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CORDIS - Resultados de investigaciones de la UE
CORDIS

Living well, dying well. A research programme to support living until the end

CORDIS proporciona enlaces a los documentos públicos y las publicaciones de los proyectos de los programas marco HORIZONTE.

Los enlaces a los documentos y las publicaciones de los proyectos del Séptimo Programa Marco, así como los enlaces a algunos tipos de resultados específicos, como conjuntos de datos y «software», se obtienen dinámicamente de OpenAIRE .

Resultado final

Report on the scoping literature review of economic evaluations and value frameworks in end-of-life care (se abrirá en una nueva ventana)

A report on a literature review on costeffectiveness analyses in palliative care..

An overview of the effects of the volunteer programme on the experience of dying and quality of care as perceived by patients and families (se abrirá en una nueva ventana)

A report on the main outcomes of the volunteer study.

At least one submitted paper and abstract for conference on the medication study (se abrirá en una nueva ventana)

A scientific paper and abstract on the outcomes of the medication study.

One submitted paper and abstract for conference on COS development (se abrirá en una nueva ventana)

One scientific paper and abstract on the COS development.

A COS for care of dying patients (se abrirá en una nueva ventana)

The validated Core Outcome Set for care of dying patients.

Guidance for the integration of the tool in electronic medical file systems (se abrirá en una nueva ventana)

A description of how to integrate the tool in electronic patient file systems.

Report on five local culturally adapted Asset Based Community Development Care of the Dying Volunteer Services (se abrirá en una nueva ventana)

A report on five culturally adapted asset based community development of care for the dying.

An overview of factors that influence the implementation and impact of a hospital volunteer service for dying patients (se abrirá en una nueva ventana)

A report on the process of implementing a volunteer service in hospitals.

Report on the cost-effectiveness of the medication tool (se abrirá en una nueva ventana)

A report on the costeffectiveness of the medication tool.

An overview of characteristics of the cohort population (se abrirá en una nueva ventana)

Report describing the characteristics of the study participants.

At least one submitted paper and abstract for conference on cost-effectiveness (se abrirá en una nueva ventana)

A scientific paper and abstract on the outcomes of the costeffectiveness study.

A report on outcomes regarding cultural norms in end-of-life care of interviews and focus groups (se abrirá en una nueva ventana)

A report on cultural variance in outcomes of the qualitative interviews and focus groups.

An overview of the outcomes of the medication study (se abrirá en una nueva ventana)

A report that describes the main outcomes of the medication study.

An overview of the qualitative study outcomes of the cohort study (se abrirá en una nueva ventana)

Report in which the outcomes of the qualitative interviews that are party of the cohort study are described

A framework for an international quality registry for end-of-life care (se abrirá en una nueva ventana)

A report with advice on how to use the COS for registration and benchmarking.

One submitted paper and abstract on issues in recruitment, follow-up and data collection for an international cohort study in the area of end-of-life care (se abrirá en una nueva ventana)

One scientific paper and abstract on data collection processes in the project.

At least one submitted paper and abstract for conference on the cohort study (se abrirá en una nueva ventana)

A paper and abstract on the main outcomes of the cohort study.

An overview of the experiences of physicians with using the medication tool (se abrirá en una nueva ventana)

A report that describes the experiences of physicians with using the medication tool.

An overview of the quantitative study outcomes of the cohort study (se abrirá en una nueva ventana)

Report describing the main outcomes of the cohort study.

An explorative overview of the effect of the volunteer programme on care of dying patients and their families as perceived by health care professionals and volunteers (se abrirá en una nueva ventana)

A report on the experiences with collaboration with volunteers among health care professionals and volunteers.

Report about ethical issues in the recruitment and follow-up of patients and family members (se abrirá en una nueva ventana)

A report about ethical issues in the recruitment and follow-up of patient and families in the cohort study.

Report on the cost-effectiveness of the volunteer training programme (se abrirá en una nueva ventana)

A report on the costeffectiveness of the volunteer programme.

Eight project newsletters (se abrirá en una nueva ventana)

Regular newsletters to present the project to the outside world.

At least one submitted paper and abstract for conference on the volunteer study (se abrirá en una nueva ventana)

A scientific paper and abstract on the outcomes of the volunteer study.

At least one submitted paper and abstract for conference on cultural variety (se abrirá en una nueva ventana)

One scientific paper and abstract on ethical values in end-of-life care.

An overview of the qualitative study outcomes of the medication study (se abrirá en una nueva ventana)

A report describing the outcomes of the qualitative interviews that are part of the medication study

One submitted paper and abstract for conference on public engagement/citizen input (se abrirá en una nueva ventana)

One scientific paper and abstract on public engagement during the project.

Policy report on citizen input during the project (se abrirá en una nueva ventana)

A report on how the general public was engaged during the project.

Training programme on using the medication tool (se abrirá en una nueva ventana)

A brief description and training module to train doctors how to use the meciationtool.

Project website (se abrirá en una nueva ventana)

A website for internal and external communication about the project.

