Repurposing of carbamazepine for treatment of skeletal dysplasia

Informazioni relative al progetto

MCDS-Therapy

ID dell’accordo di sovvenzione: 754825

DOI

10.3030/754825

Progetto chiuso

Data della firma CE 5 Dicembre 2017

Data di avvio 1 Dicembre 2017

Data di completamento 31 Maggio 2024

Finanziato da

• SOCIETAL CHALLENGES - Health, demographic change and well-being

Costo totale

€ 5 697 390,50

Contributo UE

€ 5 697 390,50

Coordinato da

UNIVERSITY OF NEWCASTLE UPON TYNE
United Kingdom

CORDIS fornisce collegamenti ai risultati finali pubblici e alle pubblicazioni dei progetti ORIZZONTE.

I link ai risultati e alle pubblicazioni dei progetti del 7° PQ, così come i link ad alcuni tipi di risultati specifici come dataset e software, sono recuperati dinamicamente da .OpenAIRE .

Risultati finali

Websites, patent fillings, videos etc. (1)

MCDS-Therapy website destined for scientific and public communities

Provide a project specific website to regularly disseminate uptodate information on the project to all stake holders.

Documents, reports (7)

Final estimates of BIA

Revised and updated estimates of the net cost of implementing the therapy in a target health care system using data produced from the whole programme of work.

Final estimates of CEA

Revised and updated estimates of the cost-effectiveness of the therapy in a target health care system using data produced from the whole programme of work.

Annual newsletter at M24

Continue newsletter dissemination. Develop patient focussed components to keep participants up to date with study.

Annual newsletter at M48

Share the findings of the project with our established audience in a tailored manner Communicate our future goals and their role in these

Annual newsletter at M36

Continue newsletter dissemination. Aim to share progress of wider publicity and awareness work. Engage network in this.

Report on patient and carer preferences

The reactive importance of different aspects of a new package of care for MCDS.

Annual newsletter at M12

Plan and release a simple and accessible newletter to update both patients and interested parties on project aims.

Other (1)

Executable BIA and economic evaluation models

Models that can be used and adapted by health care decision-makers to estimate locally relevant estimates of budget impact and cost-effectiveness.

Demonstrators, pilots, prototypes (1)

Conceptual models for BIA and economic evaluation

Conceptual BIA and CEA models will be developed by mapping the natural history of disease and the sequence of care provided in each of the UK, Germany and Italy.

Pubblicazioni

Peer reviewed articles (1)

Interventions for improving clinical outcomes and health-related quality-of-life for people living with skeletal dysplasias: an evidence gap map

Autori: Moy N.; Flynn D.; Henriquez J.; Connelly L. B.; Vale L.; Paolucci F.
Pubblicato in: Crossref, Numero 2, 2023, ISSN 0962-9343
Editore: Kluwer Academic Publishers
DOI: 10.1007/s11136-023-03431-z