Participatory Approaches to a New Ethical and Legal Framework for ICT

Leistungen

Handbook for Journalists
Issues and gap analysis on data commercialisation in the context of ICT research and innovation

Issues and gap analysis and Section of the Guidelines devoted to data commercialisation in the context of ICT research and innovation

Guidelines on Data Protection ELI in ICT Research and Innovation
Code of Conduct for Responsible Research and Innovation
JCR indexed journal publishing the papers corresponding to the security and cybersecurity workshop
JCR indexed journal publishing the papers corresponding to the workshop on commercialisation
Online version of The Guidelines Produced and working

D59 Online version of The Guidelines Produced and working UPVEHU DBTAn online version of The Guidelines will serve to make the outcome easier to use for endusers and stakeholders It will be include cross references and links Short videos will help end users gain basic knowledge about the main issues in a simple way

Dissemination, communication and exploitation plan

Dissemination communication and exploitation plan

Report on the surveys, training courses and webinars

Report on the surveys training courses and webinars

JCR indexed journal publishing the papers corresponding to the workshop on data protection ethical issues
Citizens Info Pack
Journalistic publications by OBCT, VoxEurop, and other media outlets engaged in the project

Journalistic publications by OBCT VoxEurop and other media outlets engaged in the project

Management guidelines
Report on the Governance of ICT data protection ELI.

Report on the Governance of ICT data protection ELI

Report on the Implementation of the Communication Strategy
JCR indexed journal publishing the papers corresponding to the Informed Consent workshop
Issues and gaps analysis on informed consent in the context in ICT research and Innovation

Issues and gaps analysis on the regulation and Section of Guidelines related to informed consent in the context of ICT research and innovation

Critical Analysis on the ICT Data Protection Regulatory Framework
Issues and gap analysis security and cybersecurity ELI in the context of ICT research and innovation

Section of the Guidelines devoted to security and cybersecurity ELI in the context of ICT research and innovation

Data management plan

Website and social media tools

Veröffentlichungen

Ownership Of Databases: Personal Data Protection And Intellectual Property Rights On Databases

Autoren: Gemma Minero Alejandre
Veröffentlicht in: European Review of Private Law, Issue Volume 29, Issue 5, 2021, Page(s) 733 – 756, ISSN 1875-8371
Herausgeber: Wolters Kluwer
DOI: 10.21248/gups.64578

Immunity passports, fundamental rights and public health hazards: a reply to Brown et al

Autoren: Iñigo de Miguel Beriain, Jon Rueda
Veröffentlicht in: Journal of Medical Ethics, Issue 46/10, 2020, Page(s) 660-661, ISSN 0306-6800
Herausgeber: BMJ Publishing Group
DOI: 10.1136/medethics-2020-106814

Questioning the EU proposal for an Artificial Intelligence Act: The need for prohibitions and a stricter approach to biometric surveillance

Autoren: Irena Barkane
Veröffentlicht in: Information Polity - Special Issue: Questioning Modern Surveillance Technologies: Ethical and Legal Challenges of Emerging Information and Communication Technologies, Issue Volume 27, Issue No 2, 2022, ISSN 1570-1255
Herausgeber: IOS Press
DOI: 10.3233/ip-211524

Between formality and informality: A critical study of the integration of drones within the Neuchâtel police force

Autoren: Silvana Pedrozo, Francisco Klauser
Veröffentlicht in: Information Polity - Special Issue: Questioning Modern Surveillance Technologies: Ethical and Legal Challenges of Emerging Information and Communication Technologies, Issue Volume 27, Issue No 2, 2022, ISSN 1570-1255
Herausgeber: IOS Press
DOI: 10.3233/ip-211533

Accountability by design in technology research

Autoren: Ben Wagner
Veröffentlicht in: Computer Law & Security Review, Issue 37, 2020, Page(s) 105398, ISSN 0267-3649
Herausgeber: Pergamon Press Ltd.
DOI: 10.1016/j.clsr.2020.105398

Building up the “Accountable Ulysses” model. The impact of GDPR and national implementations, ethics, and health-data research: Comparative remarks

Autoren: Denise Amram
Veröffentlicht in: Computer Law & Security Review, Issue 37, 2020, Page(s) 105413, ISSN 0267-3649
Herausgeber: Pergamon Press Ltd.
DOI: 10.1016/j.clsr.2020.105413

