Epigenetics, Experience and Responsibility: Implications for neurodevelopmental disorders

Información del proyecto

NEUROEPIGENETHICS

Identificador del acuerdo de subvención: 804881

DOI

10.3030/804881

Proyecto cerrado

Fecha de la firma de la CE 13 Diciembre 2018

Fecha de inicio 1 Enero 2019

Fecha de finalización 31 Diciembre 2023

Financiado con arreglo a

• EXCELLENT SCIENCE - European Research Council (ERC)

Coste total

€ 1 453 012,00

Aportación de la UE

€ 1 453 012,00

Coordinado por

UNIVERSITEIT ANTWERPEN
Belgium

CORDIS proporciona enlaces a los documentos públicos y las publicaciones de los proyectos de los programas marco HORIZONTE.

Los enlaces a los documentos y las publicaciones de los proyectos del Séptimo Programa Marco, así como los enlaces a algunos tipos de resultados específicos, como conjuntos de datos y «software», se obtienen dinámicamente de OpenAIRE .

Resultado final

Open Research Data Pilot (1)

Data Management Plan

Data Management Plan (Open Research Data Pilot)

Publicaciones

Peer reviewed articles (30)

Insight in the conspiracist’s mind

Autores: Sander Van de Cruys; Jo Bervoets; Stephen Gadsby; David Gijbels; Karolien Poels
Publicado en: Personality and Social Psychology Review, Edición 9, 2023, ISSN 1088-8683
Editor: SAGE Publications
DOI: 10.1177/10888683231203145

A Plea for an Experimental Philosophy of Medicine

Autores: Andreas De Block, Kristien Hens
Publicado en: Theoretical Medicine and Bioethics, 2021, ISSN 1573-0980
Editor: Springer Netherlands
DOI: 10.1007/s11017-021-09551-2

Autism as Gradual Sensorimotor Difference: From Enactivism to Ethical Inclusion.

Autores: Thomas Van Es, Jo Bervoets
Publicado en: Topoi, 2021, ISSN 1572-8749
Editor: Topoi
DOI: 10.1007/s11245-021-09779-6

A call for caution: ‘stop that’ sentiments threaten tic research, healthcare and advocacy

Autores: Christine A. Conelea; Jo Bervoets; E. Bethan Davies; Karolin Varner; Melina Malli; Daniel P. Jones; Diana Beljaars; Benjamin Nash; Matthew R. Capriotti
Publicado en: Brain, Edición 1, 2022, ISSN 0006-8950
Editor: Oxford University Press
DOI: 10.1093/brain/awac028

Parents’ views and experiences of the autism spectrum disorder diagnosis of their young child: a longitudinal interview study

Autores: Delphine Jacobs, Jean Steyaert, Kris Dierickx, Kristien Hens
Publicado en: European Child & Adolescent Psychiatry, Edición 29/8, 2020, Página(s) 1143-1154, ISSN 1018-8827
Editor: Dr. Dietrich Steinkopff Verlag
DOI: 10.1007/s00787-019-01431-4

Addressing the autism mental health crisis: the potential of phenomenology in neurodiversity-affirming clinical practices

Autores: Themistoklis Pantazakos; Gert-Jan Vanaken
Publicado en: Frontiers in Psychiatry, Edición 1, 2023, ISSN 1664-1078
Editor: Frontiers Research Foundation
DOI: 10.3389/fpsyg.2023.1225152

Macht corrumpeert zelfs de meest competente bestuurders

Autores: Emma Moormann
Publicado en: Algemeen Nederlands Tijdschrift voor Wijsbegeerte, 2020, ISSN 2352-1244
Editor: Amsterdam University Press
DOI: 10.5117/antw2020.4.019.moor

Philosophy of Science Can Prevent Manslaughter

Autores: Andreas De Block; Pierre Delaere; Kristien Hens
Publicado en: Journal of bioethical inquiry, Edición 14, 2022, ISSN 1872-4353
Editor: Journal of Bioethical Inquiry
DOI: 10.1007/s11673-022-10198-4

Going Beyond the Catch-22 of Autism Diagnosis and Research. The Moral Implications of (Not) Asking “What Is Autism?”

