Palliative care in Parkinson’s disease

Livrables

Timing and indication for referrals (Guidelines)

First version of the Guidelines submitted for publication

Report on status of posting results

Report on the status of posting results in the study registryies

Indicators for palliative care

report on methodology and findings

Final report on dissemination activities
PD Palliative Economics analysis

A comprehensive report with the economic and social aspects of the study

Timing and indication for referrals (Updated Guidelines)

Updated Guidelines submitted for publication

Website, Social media accounts, press release

MOOC

The educational platform and its description and a report from the results of the provision of online courses (educators’ and students’ feedback, achievement of educational goals etc.)

Publications

Technology-Enabled Care: Integrating Multidisciplinary Care in Parkinson's Disease Through Digital Technology

Auteurs: Raquel Luis-Martínez, Mariana H. G. Monje, Angelo Antonini, Álvaro Sánchez-Ferro, Tiago A. Mestre
Publié dans: Frontiers in Neurology, Numéro 11, 2020, ISSN 1664-2295
Éditeur: Frontiers Research Foundation
DOI: 10.3389/fneur.2020.575975

"""Education on Palliative care for Parkinson patients: development of the “Best Care for People with Late-Stage Parkinson’s Disease” curriculum toolkit"""

Auteurs: Dimitrios Gatsios, , Angelo Antonini, Giovanni Gentile, Spyridon Konitsiotis, Dimitrios Fotiadis, Eirini Nixina, Pille Taba, Christiane Weck, Stefan Lorenzl, Katharina Maria Lex, Piret Paal, on behalf of the PD_Pal consortium
Publié dans: BMC Medical Education, Numéro 21, 2021, Page(s) 1, ISSN 1741-7015
Éditeur: BioMed Central
DOI: 10.1186/s12909-021-02964-6

Foot Pressure Wearable Sensors for Freezing of Gait Detection in Parkinson’s Disease

Auteurs: Andrea Marcante, Roberto Di Marco, Giovanni Gentile, Clelia Pellicano, Francesca Assogna, Francesco Ernesto Pontieri, Gianfranco Spalletta, Lucia Macchiusi, Dimitris Gatsios, Alexandros Giannakis, Maria Chondrogiorgi, Spyridon Konitsiotis, Dimitrios I. Fotiadis, Angelo Antonini
Publié dans: Sensors, Numéro 21/1, 2021, Page(s) 128, ISSN 1424-8220
Éditeur: Multidisciplinary Digital Publishing Institute (MDPI)
DOI: 10.3390/s21010128

Personalized Care in Late-Stage Parkinson’s Disease: Challenges and Opportunities

Auteurs: Margherita Fabbri, Miguel Coelho,Michela Garon, Roberta Biundo,Tiago A. Mestre, Angelo Antonini and on behalf of iCARE-PD Consortium
Publié dans: Journal of Personalized Medicine, Numéro Volume 12, Numéro 5, 2022, ISSN 2075-4426
Éditeur: MDPI
DOI: 10.3390/jpm12050813

Advance Care Planning and Care Coordination for People With Parkinson's Disease and Their Family Caregivers—Study Protocol for a Multicentre, Randomized Controlled Trial

Auteurs: Marjan J. Meinders, Giovanni Gentile, Anette E. Schrag, Spiros Konitsiotis, Carsten Eggers, Pille Taba, Stefan Lorenzl, Per Odin, Kristina Rosqvist, K. Ray Chaudhuri, Angelo Antonini, Bastiaan R. Bloem, Marieke M. Groot
Publié dans: Frontiers in Neurology, Numéro 12, 2021, ISSN 1664-2295
Éditeur: Frontiers Research Foundation
DOI: 10.3389/fneur.2021.673893

The state of telemedicine for persons with Parkinson's disease

Auteurs: Robin van den Bergh, Bastiaan R. Bloem, Marjan J. Meinders, Luc J.W. Evers
Publié dans: Current Opinion in Neurology, Numéro Publish Ahead of Print, 2021, ISSN 1350-7540
Éditeur: Lippincott Williams & Wilkins Ltd.
DOI: 10.1097/wco.0000000000000953

Access and Attitudes Toward Palliative Care Among Movement Disorders Clinicians.

Auteurs: Miyasaki, J. M., Lim, S. Y., Chaudhuri, K. R., Antonini, A., Piemonte, M., Richfield, E., ... & Task Force on Palliative Care of the International Parkinson and Movement Disorder Society.
Publié dans: Movement Disorder, Numéro 37(1), 2021, Page(s) 182-189, ISSN 1531-8257
Éditeur: Wiley Online Library
DOI: 10.1002/mds.28773

Advance care planning in discussion: a solution or challenge with pitfalls?

Auteurs: C. Muente, C. Eggers
Publié dans: Public Health, Numéro 192, 2021, Page(s) 72-73, ISSN 0033-3506
Éditeur: Elsevier
DOI: 10.1016/j.puhe.2020.12.015

The Effect of a Multidisciplinary Blended Learning Program on Palliative Care Knowledge for Health Care Professionals Involved in the Care for People with Parkinson's Disease

Auteurs: Herma Lennaerts-Kats, Anne Ebenau, Silvia Kanters, Bastiaan R Bloem, Kris C P Vissers, Bauke W Dijkstra, Marjan J Meinders, Marieke M Groot
Publié dans: Journal of Parkinson's Disease, Numéro vol. 12, no. 8,, 2022, Page(s) pp. 2575-2584, 2022, ISSN 1877-7171
Éditeur: IOS Press
DOI: 10.3233/jpd-223539

PD_PAL: Vorstellung einer Advance-Care-Planning-Intervention für PatientInnen mit Parkinson-Syndrom und deren pflegende Angehörige [226]

Auteurs: K Lex, CE Weck, C Münte, M Widritzki, Carsten Eggers, S Lorenzl
Publié dans: 13. Kongress der Deutschen Gesellschaft für Palliativmedizin, Numéro 21 (05): e16-e17, 2020
Éditeur: © Georg Thieme Verlag KG
DOI: 10.1055/s-0040-1714993

Predictors of antidepressant and benzodiazepine treatment in Parkinson’s disease

Auteurs: G. Gentile, G. Zanotelli, L. Weis, R. Biundo, F. Sambataro, A. Antonini
Publié dans: Movement Disorders, Numéro Volume 36, suppl 1, 2021, Page(s) pp. S463-S464, ISSN 1531-8257
Éditeur: Wiley Online Library

Advance Care Planning - An (auto-) ethnographic approach

Auteurs: Muente, Paal, Widritzki, Lex, Pedrosa, Lorenzl
Publié dans: 20th German Congress for Health Care Research, 2021
Éditeur: Düsseldorf: German Medical Science GMS Publishing House
DOI: 10.3205/21dkvf107

Accessibility of end-of-life wishes – What can we learn from our Dutch neighbours?

Auteurs: Muente Catharina , Dijkstra Bauke, Groot Marieke , Meinders Marjan
Publié dans: 14th Congress of the German Society for Palliative Medicine, 2022, Page(s) e25
Éditeur: Zeitschrift für Palliativmedizin

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