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CORDIS - EU research results
CORDIS

Repurposing of carbamazepine for treatment of skeletal dysplasia

CORDIS provides links to public deliverables and publications of HORIZON projects.

Links to deliverables and publications from FP7 projects, as well as links to some specific result types such as dataset and software, are dynamically retrieved from OpenAIRE .

Deliverables

MCDS-Therapy website destined for scientific and public communities (opens in new window)

Provide a project specific website to regularly disseminate uptodate information on the project to all stake holders.

Final estimates of BIA (opens in new window)

Revised and updated estimates of the net cost of implementing the therapy in a target health care system using data produced from the whole programme of work.

Final estimates of CEA (opens in new window)

Revised and updated estimates of the cost-effectiveness of the therapy in a target health care system using data produced from the whole programme of work.

Annual newsletter at M24 (opens in new window)

Continue newsletter dissemination. Develop patient focussed components to keep participants up to date with study.

Annual newsletter at M48 (opens in new window)

Share the findings of the project with our established audience in a tailored manner Communicate our future goals and their role in these

Annual newsletter at M36 (opens in new window)

Continue newsletter dissemination. Aim to share progress of wider publicity and awareness work. Engage network in this.

Report on patient and carer preferences (opens in new window)

The reactive importance of different aspects of a new package of care for MCDS.

Annual newsletter at M12 (opens in new window)

Plan and release a simple and accessible newletter to update both patients and interested parties on project aims.

Executable BIA and economic evaluation models (opens in new window)

Models that can be used and adapted by health care decision-makers to estimate locally relevant estimates of budget impact and cost-effectiveness.

Conceptual models for BIA and economic evaluation (opens in new window)

Conceptual BIA and CEA models will be developed by mapping the natural history of disease and the sequence of care provided in each of the UK, Germany and Italy.

Publications

Interventions for improving clinical outcomes and health-related quality-of-life for people living with skeletal dysplasias: an evidence gap map (opens in new window)

Author(s): Moy N.; Flynn D.; Henriquez J.; Connelly L. B.; Vale L.; Paolucci F.
Published in: Crossref, Issue 2, 2023, ISSN 0962-9343
Publisher: Kluwer Academic Publishers
DOI: 10.1007/s11136-023-03431-z

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