Participatory Approaches to a New Ethical and Legal Framework for ICT

Informations projet

PANELFIT

N° de convention de subvention: 788039

DOI 10.3030/788039

Projet clôturé

Date de signature de la CE 9 Octobre 2018

Date de début 1 Novembre 2018

Date de fin 30 Avril 2022

Financé au titre de

• Develop the governance for the advancement of responsible research and innovation by all stakeholders, which is sensitive to society needs and demands and promote an ethics framework for research and innovation

Coût total € 2 798 031,25

Contribution de l’UE € 2 798 031,25

Coordonné par

UNIVERSIDAD DEL PAIS VASCO/ EUSKAL HERRIKO UNIBERTSITATEA
Spain

Livrables

Documents, reports (19)

Handbook for Journalists
Issues and gap analysis on data commercialisation in the context of ICT research and innovation

Issues and gap analysis and Section of the Guidelines devoted to data commercialisation in the context of ICT research and innovation

Guidelines on Data Protection ELI in ICT Research and Innovation
Code of Conduct for Responsible Research and Innovation
JCR indexed journal publishing the papers corresponding to the security and cybersecurity workshop
JCR indexed journal publishing the papers corresponding to the workshop on commercialisation
Online version of The Guidelines Produced and working

D59 Online version of The Guidelines Produced and working UPVEHU DBTAn online version of The Guidelines will serve to make the outcome easier to use for endusers and stakeholders It will be include cross references and links Short videos will help end users gain basic knowledge about the main issues in a simple way

Dissemination, communication and exploitation plan

Dissemination communication and exploitation plan

Report on the surveys, training courses and webinars

Report on the surveys training courses and webinars

JCR indexed journal publishing the papers corresponding to the workshop on data protection ethical issues
Citizens Info Pack
Journalistic publications by OBCT, VoxEurop, and other media outlets engaged in the project

Journalistic publications by OBCT VoxEurop and other media outlets engaged in the project

Management guidelines
Report on the Governance of ICT data protection ELI.

Report on the Governance of ICT data protection ELI

Report on the Implementation of the Communication Strategy
JCR indexed journal publishing the papers corresponding to the Informed Consent workshop
Issues and gaps analysis on informed consent in the context in ICT research and Innovation

Issues and gaps analysis on the regulation and Section of Guidelines related to informed consent in the context of ICT research and innovation

Critical Analysis on the ICT Data Protection Regulatory Framework
Issues and gap analysis security and cybersecurity ELI in the context of ICT research and innovation

Section of the Guidelines devoted to security and cybersecurity ELI in the context of ICT research and innovation

Open Research Data Pilot (1)

Data management plan

Websites, patent fillings, videos etc. (1)

Website and social media tools

Publications

Peer reviewed articles (40)

Ownership Of Databases: Personal Data Protection And Intellectual Property Rights On Databases

Auteurs: Gemma Minero Alejandre
Publié dans: European Review of Private Law, Numéro Volume 29, Numéro 5, 2021, Page(s) 733 – 756, ISSN 1875-8371
Éditeur: Wolters Kluwer
DOI: 10.21248/gups.64578

Immunity passports, fundamental rights and public health hazards: a reply to Brown et al

Auteurs: Iñigo de Miguel Beriain, Jon Rueda
Publié dans: Journal of Medical Ethics, Numéro 46/10, 2020, Page(s) 660-661, ISSN 0306-6800
Éditeur: BMJ Publishing Group
DOI: 10.1136/medethics-2020-106814

Questioning the EU proposal for an Artificial Intelligence Act: The need for prohibitions and a stricter approach to biometric surveillance

Auteurs: Irena Barkane
Publié dans: Information Polity - Special Numéro: Questioning Modern Surveillance Technologies: Ethical and Legal Challenges of Emerging Information and Communication Technologies, Numéro Volume 27, Numéro No 2, 2022, ISSN 1570-1255
Éditeur: IOS Press
DOI: 10.3233/ip-211524

Between formality and informality: A critical study of the integration of drones within the Neuchâtel police force

Auteurs: Silvana Pedrozo, Francisco Klauser
Publié dans: Information Polity - Special Numéro: Questioning Modern Surveillance Technologies: Ethical and Legal Challenges of Emerging Information and Communication Technologies, Numéro Volume 27, Numéro No 2, 2022, ISSN 1570-1255
Éditeur: IOS Press
DOI: 10.3233/ip-211533

