Living well, dying well. A research programme to support living until the end

Project Information

iLIVE

Grant agreement ID: 825731

DOI 10.3030/825731

Project closed

EC signature date 10 December 2018

Start date 1 January 2019

End date 31 December 2023

Funded under

• SOCIETAL CHALLENGES - Health, demographic change and well-being

Total cost € 4 108 817,50

EU contribution € 4 017 817,50

Coordinated by

ERASMUS UNIVERSITAIR MEDISCH CENTRUM ROTTERDAM
Netherlands

Deliverables

Documents, reports (3)

Report on the scoping literature review of economic evaluations and value frameworks in end-of-life care

A report on a literature review on costeffectiveness analyses in palliative care..

Guidance for the integration of the tool in electronic medical file systems

A description of how to integrate the tool in electronic patient file systems.

An overview of the qualitative study outcomes of the cohort study

Report in which the outcomes of the qualitative interviews that are party of the cohort study are described

Websites, patent fillings, videos etc. (2)

Training programme on using the medication tool

A brief description and training module to train doctors how to use the meciationtool.

Project website

A website for internal and external communication about the project.

Other (1)

A digital clinical tool to optimize medication management in the last phase of life to be tested in the trial

The preliminary version of a digital tool to optimize medication management.

Publications

Peer reviewed articles (6)

Methodological aspects of economic evaluations conducted in the palliative or end of life care settings: a systematic review protocol

Author(s): Claudia Fischer, Eva Chwala, Judit Simon
Published in: BMJ Open, Issue 2020;10:e035760, 2020, ISSN 2044-6055
Publisher: BMJ Publishing Group
DOI: 10.1136/bmjopen-2019-035760

Development of an international Core Outcome Set (COS) for best care for the dying person: study protocol

Author(s): Sofia C. Zambrano, Dagny Faksvåg Haugen, Agnes van der Heide, Vilma A. Tripodoro, John Ellershaw, Carl Johan Fürst, Raymond Voltz, Stephen Mason, María L. Daud, Gustavo De Simone, Kerstin Kremeike, Svandis Iris Halfdanardottir, Valgerdur Sigurdardottir, Jeremy Johnson, Simon Allan, Haroon Hafeez, Catarina Simões, Katrin Ruth Sigurdardottir, Birgit H. Rasmussen, Paula Williamson, Steffen Eychm
Published in: BMC Palliative Care, Issue 19, Article number: 184 (2020), 2020, ISSN 1472-684X
Publisher: BioMed Central
DOI: 10.1186/s12904-020-00654-6

Updating international consensus on best practice in care of the dying: A Delphi study

Author(s): McGlinchey T, Early R, Mason S, Johan-Fürst C, van Zuylen L, Wilkinson S, Ellershaw J.
Published in: Palliative Medicine, Issue Mar;37(3), 2023, Page(s) 329-342, ISSN 0269-2163
Publisher: SAGE Publications
DOI: 10.1177/02692163231152523

Facilitators and barriers of implementing end-of-life care volunteering in a hospital in five European countries: the iLIVE study

Author(s): Yildiz B, van der Heide A, Bakan M, Iversen GS, Haugen DF, McGlinchey T, Smeding R, Ellershaw J, Fischer C, Simon J, Vibora-Martin E, Ruiz-Torreras I, Goossensen A; iLIVE consortium
Published in: BMC Palliat Care, Issue Apr 2;23(1):, 2024, Page(s) 88, ISSN 1472-684X
Publisher: BioMed Central
DOI: 10.1186/s12904-024-01423-5

ILIVE Project Volunteer study. Developing international consensus for a European Core Curriculum for hospital end-of-life-care volunteer services, to train volunteers to support patients in the last weeks of life: A Delphi study

Author(s): Tamsin McGlinchey, Stephen R Mason, Ruthmarijke Smeding, Anne Goosensen, Inmaculada Ruiz-Torreras, Dagny Faksvåg Haugen, Miša Bakan, John E Ellershaw
Published in: Palliative Medicine, Issue October 20, 2021, ISSN 0269-2163
Publisher: SAGE Publications
DOI: 10.1177/02692163211045305

Live well, die well – an international cohort study on experiences, concerns and preferences of patients in the last phase of life: the research protocol of the iLIVE study

Author(s): Berivan Yildiz, Simon Allan, Misa Bakan, Pilar Barnestein-Fonseca, Michael Berger, Mark Boughey, Andri Christen Gustavo G De Simone, Martina Egloff, John Ellershaw, Eline E C M Elsten, Steffen Eychmüller, Claudia Fischer, Carl Johan Fürst, Eric C T Geijteman, Gabriel Goldraij, Anne Goossensen, Svandis Iris Halfdanardottir, Dagny Faksvåg Haugen, Christel Hedman, Tanja Hoppe, Rosemary Hughes, Gre
Published in: BMJ Open, Issue 2022;12:e057229, 2022, Page(s) e057229, ISSN 2044-6055
Publisher: BMJ Publishing Group
DOI: 10.1136/bmjopen-2021-057229