Data protection, scientific research, and the role of information

Autoren: Rossana Ducato
Veröffentlicht in: Computer Law & Security Review, Issue 37, 2020, Page(s) 105412, ISSN 0267-3649
Herausgeber: Pergamon Press Ltd.
DOI: 10.1016/j.clsr.2020.105412

The European PNR Directive as an instance of pre-emptive, risk-based algorithmic security and its implications for the regulatory framework

Autoren: Elisa Orrù
Veröffentlicht in: Information Polity - Special Issue: Questioning Modern Surveillance Technologies: Ethical and Legal Challenges of Emerging Information and Communication Technologies, Issue Volume 27, Issue No 2, 2022, ISSN 1570-1255
Herausgeber: IOS Press
DOI: 10.3233/ip-211531

The Legal Regulation of Digital Wealth: Commerce, Ownership and Inheritance of Data

Autoren: José Antonio Castillo Parrilla
Veröffentlicht in: European Review of Private Law, Issue Volume 29, Issue 5, 2021, Page(s) 807 – 830, ISSN 1875-8371
Herausgeber: Wolters Kluwer
DOI: 10.21248/gups.64581

The genomic data deficit: On the need to inform research subjects of the informational content of their genomic sequence data in consent for genomic research

Autoren: Dara Hallinan
Veröffentlicht in: Computer Law & Security Review, Issue 37, 2020, Page(s) 105427, ISSN 0267-3649
Herausgeber: Pergamon Press Ltd.
DOI: 10.1016/j.clsr.2020.105427

The Quality of Life: Protecting Non-personal Interests and Non-personal Data in the Age of Big Data

Autoren: Bart Van Der Sloot
Veröffentlicht in: European Review of Private Law, Issue Volume 29, Issue 5, 2021, Page(s) 757 – 784, ISSN 1875-8371
Herausgeber: Wolters Kluwer
DOI: 10.21248/gups.64579

Culling the FLoC: Market forces, regulatory regimes and Google’s (mis)steps on the path away from targeted advertising

Autoren: David Eliot, David Murakami Wood
Veröffentlicht in: Information Polity - Special Issue: Questioning Modern Surveillance Technologies: Ethical and Legal Challenges of Emerging Information and Communication Technologies, Issue Volume 27, Issue No 2, 2022, ISSN 1570-1255
Herausgeber: IOS Press
DOI: 10.3233/ip-211535

Responsible application of artificial intelligence to surveillance: What prospects?

Autoren: Roger Clarke
Veröffentlicht in: Information Polity - Special Issue: Questioning Modern Surveillance Technologies: Ethical and Legal Challenges of Emerging Information and Communication Technologies, Issue Volume 27, Issue No 2, 2022, ISSN 1570-1255
Herausgeber: IOS Press
DOI: 10.3233/ip-211532

A Consumer Law Perspective on the Commercialization of Data

Autoren: Mateja Durovic, Franciszek Lech
Veröffentlicht in: European Review of Private Law, Issue Volume 29, Issue 5, 2021, Page(s) 701 – 732, ISSN 1875-8371
Herausgeber: Wolters Kluwer
DOI: 10.21248/gups.64577

Emotional AI: Legal and ethical challenges

Autoren: Thomas Gremsl, Elisabeth Hödl
Veröffentlicht in: Information Polity - Special Issue: Questioning Modern Surveillance Technologies: Ethical and Legal Challenges of Emerging Information and Communication Technologies, Issue Volume 27, Issue No 2, 2022, ISSN 1570-1255
Herausgeber: IOS Press
DOI: 10.3233/ip-211529

Valoración algorítmica ante los derechos humanos y el Reglamento General de Protección de Datos: el caso SyRI

Autoren: Guillermo Lazcoz Moratinos, José Antonio Castillo Parrilla
Veröffentlicht in: Revista Chilena de Derecho y Tecnología, Issue 9/1, 2020, Page(s) 207, ISSN 0719-2584
Herausgeber: Universidad de Chile
DOI: 10.5354/0719-2584.2020.56843

The Geneva Statement on Heritable Human Genome Editing: A Criticism

Autoren: Íñigo de Miguel Beriain
Veröffentlicht in: Trends in Biotechnology, 2020, ISSN 0167-7799
Herausgeber: Elsevier BV
DOI: 10.1016/j.tibtech.2020.11.004

‘Digital pills’ for mental diseases: an ethical and social analysis of the issues behind the concept