Accountability by design in technology research

Auteurs: Ben Wagner
Publié dans: Computer Law & Security Review, Numéro 37, 2020, Page(s) 105398, ISSN 0267-3649
Éditeur: Pergamon Press Ltd.
DOI: 10.1016/j.clsr.2020.105398

Building up the “Accountable Ulysses” model. The impact of GDPR and national implementations, ethics, and health-data research: Comparative remarks

Auteurs: Denise Amram
Publié dans: Computer Law & Security Review, Numéro 37, 2020, Page(s) 105413, ISSN 0267-3649
Éditeur: Pergamon Press Ltd.
DOI: 10.1016/j.clsr.2020.105413

Data protection, scientific research, and the role of information

Auteurs: Rossana Ducato
Publié dans: Computer Law & Security Review, Numéro 37, 2020, Page(s) 105412, ISSN 0267-3649
Éditeur: Pergamon Press Ltd.
DOI: 10.1016/j.clsr.2020.105412

The European PNR Directive as an instance of pre-emptive, risk-based algorithmic security and its implications for the regulatory framework

Auteurs: Elisa Orrù
Publié dans: Information Polity - Special Numéro: Questioning Modern Surveillance Technologies: Ethical and Legal Challenges of Emerging Information and Communication Technologies, Numéro Volume 27, Numéro No 2, 2022, ISSN 1570-1255
Éditeur: IOS Press
DOI: 10.3233/ip-211531

The Legal Regulation of Digital Wealth: Commerce, Ownership and Inheritance of Data

Auteurs: José Antonio Castillo Parrilla
Publié dans: European Review of Private Law, Numéro Volume 29, Numéro 5, 2021, Page(s) 807 – 830, ISSN 1875-8371
Éditeur: Wolters Kluwer
DOI: 10.21248/gups.64581

The genomic data deficit: On the need to inform research subjects of the informational content of their genomic sequence data in consent for genomic research

Auteurs: Dara Hallinan
Publié dans: Computer Law & Security Review, Numéro 37, 2020, Page(s) 105427, ISSN 0267-3649
Éditeur: Pergamon Press Ltd.
DOI: 10.1016/j.clsr.2020.105427

The Quality of Life: Protecting Non-personal Interests and Non-personal Data in the Age of Big Data

Auteurs: Bart Van Der Sloot
Publié dans: European Review of Private Law, Numéro Volume 29, Numéro 5, 2021, Page(s) 757 – 784, ISSN 1875-8371
Éditeur: Wolters Kluwer
DOI: 10.21248/gups.64579

Culling the FLoC: Market forces, regulatory regimes and Google’s (mis)steps on the path away from targeted advertising

Auteurs: David Eliot, David Murakami Wood
Publié dans: Information Polity - Special Numéro: Questioning Modern Surveillance Technologies: Ethical and Legal Challenges of Emerging Information and Communication Technologies, Numéro Volume 27, Numéro No 2, 2022, ISSN 1570-1255
Éditeur: IOS Press
DOI: 10.3233/ip-211535

Responsible application of artificial intelligence to surveillance: What prospects?

Auteurs: Roger Clarke
Publié dans: Information Polity - Special Numéro: Questioning Modern Surveillance Technologies: Ethical and Legal Challenges of Emerging Information and Communication Technologies, Numéro Volume 27, Numéro No 2, 2022, ISSN 1570-1255
Éditeur: IOS Press
DOI: 10.3233/ip-211532

A Consumer Law Perspective on the Commercialization of Data

Auteurs: Mateja Durovic, Franciszek Lech
Publié dans: European Review of Private Law, Numéro Volume 29, Numéro 5, 2021, Page(s) 701 – 732, ISSN 1875-8371
Éditeur: Wolters Kluwer
DOI: 10.21248/gups.64577

Emotional AI: Legal and ethical challenges

Auteurs: Thomas Gremsl, Elisabeth Hödl
Publié dans: Information Polity - Special Numéro: Questioning Modern Surveillance Technologies: Ethical and Legal Challenges of Emerging Information and Communication Technologies, Numéro Volume 27, Numéro No 2, 2022, ISSN 1570-1255
Éditeur: IOS Press
DOI: 10.3233/ip-211529

