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A Collective Research Impact Framework and multi-variate models to foster the true engagement of actors and stakeholders in Health Research and Innovation

Project description

DEENESFRITPL

Encouraging stakeholder engagement in healthcare

The COVID-19 pandemic as well as the growing health costs associated with demographic and climate changes are some of the challenges the health research and care systems are facing. Building a connected and responsible ecosystem of research and care that could unlock the transformative potential of science and technology to translate research results into societally desirable outcomes is crucial. Regrettably, despite the interest from stakeholders in more participatory decision-making models, the lack of innovative governance approaches and methods to assess impact hinder the return on investment of meaningful engagement in health research and innovation. The EU-funded MULTI-ACT project has developed an innovative model for collective research impact assessment establishing a multidimensional set of indicators and guidelines to institutionalise stakeholder engagement.

Objective

Conventional accountability metrics to measure the impact of health R&I process normally are not able to represent the claims of different actors. The development of a new integrated collective research impact framework will be instrumental in enabling Return Of Investment (ROI) by each involved stakeholder in a view of collective sustainability. Economic and financial dimension (efficiency) has to be integrated with measures of mission success (efficacy), while being accountable to all the stakeholders who are directly or indirectly affected by an organization activity. Starting from the Integrated Accountability Model (IAM) in its different dimensions (mission, economic and social), new and appropriate metrics to evaluate impact of health research will be developed in a multistakeholder participatory approach. The IAM model will be expanded and fine-tuned in a new Collective Research Impact Framework (CRIF) to be applied to Multi-Stakeholder Research Initiatives in the domain of BRAIN diseases. The CRIF will be based on key requirements that will be jointly developed by different actors (i.e. research organizations, industry, civil society organizations, patients organizations, policy makers, governmental institutions): 1)the science of patient input; 2)common classification system to uniformly identify types of health R&I; 3)new metrics to measure the impact of R&I on patients and society; 4)strategic research global agenda and funding models; 5)committed partnership among health R&I stakeholders to create and oversee cooperative ventures; 6)mechanism to determine the nature of health R&I funding on a national level. MULTI-ACT proposal is led by patient organizations that act as mediators between science and patients/society. Addressed Responsible Research and Innovation issues are: Public engagement, Research governance and Research impact assessment as responsible research is the one that produces an impact on people and society.

Fields of science

Programme(s)

Topic(s)

Call for proposal

H2020-SwafS-2016-17

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Sub call

H2020-SwafS-2017-1

Funding Scheme

CSA - Coordination and support action

Coordinator

FONDAZIONE ITALIANA SCLEROSI MULTIPLA - FISM ETS
Net EU contribution
€ 577 461,24
Address
Via operai 40
16149 Genova
Italy

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Region
Nord-Ovest Liguria Genova
Activity type
Research Organisations
Links
Other funding
€ 0,00

Participants (11)

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Last update: 23 August 2022

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Permalink: https://cordis.europa.eu/project/id/787570

European Union, 2023