Repurposing of carbamazepine for treatment of skeletal dysplasia

Información del proyecto

MCDS-Therapy

Identificador del acuerdo de subvención: 754825

DOI

10.3030/754825

Proyecto cerrado

Fecha de la firma de la CE 5 Diciembre 2017

Fecha de inicio 1 Diciembre 2017

Fecha de finalización 31 Mayo 2024

Financiado con arreglo a

• SOCIETAL CHALLENGES - Health, demographic change and well-being

Coste total

€ 5 697 390,50

Aportación de la UE

€ 5 697 390,50

Coordinado por

UNIVERSITY OF NEWCASTLE UPON TYNE
United Kingdom

CORDIS proporciona enlaces a los documentos públicos y las publicaciones de los proyectos de los programas marco HORIZONTE.

Los enlaces a los documentos y las publicaciones de los proyectos del Séptimo Programa Marco, así como los enlaces a algunos tipos de resultados específicos, como conjuntos de datos y «software», se obtienen dinámicamente de OpenAIRE .

Resultado final

Websites, patent fillings, videos etc. (1)

MCDS-Therapy website destined for scientific and public communities

Provide a project specific website to regularly disseminate uptodate information on the project to all stake holders.

Documents, reports (7)

Final estimates of BIA

Revised and updated estimates of the net cost of implementing the therapy in a target health care system using data produced from the whole programme of work.

Final estimates of CEA

Revised and updated estimates of the cost-effectiveness of the therapy in a target health care system using data produced from the whole programme of work.

Annual newsletter at M24

Continue newsletter dissemination. Develop patient focussed components to keep participants up to date with study.

Annual newsletter at M48

Share the findings of the project with our established audience in a tailored manner Communicate our future goals and their role in these

Annual newsletter at M36

Continue newsletter dissemination. Aim to share progress of wider publicity and awareness work. Engage network in this.

Report on patient and carer preferences

The reactive importance of different aspects of a new package of care for MCDS.

Annual newsletter at M12

Plan and release a simple and accessible newletter to update both patients and interested parties on project aims.

Other (1)

Executable BIA and economic evaluation models

Models that can be used and adapted by health care decision-makers to estimate locally relevant estimates of budget impact and cost-effectiveness.

Demonstrators, pilots, prototypes (1)

Conceptual models for BIA and economic evaluation

Conceptual BIA and CEA models will be developed by mapping the natural history of disease and the sequence of care provided in each of the UK, Germany and Italy.

Publicaciones

Peer reviewed articles (1)

Interventions for improving clinical outcomes and health-related quality-of-life for people living with skeletal dysplasias: an evidence gap map

Autores: Moy N.; Flynn D.; Henriquez J.; Connelly L. B.; Vale L.; Paolucci F.
Publicado en: Crossref, Edición 2, 2023, ISSN 0962-9343
Editor: Kluwer Academic Publishers
DOI: 10.1007/s11136-023-03431-z