective PREDO Study

Autores: Polina Girchenko, Soile Tuovinen, Marius Lahti-Pulkkinen, Jari Lahti, Katri Savolainen, Kati Heinonen, Riikka Pyhälä, Rebecca M. Reynolds, Esa Hämäläinen, Pia M. Villa, Eero Kajantie, Anu-Katriina Pesonen, Hannele Laivuori, Katri Räikkönen
Publicado en: International Journal of Obesity, Edición 42/5, 2018, Página(s) 995-1007, ISSN 0307-0565
Editor: Nature Publishing Group
DOI: 10.1038/s41366-018-0061-x

Preterm Birth/Low Birth Weight and Markers Reflective of Wealth in Adulthood: A Meta-analysis

Autores: Ayten Bilgin, Marina Mendonca, Dieter Wolke
Publicado en: Pediatrics, Edición 142/1, 2018, Página(s) e20173625, ISSN 0031-4005
Editor: American Academy of Pediatrics
DOI: 10.1542/peds.2017-3625

Improving Understanding of Participation and Attrition Phenomena in European Cohort Studies: Protocol for a Multi-Situated Qualitative Study

Autores: Sandra C S Marques, Julia Doetsch, Anne Brødsgaard, Marina Cuttini, Elizabeth S Draper, Eero Kajantie, Jo Lebeer, Sylvia van der Pal, Pernille Pedersen, Henrique Barros
Publicado en: JMIR Research Protocols, Edición 9/7, 2020, Página(s) e14997, ISSN 1929-0748
Editor: JMIR Publications
DOI: 10.2196/14997

Psychosocial developmental trajectory of a cohort of young adults born very preterm and/or with a very low birth weight in the Netherlands

Autores: Sylvia M. van der Pal, Heleen Maurice-Stam, Martha A. Grootenhuis, Aleid G. van Wassenaer-Leemhuis, Gijsbert H. W. Verrips
Publicado en: Journal of Patient-Reported Outcomes, Edición 3/1, 2019, Página(s) 17, ISSN 2509-8020
Editor: Springer International Publishing AG
DOI: 10.1186/s41687-019-0106-5

Birth outcomes between 22 and 26 weeks' gestation in national population‐based cohorts from Sweden, England and France

Autores: Andrei S. Morgan, Jennifer Zeitlin, Karin Källén, Elizabeth S. Draper, Karel Maršál, Mikael Norman, Fredrik Serenius, Stef Buuren, Samantha Johnson, Valérie Benhammou, Véronique Pierrat, Monique Kaminski, Laurence Foix L'Helias, Pierre‐Yves Ancel, Neil Marlow
Publicado en: Acta Paediatrica, 2021, ISSN 0803-5253
Editor: Taylor & Francis
DOI: 10.1111/apa.16084

Maternal education and language development at 2 years corrected age in children born very preterm: results from a European population-based cohort study

Autores: Mariane Sentenac, Samantha Johnson, Marie-Laure Charkaluk, Anna-Veera Sëppanen, Ulrika Aden, Marina Cuttini, Rolf Maier, Mairi Mannamaa, Jennifer Zeitlin
Publicado en: Journal of Epidemiology and Community Health, Edición 74/4, 2020, Página(s) 346-353, ISSN 0143-005X
Editor: British Medical Association
DOI: 10.1136/jech-2019-213564

Social Functioning in Adults Born Very Preterm: Individual Participant Meta-analysis

Autores: Yanyan Ni, Marina Mendonça, Nicole Baumann, Robert Eves, Eero Kajantie, Petteri Hovi, Marjaana Tikanmäki, Katri Räikkönen, Kati Heinonen, Marit S. Indredavik, Kari-Anne I. Evensen, Samantha Johnson, Neil Marlow, Dieter Wolke
Publicado en: Pediatrics, Edición 148/5, 2021, Página(s) e2021051986, ISSN 0031-4005
Editor: American Academy of Pediatrics
DOI: 10.1542/peds.2021-051986

Defining Very Preterm Populations for Systematic Reviews With Meta-analyses

Autores: Mariane Sentenac, Isabelle Boutron, Elizabeth S. Draper, Eero Kajantie, Rolf F. Maier, Dieter Wolke, Jennifer Zeitlin
Publicado en: JAMA Pediatrics, Edición 174/10, 2020, Página(s) 997, ISSN 2168-6203
Editor: American Medical Association
DOI: 10.1001/jamapediatrics.2020.0956

Priorities for collaborative research using very preterm birth cohorts

Autores: Jennifer Zeitlin, Mariane Sentenac, Andrei S Morgan, Pierre Yves Ancel, Henrique Barros, Marina Cuttini, Elizabeth Draper, Samantha Johnson, Jo Lebeer, Rolf F Maier, Mikael Norman, Heili Varendi
Publicado en: Archives of Disease in Childhood - Fetal and Neonatal Edition, Edición 105/5, 2020, Página(s) 538-544, ISSN 1359-2998
Editor: BMJ Publishing Group
DOI: 10.1136/archdischild-2019-317991

Maternal education and cognitive development in 15 European very-preterm birth cohorts from the RECAP Preterm platform