Publicaciones

Healthcare professionals’ perspectives on assessing selected patient-reported outcome measures in specialist palliative care institutions: a multi-country mixed-methods study (se abrirá en una nueva ventana)

Autores: Elisabeth Saly, Judit Simon, Claudia Fischer
Publicado en: BMC Palliative Care, Edición 24, 2025, ISSN 1472-684X
Editor: BioMed Central
DOI: 10.1186/s12904-025-01775-6

A core outcome set for best care for the dying person: Results of an international Delphi study and consensus meeting (se abrirá en una nueva ventana)

Autores: Sofia C. Zambrano, Martina Egloff, Valentina Gonzalez-Jaramillo, Andri Christen-Cevallos Rosero, Simon Allan, Pilar Barnestein-Fonseca, John Ellershaw, Claudia Fischer, Dagny Faksvåg Haugen, Urška Lunder, Marisa Martin-Rosello, Stephen Mason, Birgit Rasmussen, Valgerdur Sigurðardóttir, Judt Simon, Vilma A. Tripodoro, Agnes van der Heide, Lia van Zuylen, Raymond Voltz, Carl Johan Fürst, Paula
Publicado en: Palliative Medicine, Edición 39, 2024, Página(s) 163-175, ISSN 0269-2163
Editor: SAGE Publications
DOI: 10.1177/02692163241300867

Methodological aspects of economic evaluations conducted in the palliative or end of life care settings: a systematic review protocol (se abrirá en una nueva ventana)

Autores: Claudia Fischer, Eva Chwala, Judit Simon
Publicado en: BMJ Open, Edición 2020;10:e035760, 2020, ISSN 2044-6055
Editor: BMJ Publishing Group
DOI: 10.1136/bmjopen-2019-035760

Development of an international Core Outcome Set (COS) for best care for the dying person: study protocol (se abrirá en una nueva ventana)

Autores: Sofia C. Zambrano, Dagny Faksvåg Haugen, Agnes van der Heide, Vilma A. Tripodoro, John Ellershaw, Carl Johan Fürst, Raymond Voltz, Stephen Mason, María L. Daud, Gustavo De Simone, Kerstin Kremeike, Svandis Iris Halfdanardottir, Valgerdur Sigurdardottir, Jeremy Johnson, Simon Allan, Haroon Hafeez, Catarina Simões, Katrin Ruth Sigurdardottir, Birgit H. Rasmussen, Paula Williamson, Steffen Eychm
Publicado en: BMC Palliative Care, Edición 19, Article number: 184 (2020), 2020, ISSN 1472-684X
Editor: BioMed Central
DOI: 10.1186/s12904-020-00654-6

iLIVE volunteer study: Volunteer and healthcare professional perceptions of newly developed hospital end-of-life-care volunteer services, in five countries (se abrirá en una nueva ventana)

Autores: Tamsin McGlinchey, Stephen Mason, Grethe Skorpen Iversen, Dagny Faksvåg Haugen, Inmaculada Ruiz Torreras, Pilar Barnestein Fonseca, Miša Bakan, Berivan Yildiz, Ruthmarijke Smeding, Anne Goossensen, Agnes van der Heide, John Ellershaw
Publicado en: Palliative Medicine, 2025, ISSN 0269-2163
Editor: SAGE Publications
DOI: 10.1177/02692163251328197

Updating international consensus on best practice in care of the dying: A Delphi study (se abrirá en una nueva ventana)

Autores: McGlinchey T, Early R, Mason S, Johan-Fürst C, van Zuylen L, Wilkinson S, Ellershaw J.
Publicado en: Palliative Medicine, Edición Mar;37(3), 2023, Página(s) 329-342, ISSN 0269-2163
Editor: SAGE Publications
DOI: 10.1177/02692163231152523

Corrigendum to “McGlinchey T, Mason S, Skorpen Iversen G, et al. iLIVE volunteer study: Volunteer and healthcare professional perceptions of newly developed hospital end-of-life-care volunteer services, in five countries. <i>Palliative Medicine</i> . 2025;0(0). doi:10.1177/02692163251328197” (se abrirá en una nueva ventana)

Autores: no authors
Publicado en: Palliative Medicine, Edición 2025 Jul 12:, 2025, Página(s) 2692163251360181, ISSN 0269-2163
Editor: SAGE Publications
DOI: 10.1177/02692163251360181

Facilitators and barriers of implementing end-of-life care volunteering in a hospital in five European countries: the iLIVE study (se abrirá en una nueva ventana)

Autores: Yildiz B, van der Heide A, Bakan M, Iversen GS, Haugen DF, McGlinchey T, Smeding R, Ellershaw J, Fischer C, Simon J, Vibora-Martin E, Ruiz-Torreras I, Goossensen A; iLIVE consortium
Publicado en: BMC Palliat Care, Edición Apr 2;23(1):, 2024, Página(s) 88, ISSN 1472-684X
Editor: BioMed Central
DOI: 10.1186/s12904-024-01423-5