Valoración algorítmica ante los derechos humanos y el Reglamento General de Protección de Datos: el caso SyRI

Auteurs: Guillermo Lazcoz Moratinos, José Antonio Castillo Parrilla
Publié dans: Revista Chilena de Derecho y Tecnología, Numéro 9/1, 2020, Page(s) 207, ISSN 0719-2584
Éditeur: Universidad de Chile
DOI: 10.5354/0719-2584.2020.56843

The Geneva Statement on Heritable Human Genome Editing: A Criticism

Auteurs: Íñigo de Miguel Beriain
Publié dans: Trends in Biotechnology, 2020, ISSN 0167-7799
Éditeur: Elsevier BV
DOI: 10.1016/j.tibtech.2020.11.004

‘Digital pills’ for mental diseases: an ethical and social analysis of the issues behind the concept

Auteurs: Iñigo de Miguel Beriain, Marina Morla González
Publié dans: Journal of Law and the Biosciences, 2020, ISSN 2053-9711
Éditeur: Oxford University Press
DOI: 10.1093/jlb/lsaa040

The sensitive nature of facial recognition: Tensions between the Swedish police and regulatory authorities

Auteurs: Marie Eneman, Jan Ljungberg, Elena Raviola, Bertil Rolandsson
Publié dans: Information Polity - Special Numéro: Questioning Modern Surveillance Technologies: Ethical and Legal Challenges of Emerging Information and Communication Technologies, Numéro Volume 27, Numéro No 2, 2022, ISSN 1570-1255
Éditeur: IOS Press
DOI: 10.3233/ip-211538

Information privacy, impact assessment, and the place of ethics

Auteurs: Charles D. Raab
Publié dans: Computer Law & Security Review, Numéro 37, 2020, Page(s) 105404, ISSN 0267-3649
Éditeur: Pergamon Press Ltd.
DOI: 10.1016/j.clsr.2020.105404

What Can We Do with the Data of Deceased People? A Normative Proposal

Auteurs: Iñigo de Miguel Beriain, Aliuska Duardo-Sánchez, José Castillo Parrilla
Publié dans: European Review of Private Law, Numéro Volume 29, Numéro 5, 2021, Page(s) 785 – 806, ISSN 1875-8371
Éditeur: Wolters Kluwer
DOI: 10.21248/gups.64580

Gene editing and disabled people: a response to Felicity Boardman

Auteurs: Iñigo de Miguel Beriain
Publié dans: Journal of Community Genetics, Numéro 11/3, 2020, Page(s) 241-243, ISSN 1868-310X
Éditeur: Springer Verlag
DOI: 10.1007/s12687-020-00460-w

Introduction to the Special Issue: Questioning Modern Surveillance Technologies: Ethical and Legal Challenges of Emerging Information and Communication Technologies

Auteurs: Johann Čas,Paul De Hert, Maria Graziac Porcedda, Charles D. Raab
Publié dans: Information Polity - Special Numéro: Questioning Modern Surveillance Technologies: Ethical and Legal Challenges of Emerging Information and Communication Technologies, Numéro Volume 27, Numéro No 2, 2022, ISSN 1570-1255
Éditeur: IOS Press
DOI: 10.3233/ip-229006

Automated decision-making in the EU Member States: The right to explanation and other “suitable safeguards” in the national legislations

Auteurs: Gianclaudio Malgieri
Publié dans: Computer Law & Security Review, Numéro 35/5, 2019, Page(s) 105327, ISSN 0267-3649
Éditeur: Pergamon Press Ltd.
DOI: 10.1016/j.clsr.2019.05.002

Should we have a right to refuse diagnostics and treatment planning by artificial intelligence?