Autoren: Iñigo de Miguel Beriain, Marina Morla González
Veröffentlicht in: Journal of Law and the Biosciences, 2020, ISSN 2053-9711
Herausgeber: Oxford University Press
DOI: 10.1093/jlb/lsaa040

The sensitive nature of facial recognition: Tensions between the Swedish police and regulatory authorities

Autoren: Marie Eneman, Jan Ljungberg, Elena Raviola, Bertil Rolandsson
Veröffentlicht in: Information Polity - Special Issue: Questioning Modern Surveillance Technologies: Ethical and Legal Challenges of Emerging Information and Communication Technologies, Issue Volume 27, Issue No 2, 2022, ISSN 1570-1255
Herausgeber: IOS Press
DOI: 10.3233/ip-211538

Information privacy, impact assessment, and the place of ethics

Autoren: Charles D. Raab
Veröffentlicht in: Computer Law & Security Review, Issue 37, 2020, Page(s) 105404, ISSN 0267-3649
Herausgeber: Pergamon Press Ltd.
DOI: 10.1016/j.clsr.2020.105404

What Can We Do with the Data of Deceased People? A Normative Proposal

Autoren: Iñigo de Miguel Beriain, Aliuska Duardo-Sánchez, José Castillo Parrilla
Veröffentlicht in: European Review of Private Law, Issue Volume 29, Issue 5, 2021, Page(s) 785 – 806, ISSN 1875-8371
Herausgeber: Wolters Kluwer
DOI: 10.21248/gups.64580

Gene editing and disabled people: a response to Felicity Boardman

Autoren: Iñigo de Miguel Beriain
Veröffentlicht in: Journal of Community Genetics, Issue 11/3, 2020, Page(s) 241-243, ISSN 1868-310X
Herausgeber: Springer Verlag
DOI: 10.1007/s12687-020-00460-w

Introduction to the Special Issue: Questioning Modern Surveillance Technologies: Ethical and Legal Challenges of Emerging Information and Communication Technologies

Autoren: Johann Čas,Paul De Hert, Maria Graziac Porcedda, Charles D. Raab
Veröffentlicht in: Information Polity - Special Issue: Questioning Modern Surveillance Technologies: Ethical and Legal Challenges of Emerging Information and Communication Technologies, Issue Volume 27, Issue No 2, 2022, ISSN 1570-1255
Herausgeber: IOS Press
DOI: 10.3233/ip-229006

Automated decision-making in the EU Member States: The right to explanation and other “suitable safeguards” in the national legislations

Autoren: Gianclaudio Malgieri
Veröffentlicht in: Computer Law & Security Review, Issue 35/5, 2019, Page(s) 105327, ISSN 0267-3649
Herausgeber: Pergamon Press Ltd.
DOI: 10.1016/j.clsr.2019.05.002

Should we have a right to refuse diagnostics and treatment planning by artificial intelligence?

Autoren: Iñigo de Miguel Beriain
Veröffentlicht in: Medicine, Health Care and Philosophy, 2020, ISSN 1386-7423
Herausgeber: Kluwer Academic Publishers
DOI: 10.1007/s11019-020-09939-2

Privacy and security by design: Comparing the EU and Israeli approaches to embedding privacy and security

Autoren: Eldar Haber, Aurelia Tamò-Larrieux
Veröffentlicht in: Computer Law & Security Review, Issue 37, 2020, Page(s) 105409, ISSN 0267-3649
Herausgeber: Pergamon Press Ltd.
DOI: 10.1016/j.clsr.2020.105409

Data protection and research: A vital challenge in the era of COVID-19 pandemic

Autoren: Gianclaudio Malgieri
Veröffentlicht in: Computer Law & Security Review, Issue 37, 2020, Page(s) 105431, ISSN 0267-3649
Herausgeber: Pergamon Press Ltd.
DOI: 10.1016/j.clsr.2020.105431

Building up the “Accountable Ulysses” model. The impact of GDPR and national implementations, ethics, and health-data research: Comparative remarks

Autoren: Denise Amram
Veröffentlicht in: Computer Law & Security Review, Issue 37, 2020, Page(s) 105413, ISSN 0267-3649
Herausgeber: Pergamon Press Ltd.
DOI: 10.1016/j.clsr.2020.105413

The genomic data deficit: On the need to inform research subjects of the informational content of their genomic sequence data in consent for genomic research

