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Palliative care in Parkinson’s disease

Project description

DEENESFRITPL

Europe unites for optimal care in Parkinson's disease

Patients suffering from Parkinson's disease (PD) exhibit a plethora of motor and non-motor complications that lead to the progressive loss of autonomy in daily living activities. This causes significant physical and psychosocial issues, hampering the continuity of care. The EU-funded PD_Pal project is working on a new model of palliative care that can be easily implemented when disability limits patient mobility and independence. The project will undertake a randomised controlled trial to validate the effectiveness of the proposed model of palliative care and transfer the generated knowledge to all European countries. Through novel PD management guidelines, PD_Pal researchers envision optimal care protocols for PD patients across Europe.

Objective

Parkinson’s Disease (PD) is the second most common neurodegenerative disorder and is characterized in its advanced stages by motor and non-motor complications causing progressive loss of autonomy in activities of daily living, poor quality of life, marked caregiver distress, and high utilization of medical services. Similar to cancer patients, albeit for much longer duration, PD patients have considerable (and mounting) unmet physical, psychosocial and spiritual needs, and experience great problems with continuity of care.
The overall ambition of PD_Pal is to validate a new model of palliative care which would be easily integrated with traditional management when disability limits mobility and independence. PD_Pal will provide an added layer of support to patients, their loved ones, and treating clinicians.
PD_Pal randomised controlled trial will provide evidence on the effectiveness of specialized, multidisciplinary, outpatient palliative care intervention (Advance Care Planning) in improving family satisfaction, symptom management and quality of life. PD_Pal will also further prove the feasibility and economic sustainability of this approach by the active involvement of patients lay associations as well relevant medical societies.
PD_Pal team includes leading experts in both neurology and palliative care with key-roles in both national and international PD working groups. PD_Pal will develop a new set of evidence-based Guidelines and a Massive Online Course (MOOC) for Palliative Care in PD involving in the process experts from the European Association for Palliative Care, the European Academy of Neurology and the Movement Disorders Society. Thus, PD_Pal is best positioned to transfer this knowledge to all European countries and ensure that “PD_Pal Guidelines” will translate into best practice. The PD_Pal MOOC “Best Care for People with Late Stage Parkinson” will be integrated into the WHO supported interdisciplinary post-graduate palliative care curriculum.

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Programme(s)

Topic(s)

Call for proposal

H2020-SC1-BHC-2018-2020

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Sub call

H2020-SC1-2018-Single-Stage-RTD

Funding Scheme

RIA - Research and Innovation action

Coordinator

UNIVERSITA DEGLI STUDI DI PADOVA
Net EU contribution
€ 600 000,00
Address
VIA 8 FEBBRAIO 2
35122 Padova
Italy

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Region
Nord-Est Veneto Padova
Activity type
Higher or Secondary Education Establishments
Links
Total cost
€ 600 000,00

Participants (10)

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Last update: 11 December 2023

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Permalink: https://cordis.europa.eu/project/id/825785

European Union, 2024