Autores: Jo Bervoets, Kristien Hens
Publicado en: Frontiers in Psychology, Edición 11, 2020, ISSN 1664-1078
Editor: Frontiers Research Foundation
DOI: 10.3389/fpsyg.2020.529193

Experiences of children and adolescents with attention‐deficit/hyperactivity disorder taking methylphenidate

Autores: Delphine Jacobs
Publicado en: Developmental Medicine & Child Neurology, Vol. 00, no./, p. 1-9 (2023), Edición 1, 2023, ISSN 1469-8749
Editor: Wiley
DOI: 10.1111/dmcn.15636

Ethics of returning children’s individual research findings: from principles to practice

Autores: Gert-Jan Vanaken, Ilse Noens, Herbert Roeyers, Lotte van Esch, Petra Warreyn, Jean Steyaert, Kristien Hens
Publicado en: European Child & Adolescent Psychiatry, 2020, ISSN 1018-8827
Editor: Dr. Dietrich Steinkopff Verlag
DOI: 10.1007/s00787-020-01606-4

Pregnancy Termination in the Case of an Orofacial Cleft: An Investigation of the Concept of Reproductive Autonomy

Autores: Kristien Hens, Greet Hens
Publicado en: The Cleft Palate-Craniofacial Journal, Edición 57/9, 2020, Página(s) 1134-1139, ISSN 1055-6656
Editor: Allerton Press Inc.
DOI: 10.1177/1055665620929775

The many meanings of autism: conceptual and ethical reflections

Autores: Kristien Hens
Publicado en: Developmental Medicine & Child Neurology, Edición 61/9, 2019, Página(s) 1025-1029, ISSN 0012-1622
Editor: Mac Keith Press
DOI: 10.1111/dmcn.14278

Pandemic Risk and Standpoint Epistemology: A Matter of Solidarity.

Autores: Katrien Schaubroeck; Kristien Hens
Publicado en: Health Care Analysis, Edición 6, 2022, ISSN 1573-3394
Editor: Health Care Analysis
DOI: 10.1007/s10728-021-00443-z

The Human Spectrum: A Phenomenological Enquiry within Neurodiversity

Autores: Dinah Murray; Damian Milton; Jonathan Green; Jo Bervoets
Publicado en: Murray , D , Milton , D , Green , J & Bervoets , J 2022 , ' The Human Spectrum: A Phenomenological Enquiry within Neurodiversity ' , Psychopathology . https://doi.org/10.1159/000526213, Edición 1, 2022, ISSN 0254-4962
Editor: S. Karger AG
DOI: 10.1159/000526213

Causes or Cures: What makes us think of attention issues as disorders?

Autores: Andreas De Block; Siegfried Dewitte; Kristien Hens
Publicado en: New ideas in psychology, Edición 5, 2023, ISSN 0732-118X
Editor: Pergamon Press Ltd.
DOI: 10.1016/j.newideapsych.2023.101008

Exculpation and Stigma in Tourette Syndrome. An Experimental Philosophy Study

Autores: Jo Bervoets, Jarl Kampen, Kristien Hens
Publicado en: Neuroethics, 2022, ISSN 1874-5504
Editor: Springer
DOI: 10.1007/s12152-022-09486-y

Letting Tourette's be: The importance of understanding lived experience in research and the clinic

Autores: Jo Bervoets; Diana Beljaars; Hanne De Jaegher
Publicado en: Developmental medicine and child neurology, Edición 1, 2023, ISSN 1469-8749
Editor: Wiley
DOI: 10.1111/dmcn.15545

Parents’ multi-layered expectations when requesting an Autism Spectrum Disorder assessment of their young child: an in-depth interview study

Autores: Delphine Jacobs, Jean Steyaert, Kris Dierickx, Kristien Hens
Publicado en: BMC Psychiatry, Edición 20/1, 2020, ISSN 1471-244X
Editor: BioMed Central
DOI: 10.1186/s12888-020-02806-7

Creating with ‘voice without subject’: An aesthetic reconceptualization of voice

Autores: Mariske Broeckmeyer; Leni Van Goidsenhoven
Publicado en: Qualitative Research, Edición 7, 2023, ISSN 1468-7941
Editor: SAGE Publications
DOI: 10.1177/14687941231189976

Autisme als meerduidig en politiek fenomeen: een disability studies perspecties

Autores: Leni Van Goidsenhoven, Gert-Jan Vanaken
Publicado en: Wetenschappelijk Tijdschrift Autisme, 2021, ISSN 1570-7016
Editor: SWP

