Provide a project specific website to regularly disseminate uptodate information on the project to all stake holders.
Conceptual BIA and CEA models will be developed by mapping the natural history of disease and the sequence of care provided in each of the UK, Germany and Italy.
Continue newsletter dissemination. Develop patient focussed components to keep participants up to date with study.
Share the findings of the project with our established audience in a tailored manner Communicate our future goals and their role in these
Continue newsletter dissemination. Aim to share progress of wider publicity and awareness work. Engage network in this.
Plan and release a simple and accessible newletter to update both patients and interested parties on project aims.