Auteurs: Iñigo de Miguel Beriain
Publié dans: Medicine, Health Care and Philosophy, 2020, ISSN 1386-7423
Éditeur: Kluwer Academic Publishers
DOI: 10.1007/s11019-020-09939-2

Data protection and research: A vital challenge in the era of COVID-19 pandemic

Auteurs: Gianclaudio Malgieri
Publié dans: Computer Law & Security Review, Numéro 37, 2020, Page(s) 105431, ISSN 0267-3649
Éditeur: Pergamon Press Ltd.
DOI: 10.1016/j.clsr.2020.105431

Transparency by design in data-informed research: A collection of information design patterns

Auteurs: Arianna Rossi, Gabriele Lenzini
Publié dans: Computer Law & Security Review, Numéro 37, 2020, Page(s) 105402, ISSN 0267-3649
Éditeur: Pergamon Press Ltd.
DOI: 10.1016/j.clsr.2020.105402

It's all linked: How communication to the public affects internet architecture

Auteurs: Giancarlo Frosio
Publié dans: Computer Law & Security Review, Numéro 37, 2020, Page(s) 105410, ISSN 0267-3649
Éditeur: Pergamon Press Ltd.
DOI: 10.1016/j.clsr.2020.105410

Vulnerable data subjects

Auteurs: Gianclaudio Malgieri, Jędrzej Niklas
Publié dans: Computer Law & Security Review, Numéro 37, 2020, Page(s) 105415, ISSN 0267-3649
Éditeur: Pergamon Press Ltd.
DOI: 10.1016/j.clsr.2020.105415

WHAT CAN WE EXPECT FROM THE EU LEGAL FRAMEWORK IN A PANDEMIC OUTBREAK?

Auteurs: ñigo de Miguel, Elena Atienza-Macías
Publié dans: BioLaw Journal, 2020, ISSN 2284-4503
Éditeur: University of Trento
DOI: 10.15168/2284-4503-20201s

La inteligencia artificial en el proceso penal español: un analisis de su admisibilidad sobre la base de los derechos fundamentales implicados

Auteurs: Iñigo De Miguel Beriain, Miren Josune Pérez Estrada
Publié dans: Revista de Derecho de la UNED (RDUNED), Numéro 25, 2020, Page(s) 531, ISSN 2255-3436
Éditeur: UNED
DOI: 10.5944/rduned.25.2019.27013

Medicina personalizada, algoritmos predictivos y utilización de sistemas de decisión automatizados en asistencia sanitaria. Problemas éticos

Auteurs: Iñigo de Miguel Beriain
Publié dans: DILEMATA - International Journal of Applied Ethics, Numéro Year 11 - No 30 (May 2019), 2019, ISSN 1989-7022
Éditeur: International Journal of Applied Ethics

An EU comparative analysis of the regulation of clinical trials supervisory bodies in the aftermath of Regulation 536/2014

Auteurs: Iñigo de Miguel Beriain I., Timo, M., Chortara T., Duardo-Sánchez, A., Feeney O., Felzmann, H., Fernández de Uzquiano, E., Lievevrouw, E., Marelli, L., Mattsson, T., Pulice, E., Lúcia Raposo, V., Robienski, J., Penasa, S., Van Hoyweghen, I., Rothmar HJ.,
Publié dans: European Public Law, 2020, ISSN 1354-3725
Éditeur: Kluwer Law International

Health Information Counselors Help Avoid Automatized Decisions in Health Care

Auteurs: Iñigo de Miguel Beriain
Publié dans: Academic Medicine, Numéro 94/5, 2019, Page(s) 610, ISSN 1040-2446
Éditeur: Lippincott Williams & Wilkins Ltd.
DOI: 10.1097/acm.0000000000002644

Visual and biometric surveillance in the EU. Saying ‘no’ to mass surveillance practices?

Auteurs: Paul De Hert, Georgiosc Bouchagiar
Publié dans: Information Polity - Special Numéro: Questioning Modern Surveillance Technologies: Ethical and Legal Challenges of Emerging Information and Communication Technologies, Numéro Volume 27, Numéro No 2, 2022, ISSN 1570-1255
Éditeur: IOS Press
DOI: 10.3233/ip-211525

We should not vaccinate the young to protect the old: a response to Giubilini, Savulescu, and Wilkinson

Auteurs: Iñigo de Miguel Beriain
Publié dans: Journal of Law and the Biosciences, Numéro 8/1, 2021, ISSN 2053-9711
Éditeur: Oxford University Press
DOI: 10.1093/jlb/lsab015

Vaccination certificates, immunity passports, and test-based travel licences: Ethical, legal, and public health issues