Editorial: Dis/abling Gender in Crisis Times

Autores: Evelien Geerts, Josephine Hoegaerts, Kristien Hens, Daniel Blackie
Publicado en: Tijdschrift voor Genderstudies, 2022, ISSN 1388-3186
Editor: Amsterdam University Press
DOI: 10.5117/tvgn2022.1.001.geer

Listening Beyond Words: Swinging Together

Autores: Leni Van Goidsenhoven, Elisabeth De Schauwer
Publicado en: Scandinavian Journal of Disability Research, Edición 22/1, 2020, Página(s) 330-339, ISSN 1745-3011
Editor: Stockholm University Press
DOI: 10.16993/sjdr.756

The earlier, the better? An in-depth interview study on the ethics of early detection with parents of children at an elevated likelihood for autism.

Autores: Gert-Jan Vanaken; Ilse Noens; Jean Steyaert; Lotte van Esch; Petra Warreyn; Kristien Hens
Publicado en: Journal of Autism and Developmental Disorders, Edición 6, 2022, ISSN 1573-3432
Editor: Springer
DOI: 10.21203/rs.3.rs-2402282/v1

Developmental diversity: Putting the development back into research about developmental conditions

Autores: Kristien Hens; Leni Van Goidsenhoven
Publicado en: Frontiers in Psychiatry, Edición 19, 2022, ISSN 1664-0640
Editor: Frontiers Research Foundation
DOI: 10.3389/fpsyt.2022.986732

Cripping vulnerability a disability bioethics approach to the case of early autism interventions

Autores: Gert-Jan Vanaken
Publicado en: Tijdschrift voor Genderstudies, Edición 1, 2022, ISSN 2352-2437
Editor: Amsterdam University Press
DOI: 10.31234/osf.io/jerhk

The ethics of autism

Autores: Hens, Kristien; Robeyns, Ingrid; Schaubroeck, Katrien; onderzoeksprogramma Ethiek Instituut; OFR - Ethics Institute
Publicado en: Philosophy Compass, 14(1). Wiley-Blackwell, Edición 14, 2019, ISSN 1747-9991
Editor: Blackwell Publishing
DOI: 10.1111/phc3.12559

Neurogradualism: Neurodiversity Without Categorical Difference, A Case Study of Autism

Autores: Jo Bervoets
Publicado en: InterCultural Philosophy, 2022, ISSN 0254-4962
Editor: S. Karger AG
DOI: 10.11588/icp.2022.1.90132

Beyond Genes: Re-Identifiability of Proteomic Data and Its Implications for Personalized Medicine

Autores: Kurt Boonen, Kristien Hens, Gerben Menschaert, Geert Baggerman, Dirk Valkenborg, Gokhan Ertaylan
Publicado en: Genes, Edición 10/9, 2019, Página(s) 682, ISSN 2073-4425
Editor: Multidisciplinary Digital Publishing Institute (MDPI)
DOI: 10.3390/genes10090682

Microbiome in Precision Psychiatry: An Overview of the Ethical Challenges Regarding Microbiome Big Data and Microbiome-Based Interventions

Autores: Eman Ahmed, Kristien Hens
Publicado en: AJOB Neuroscience, 2021, Página(s) 1-17, ISSN 2150-7740
Editor: Taylor and Francis
DOI: 10.1080/21507740.2021.1958096

Thesis and dissertations (3)

Tourette’s seen through a theorethical lens

Autores: Jo Bervoets
Publicado en: 2023
Editor: University of Antwerp

Epigenetics and moral responsibilities for health : a philosophical exploration

Autores: Moormann, Emma
Publicado en: Edición 17, 2023
Editor: University of Antwerp

Affirming Neurodiversity: A study on the ethics of early autism detection and intervention

Autores: Gert-Jan Vanaken
Publicado en: 2023
Editor: KU Leuven

Monographic books (4)

Towards an Ethics of Autism - A Philosophical Exploration

Autores: Kristien Hens
Publicado en: 2021, ISBN 978-1-80064-232-4
Editor: Open Book Publishers
DOI: 10.11647/obp.0261

Advances in Experimental Philosophy of Medicine

Autores: Kristien Hens, Andreas De Block
Publicado en: 2023
Editor: Bloomsbury
DOI: 10.5040/9781350281554

Chance Encounters. A Bioethics for a Damaged Planet

Autores: Kristien Hens
Publicado en: 2022
Editor: Open Book Publishers
DOI: 10.11647/obp.0320

Epigenetics and Responsibility. Ethical Perspectives.