Autores: Mariane Sentenac, Valérie Benhammou, Ulrika Aden, Pierre-Yves Ancel, Leonhard A Bakker, Hannah Bakoy, Henrique Barros, Nicole Baumann, Josephine Funck Bilsteen, Klaus Boerch, Ileana Croci, Marina Cuttini, Elizabeth Draper, Thomas Halvorsen, Samantha Johnson, Karin Källén, Tuuli Land, Jo Lebeer, Liisa Lehtonen, Rolf F Maier, Neil Marlow, Andrei Morgan, Yanyan Ni, Katri Raikkonen, Anass Rtimi, Ie
Publicado en: International Journal of Epidemiology, 2021, ISSN 0300-5771
Editor: Oxford University Press
DOI: 10.1093/ije/dyab170

Reproductive risks in 35-year-old adults born very preterm and/or with very low birth weight: an observational study

Autores: Sylvia M. van der Pal, Sanne A. van der Meulen, Sophie M. Welters, Leonhard A. Bakker, Christianne J. M. de Groot, Anton H. van Kaam, Erik (G.H.W.) Verrips
Publicado en: European Journal of Pediatrics, Edición 180/4, 2021, Página(s) 1219-1228, ISSN 0340-6199
Editor: Springer Verlag
DOI: 10.1007/s00431-020-03864-5

Quality of life of adults born very preterm or very low birth weight: A systematic review

Autores: Sylvia M. van der Pal; Malte Steinhof; M. Grevinga; Dieter Wolke; Gijsbert Erik Verrips
Publicado en: Acta Paediatrica, Edición 109(10) 2020 October, 2020, Página(s) 1974-1988, ISSN 0803-5253
Editor: Taylor & Francis
DOI: 10.1111/apa.15249

Understanding participation in European cohort studies of preterm children: the views of parents, healthcare professionals and researchers

Autores: Sandra C. S. Marques, Julia Doetsch, Georgia Abate, Anne Brødsgaard, Grazia Colombo, Marina Cuttini, Pernille Pedersen, Henrique Barros
Publicado en: BMC Medical Research Methodology, Edición 21/1, 2021, ISSN 1471-2288
Editor: BioMed Central
DOI: 10.1186/s12874-020-01206-5

Small for Gestational Age-Cognitive Performance From Infancy to Adulthood: An Observational Study

Autores: R. Eves, M. Mendonça, P. Bartmann, D. Wolke
Publicado en: Obstetrical & Gynecological Survey, Edición 76/5, 2021, Página(s) 259-261, ISSN 0029-7828
Editor: Lippincott Williams & Wilkins Ltd.
DOI: 10.1097/01.ogx.0000751636.14263.11

Mortality Among Young Adults Born Preterm and Early Term in 4 Nordic Nations

Autores: Kari Risnes, Josephine Funck Bilsteen, Paul Brown, Anna Pulakka, Anne-Marie Nybo Andersen, Signe Opdahl, Eero Kajantie, Sven Sandin
Publicado en: JAMA Network Open, Edición 4/1, 2021, Página(s) e2032779, ISSN 2574-3805
Editor: American Medical Association
DOI: 10.1001/jamanetworkopen.2020.32779

Equitable migrant-friendly perinatal healthcare access and quality in public maternity units in Portugal

Autores: Julia Doetsch, Ricardo Almendra, Mariana Carrapatoso, Cristina Teixeira, Henrique Barros
Publicado en: European Journal of Public Health, Edición 31/5, 2021, Página(s) 951-957, ISSN 1101-1262
Editor: Oxford University Press
DOI: 10.1093/eurpub/ckab125

Long-term motor outcomes of very preterm and/or very low birth weight individuals without cerebral palsy: A review of the current evidence

Autores: Kari Anne I. Evensen, Tordis Ustad, Marjaana Tikanmäki, Peija Haaramo, Eero Kajantie
Publicado en: Seminars in Fetal and Neonatal Medicine, Edición 25/3, 2020, Página(s) 101116, ISSN 1744-165X
Editor: Elsevier BV
DOI: 10.1016/j.siny.2020.101116

MedLinker: Medical Entity Linking with Neural Representations and Dictionary Matching

Autores: J. M. Jose et al.
Publicado en: Springer, Edición CIR 2020, LNCS 12036, 2020, Página(s) 230–237
Editor: Springer Nature Switzerland AG
DOI: 10.1007/978-3-030-45442-5_29

Mortalità ed esiti ai 2 anni nei nati altamente pretermine: confronti temporali tra due coorti area-based in Lazio e Marche

Autores: Croci I, et al.
Publicado en: Ricerca & Pratica, 2018, ISSN 1120-379X
Editor: Il Pensiero Scientifico Editore,

Capacità predittiva del questionario per i genitori PARCA-R in nati altamente pretermine ai due anni di età corretta rispetto allo sviluppo cognitivo misurato in età scolare.

Autores: Croci I, et al
Publicado en: Ricerca & Pratica, 2018, ISSN 1120-379X
Editor: Il Pensiero Scientifico Editore,

Il progetto ReCAP: una piattaforma per l'analisi condivisa delle coorti perinatali in Europa.

Autores: Cuttini M
Publicado en: Quaderni ACP, Edición Vol.28 n.5, Suppl. Sept/Oct 2021, 2021, Página(s) 18
Editor: Quaderni ACP

Time Spent in the Womb and Long-Term Outcomes

Autores: Josephine Funck Bilsteen
Publicado en: Book, 2021
Editor: University of Copenhagen

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