Autoren: Dara Hallinan
Veröffentlicht in: Computer Law & Security Review, Issue 37, 2020, Page(s) 105427, ISSN 0267-3649
Herausgeber: Pergamon Press Ltd.
DOI: 10.1016/j.clsr.2020.105427

Transparency by design in data-informed research: A collection of information design patterns

Autoren: Arianna Rossi, Gabriele Lenzini
Veröffentlicht in: Computer Law & Security Review, Issue 37, 2020, Page(s) 105402, ISSN 0267-3649
Herausgeber: Pergamon Press Ltd.
DOI: 10.1016/j.clsr.2020.105402

It's all linked: How communication to the public affects internet architecture

Autoren: Giancarlo Frosio
Veröffentlicht in: Computer Law & Security Review, Issue 37, 2020, Page(s) 105410, ISSN 0267-3649
Herausgeber: Pergamon Press Ltd.
DOI: 10.1016/j.clsr.2020.105410

Vulnerable data subjects

Autoren: Gianclaudio Malgieri, Jędrzej Niklas
Veröffentlicht in: Computer Law & Security Review, Issue 37, 2020, Page(s) 105415, ISSN 0267-3649
Herausgeber: Pergamon Press Ltd.
DOI: 10.1016/j.clsr.2020.105415

WHAT CAN WE EXPECT FROM THE EU LEGAL FRAMEWORK IN A PANDEMIC OUTBREAK?

Autoren: ñigo de Miguel, Elena Atienza-Macías
Veröffentlicht in: BioLaw Journal, 2020, ISSN 2284-4503
Herausgeber: University of Trento
DOI: 10.15168/2284-4503-20201s

La inteligencia artificial en el proceso penal español: un analisis de su admisibilidad sobre la base de los derechos fundamentales implicados

Autoren: Iñigo De Miguel Beriain, Miren Josune Pérez Estrada
Veröffentlicht in: Revista de Derecho de la UNED (RDUNED), Issue 25, 2020, Page(s) 531, ISSN 2255-3436
Herausgeber: UNED
DOI: 10.5944/rduned.25.2019.27013

Medicina personalizada, algoritmos predictivos y utilización de sistemas de decisión automatizados en asistencia sanitaria. Problemas éticos

Autoren: Iñigo de Miguel Beriain
Veröffentlicht in: DILEMATA - International Journal of Applied Ethics, Issue Year 11 - No 30 (May 2019), 2019, ISSN 1989-7022
Herausgeber: International Journal of Applied Ethics

An EU comparative analysis of the regulation of clinical trials supervisory bodies in the aftermath of Regulation 536/2014

Autoren: Iñigo de Miguel Beriain I., Timo, M., Chortara T., Duardo-Sánchez, A., Feeney O., Felzmann, H., Fernández de Uzquiano, E., Lievevrouw, E., Marelli, L., Mattsson, T., Pulice, E., Lúcia Raposo, V., Robienski, J., Penasa, S., Van Hoyweghen, I., Rothmar HJ.,
Veröffentlicht in: European Public Law, 2020, ISSN 1354-3725
Herausgeber: Kluwer Law International

Digital pills for mental diseases: An ethical and social analysis of the issues behind the concept

Autoren: De miguel beriain, I., Morla Gutierrez, M.
Veröffentlicht in: Journal of Law and the Biosciences, Issue Accepted for publication, 2020, ISSN 2053-9711
Herausgeber: Oxford University Press

Health Information Counselors Help Avoid Automatized Decisions in Health Care

Autoren: Iñigo de Miguel Beriain
Veröffentlicht in: Academic Medicine, Issue 94/5, 2019, Page(s) 610, ISSN 1040-2446
Herausgeber: Lippincott Williams & Wilkins Ltd.
DOI: 10.1097/acm.0000000000002644

Visual and biometric surveillance in the EU. Saying ‘no’ to mass surveillance practices?