Autores: Emma Moormann, Anna Smajdor, Daniela Cutas
Publicado en: Epigenetics and Responsibility. Ethical Perspectives., 2024, ISBN 1529225426
Editor: Policy Press
DOI: 10.51952/9781529225440

Book chapters (11)

Pictures at an Exhibition: Epigenetics, Harm and the Non-Identity Problem

Autores: Anna Smajdor
Publicado en: Epigenetics and Responsibility Ethical Perspectives, 2024
Editor: Policy Press
DOI: 10.51952/9781529225440.ch004

Blaming the Mother? A Philosophical Vignette Study on (Non-)Identity, Disability and Quality of Life

Autores: Emma Moormann
Publicado en: Advances in Experimental Philosophy of Medicine, 2023
Editor: Bloomsbury Publishers
DOI: 10.5040/9781350281554.ch-012

“Writing by Prescription”: Creative Writing as Therapy and Personal Development

Autores: Leni Van Goidsenhoven, Anneleen Masschelein
Publicado en: Writing Manuals for the Masses - The Rise of the Literary Advice Industry from Quill to Keyboard, 2021, Página(s) 265-287, ISBN 978-3-030-53613-8
Editor: Springer International Publishing
DOI: 10.1007/978-3-030-53614-5_11

Introduction: Whither (Experimental) Philosophy of Medicine?

Autores: Andreas De Block, Kristien Hens
Publicado en: Advances in Experimental Philosophy of Medicine, 2023
Editor: Bloomsbury Publishing
DOI: 10.5040/9781350281554.0007

Responsibility and the Microbiome

Autores: Kristien Hens, Eman Ahmed
Publicado en: Epigenetics and Responsibility Ethical Perspectives, 2024
Editor: Policy Press
DOI: 10.51952/9781529225440.ch007

Does Exculpation Stigmatize?

Autores: Jo Bervoets, Audun Benjamin Bengtson
Publicado en: Advances in Experimental Philosophy of Medicine, 2023
Editor: Bloomsbury Publishers
DOI: 10.5040/9781350281554.ch-011

Epigenetics, Parenthood and Responsibility for Children

Autores: Daniela Cutas
Publicado en: Epigenetics and Responsibility Ethical Perspectives, 2024
Editor: Policy Press
DOI: 10.51952/9781529225440.ch005

Epigenetics, Bioethics and a Developmental Outlook on Life

Autores: Kristien Hens
Publicado en: Epigenetics and Responsibility. Ethical Perspectives, 2024
Editor: Policy Press
DOI: 10.51952/9781529225440.ch001

Epigenetics and Forward-Looking Collective Responsibility

Autores: Emma Moormann
Publicado en: Epigenetics and Responsibility Ethical Perspectives, 2024
Editor: Policy Press
DOI: 10.51952/9781529225440.ch002

Introduction. Epigenetics and Responsibility

Autores: Emma Moormann, Kristien Hens
Publicado en: Epigenetics and Responsibility. Ethical Perspectives, 2024
Editor: Policy Press
DOI: 10.51952/9781529225440.int001

Preferences need inferences. Learning, valuation, and curiosity in aesthetic experience

Autores: Sander Van de Cruys, Jo Bervoets, Agnes Moors
Publicado en: The Routledge International Handbook of Neuroaesthetics, 2022
Editor: Routledge

Non-peer reviewed articles (1)

How to talk about autism: reconciling genomics and neurodiversity

Autores: Luca Chiapperino, Kristien Hens
Publicado en: Nature Medicine, 2023, ISSN 1546-170X
Editor: Nature Publishing Group
DOI: 10.1038/s41591-023-02403-7

Other (1)

Autism and intolerance of uncertainty: an ill-fitting pair.

Autores: Jo Bervoets; Damian Milton; Sander Van de Cruys
Publicado en: Trends in Cognitive Science, Edición 1, 2021, ISSN 1364-6613
Editor: Elsevier BV
DOI: 10.1016/j.tics.2021.08.006