Auteurs: Íñigo de Miguel Beriain, Jon Rueda
Publié dans: Travel Medicine and Infectious Disease, Numéro 42, 2021, Page(s) 102079, ISSN 1477-8939
Éditeur: Elsevier BV
DOI: 10.1016/j.tmaid.2021.102079

Policing the smart home: The internet of things as ‘invisible witnesses’

Auteurs: Lachlan Urquhart, Diana Miranda, Lena Podoletz,
Publié dans: Information Polity - Special Numéro: Questioning Modern Surveillance Technologies: Ethical and Legal Challenges of Emerging Information and Communication Technologies, Numéro Volume 27, Numéro No 2, 2022, ISSN 1570-1255
Éditeur: IOS Press
DOI: 10.3233/ip-211541

Power in the modern ‘surveillance society’: From theory to methodology

Auteurs: Catharina Rudschies
Publié dans: Information Polity - Special Numéro: Questioning Modern Surveillance Technologies: Ethical and Legal Challenges of Emerging Information and Communication Technologies, Numéro Volume 27, Numéro No 2, 2022, ISSN 1570-1255
Éditeur: IOS Press
DOI: 10.3233/ip-211536

Machine learning in the EU health care context: exploring the ethical, legal and social issues

Auteurs: Iñigo de Miguel, Begoña Sanz, Guillermo Lazcoz
Publié dans: Information, Communication & Society, Numéro 23/8, 2020, Page(s) 1139-1153, ISSN 1369-118X
Éditeur: Routledge
DOI: 10.1080/1369118x.2020.1719185

Non-peer reviewed articles (1)

An essay on complex problems and simple solutions: Techno-fallacies of the information age

Auteurs: Gary T. Marx
Publié dans: Information Polity - Special Numéro: Questioning Modern Surveillance Technologies: Ethical and Legal Challenges of Emerging Information and Communication Technologies, Numéro Volume 27, Numéro No 2, 2022, ISSN 1570-1255
Éditeur: IOS Press
DOI: 10.3233/ip-229007

Book chapters (1)

A discussion on ethical cybersecurity issues in digital service chains

Auteurs: Tronnier Frédéric, Pape Sebastian, Löbner Sascha, Rannenberg Kai
Publié dans: Cybersecurity of Digital Service Chains, Numéro Volume 13300, 2022, Page(s) 222-256, ISBN 978-3-031-04036-8
Éditeur: Springer
DOI: 10.1007/978-3-031-04036-8_10

Conference proceedings (2)

The concept of fairness in the GDPR: a linguistic and contextual interpretation

Auteurs: Gianclaudio Malgieri
Publié dans: Proceedings of the 2020 Conference on Fairness, Accountability, and Transparency, 2020
Éditeur: Association for Computing Machinery
DOI: 10.1145/3351095.3372868

Multi-layered explanations from algorithmic impact assessments in the GDPR

Auteurs: Margot E. Kaminski, Gianclaudio Malgieri
Publié dans: Proceedings of the 2020 Conference on Fairness, Accountability, and Transparency, 2020, Page(s) 68-79, ISBN 9781450369367
Éditeur: ACM
DOI: 10.1145/3351095.3372875

Other (2)

Creating a citizens' information pack on ethical and legal issues around ICTs: what should be included?

Auteurs: Asine, Janice; Baibarac-Duignan, Coralie; Broglio, Elisabetta; Castañeda, Alexandra; Feord, Helen; Freyburg, Linda; Leppée, Marcel; Matheus, Andreas; Camara Oliveira, Marta; Pavlakis, Christoforos; Peira, Jaume; Soacha, Karen; Thuermer, Gefion; Vohland, Katrin; Wagenknecht, Katherin; Woods, Tim; Zourou, Katerina; Caruso, Federico; Duerinckx, Annelies; Klimczuk, Andrzej; Sterken, Mieke; Berti Sum
Publié dans: 2020
Éditeur: Museum für Naturkunde Berlin
DOI: 10.5281/zenodo.3967280

Towards a Better Understanding of Identification, Pseudonymization, and Anonymization

Auteurs: Bud P. Bruegger, ULD
Publié dans: 2021, Page(s) 1-116
Éditeur: Unabhängiges Landeszentrum für Datenschutz, ULD