Autoren: Paul De Hert, Georgiosc Bouchagiar
Veröffentlicht in: Information Polity - Special Issue: Questioning Modern Surveillance Technologies: Ethical and Legal Challenges of Emerging Information and Communication Technologies, Issue Volume 27, Issue No 2, 2022, ISSN 1570-1255
Herausgeber: IOS Press
DOI: 10.3233/ip-211525

We should not vaccinate the young to protect the old: a response to Giubilini, Savulescu, and Wilkinson

Autoren: Iñigo de Miguel Beriain
Veröffentlicht in: Journal of Law and the Biosciences, Issue 8/1, 2021, ISSN 2053-9711
Herausgeber: Oxford University Press
DOI: 10.1093/jlb/lsab015

Vaccination certificates, immunity passports, and test-based travel licences: Ethical, legal, and public health issues

Autoren: Íñigo de Miguel Beriain, Jon Rueda
Veröffentlicht in: Travel Medicine and Infectious Disease, Issue 42, 2021, Page(s) 102079, ISSN 1477-8939
Herausgeber: Elsevier BV
DOI: 10.1016/j.tmaid.2021.102079

Policing the smart home: The internet of things as ‘invisible witnesses’

Autoren: Lachlan Urquhart, Diana Miranda, Lena Podoletz,
Veröffentlicht in: Information Polity - Special Issue: Questioning Modern Surveillance Technologies: Ethical and Legal Challenges of Emerging Information and Communication Technologies, Issue Volume 27, Issue No 2, 2022, ISSN 1570-1255
Herausgeber: IOS Press
DOI: 10.3233/ip-211541

Power in the modern ‘surveillance society’: From theory to methodology

Autoren: Catharina Rudschies
Veröffentlicht in: Information Polity - Special Issue: Questioning Modern Surveillance Technologies: Ethical and Legal Challenges of Emerging Information and Communication Technologies, Issue Volume 27, Issue No 2, 2022, ISSN 1570-1255
Herausgeber: IOS Press
DOI: 10.3233/ip-211536

Machine learning in the EU health care context: exploring the ethical, legal and social issues

Autoren: Iñigo de Miguel, Begoña Sanz, Guillermo Lazcoz
Veröffentlicht in: Information, Communication & Society, Issue 23/8, 2020, Page(s) 1139-1153, ISSN 1369-118X
Herausgeber: Routledge
DOI: 10.1080/1369118x.2020.1719185

An essay on complex problems and simple solutions: Techno-fallacies of the information age

Autoren: Gary T. Marx
Veröffentlicht in: Information Polity - Special Issue: Questioning Modern Surveillance Technologies: Ethical and Legal Challenges of Emerging Information and Communication Technologies, Issue Volume 27, Issue No 2, 2022, ISSN 1570-1255
Herausgeber: IOS Press
DOI: 10.3233/ip-229007

A discussion on ethical cybersecurity issues in digital service chains

Autoren: Tronnier Frédéric, Pape Sebastian, Löbner Sascha, Rannenberg Kai
Veröffentlicht in: Cybersecurity of Digital Service Chains, Issue Volume 13300, 2022, Page(s) 222-256, ISBN 978-3-031-04036-8
Herausgeber: Springer
DOI: 10.1007/978-3-031-04036-8_10

The concept of fairness in the GDPR: a linguistic and contextual interpretation

Autoren: Gianclaudio Malgieri
Veröffentlicht in: Proceedings of the 2020 Conference on Fairness, Accountability, and Transparency, 2020
Herausgeber: Association for Computing Machinery
DOI: 10.1145/3351095.3372868

Multi-layered explanations from algorithmic impact assessments in the GDPR

Autoren: Margot E. Kaminski, Gianclaudio Malgieri
Veröffentlicht in: Proceedings of the 2020 Conference on Fairness, Accountability, and Transparency, 2020, Page(s) 68-79, ISBN 9781450369367
Herausgeber: ACM
DOI: 10.1145/3351095.3372875

Creating a citizens' information pack on ethical and legal issues around ICTs: what should be included?

Autoren: Asine, Janice; Baibarac-Duignan, Coralie; Broglio, Elisabetta; Castañeda, Alexandra; Feord, Helen; Freyburg, Linda; Leppée, Marcel; Matheus, Andreas; Camara Oliveira, Marta; Pavlakis, Christoforos; Peira, Jaume; Soacha, Karen; Thuermer, Gefion; Vohland, Katrin; Wagenknecht, Katherin; Woods, Tim; Zourou, Katerina; Caruso, Federico; Duerinckx, Annelies; Klimczuk, Andrzej; Sterken, Mieke; Berti Sum
Veröffentlicht in: 2020
Herausgeber: Museum für Naturkunde Berlin
DOI: 10.5281/zenodo.3967280

Towards a Better Understanding of Identification, Pseudonymization, and Anonymization

Autoren: Bud P. Bruegger, ULD
Veröffentlicht in: 2021, Page(s) 1-116
Herausgeber: Unabhängiges Landeszentrum für Datenschutz, ULD

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