ILIVE Project Volunteer study. Developing international consensus for a European Core Curriculum for hospital end-of-life-care volunteer services, to train volunteers to support patients in the last weeks of life: A Delphi study (se abrirá en una nueva ventana)

Autores: Tamsin McGlinchey, Stephen R Mason, Ruthmarijke Smeding, Anne Goosensen, Inmaculada Ruiz-Torreras, Dagny Faksvåg Haugen, Miša Bakan, John E Ellershaw
Publicado en: Palliative Medicine, Edición October 20, 2021, ISSN 0269-2163
Editor: SAGE Publications
DOI: 10.1177/02692163211045305

Dealing With Temporality in Patients With Life-Limiting Disease: An International Qualitative Study (se abrirá en una nueva ventana)

Autores: Melanie Joshi, Guðlaug Helga Ásgeirsdóttir, Miša Bakan, Hana Kodba Čeh, Dagny Renata Faksvåg Haugen, Urška Lunder, Eva Víbora Martín, Beth Morris, Birgit H. Rasmussen, Elisabeth Romarheim, Vilma Tripodoro, Agnes van der Heide, Verónica Veloso, Berivan Yildiz, Sofía Zambrano, Julia Strupp, Raymond Voltz, null null
Publicado en: Qualitative Health Research, Edición Aug 26, 2024, ISSN 1049-7323
Editor: SAGE Publications
DOI: 10.1177/10497323241263751

Recruitment, follow-up and survival in an 11-country cohort study of patients at the end of life and their relatives (se abrirá en una nueva ventana)

Autores: Maria E. C. Schelin, Christel Hedman, Pilar Barnestein-Fonseca, Martina Egloff, John Ellershaw, Dagny Faksvåg Haugen, Claudia Fischer, Melanie Joshi, Ida J. Korfage, Urška Lunder, Stephen Mason, Judit Simon, Vilma A. Tripodoro, Berivan Yildiz, Sofia C. Zambrano, Steffen Eychmueller, Lia van Zuylen, Agnes van der Heide, Carl Johan Fürst, null null
Publicado en: PLOS ONE, Edición 20, 2025, Página(s) e0317002, ISSN 1932-6203
Editor: Public Library of Science
DOI: 10.1371/journal.pone.0317002

‘Someone must do it’: multiple views on family’s role in end-of-life care – an international qualitative study (se abrirá en una nueva ventana)

Autores: Vilma A. Tripodoro, Verónica I. Veloso, Eva Víbora Martín, Hana Kodba-Čeh, Miša Bakan, Birgit H. Rasmussen, Sofía C. Zambrano, Melanie Joshi, Svandis Íris Hálfdánardóttir, Guðlaug Helga Ásgeirsdóttir, Elisabeth Romarheim, Dagny Faksvåg Haugen, Tamsin McGlinchey, Berivan Yildiz, Pilar Barnestein-Fonseca, Anne Goossensen, Urška Lunder, Agnes van der Heide
Publicado en: Palliative Care and Social Practice, Edición 18, 2024, ISSN 2632-3524
Editor: SAGE
DOI: 10.1177/26323524241260425

Live well, die well – an international cohort study on experiences, concerns and preferences of patients in the last phase of life: the research protocol of the iLIVE study (se abrirá en una nueva ventana)

Autores: Berivan Yildiz, Simon Allan, Misa Bakan, Pilar Barnestein-Fonseca, Michael Berger, Mark Boughey, Andri Christen Gustavo G De Simone, Martina Egloff, John Ellershaw, Eline E C M Elsten, Steffen Eychmüller, Claudia Fischer, Carl Johan Fürst, Eric C T Geijteman, Gabriel Goldraij, Anne Goossensen, Svandis Iris Halfdanardottir, Dagny Faksvåg Haugen, Christel Hedman, Tanja Hoppe, Rosemary Hughes, Gre
Publicado en: BMJ Open, Edición 2022;12:e057229, 2022, Página(s) e057229, ISSN 2044-6055
Editor: BMJ Publishing Group
DOI: 10.1136/bmjopen-2021-057229

Barriers and drivers of public engagement in palliative care, Scoping review (se abrirá en una nueva ventana)

Autores: Pilar Barnestein-Fonseca, Alicia Nebro-Gil, Virginia P. Aguiar-Leiva, Eva Víbora-Martín, Inmaculada Ruiz-Torreras, Maria Luisa Martín-Rosello, Agnes van der Heide, Vilma Tripodoro, Verónica I. Veloso, Silvina Montilla, Gustavo G. De Simone, Gabriel Goldraij, Mark Boughey, Michael Berger, Claudia Fischer, Judit Simon, Raymond Voltz, Melanie Joshi, Julia Strupp, Svandis Iris Halfdanardottir, Val
Publicado en: BMC Palliative Care, Edición 23, 2024, ISSN 1472-684X
Editor: BioMed Central
DOI: 10.1186/s12904-024-01424-4

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