Palliative care in Parkinson’s disease

Risultati finali

Timing and indication for referrals (Guidelines)

First version of the Guidelines submitted for publication

Report on status of posting results

Report on the status of posting results in the study registryies

Indicators for palliative care

report on methodology and findings

Final report on dissemination activities
PD Palliative Economics analysis

A comprehensive report with the economic and social aspects of the study

Timing and indication for referrals (Updated Guidelines)

Updated Guidelines submitted for publication

Website, Social media accounts, press release

MOOC

The educational platform and its description and a report from the results of the provision of online courses (educators’ and students’ feedback, achievement of educational goals etc.)

Pubblicazioni

Technology-Enabled Care: Integrating Multidisciplinary Care in Parkinson's Disease Through Digital Technology

Autori: Raquel Luis-Martínez, Mariana H. G. Monje, Angelo Antonini, Álvaro Sánchez-Ferro, Tiago A. Mestre
Pubblicato in: Frontiers in Neurology, Numero 11, 2020, ISSN 1664-2295
Editore: Frontiers Research Foundation
DOI: 10.3389/fneur.2020.575975

"""Education on Palliative care for Parkinson patients: development of the “Best Care for People with Late-Stage Parkinson’s Disease” curriculum toolkit"""

Autori: Dimitrios Gatsios, , Angelo Antonini, Giovanni Gentile, Spyridon Konitsiotis, Dimitrios Fotiadis, Eirini Nixina, Pille Taba, Christiane Weck, Stefan Lorenzl, Katharina Maria Lex, Piret Paal, on behalf of the PD_Pal consortium
Pubblicato in: BMC Medical Education, Numero 21, 2021, Pagina/e 1, ISSN 1741-7015
Editore: BioMed Central
DOI: 10.1186/s12909-021-02964-6

Foot Pressure Wearable Sensors for Freezing of Gait Detection in Parkinson’s Disease

Autori: Andrea Marcante, Roberto Di Marco, Giovanni Gentile, Clelia Pellicano, Francesca Assogna, Francesco Ernesto Pontieri, Gianfranco Spalletta, Lucia Macchiusi, Dimitris Gatsios, Alexandros Giannakis, Maria Chondrogiorgi, Spyridon Konitsiotis, Dimitrios I. Fotiadis, Angelo Antonini
Pubblicato in: Sensors, Numero 21/1, 2021, Pagina/e 128, ISSN 1424-8220
Editore: Multidisciplinary Digital Publishing Institute (MDPI)
DOI: 10.3390/s21010128

Personalized Care in Late-Stage Parkinson’s Disease: Challenges and Opportunities

Autori: Margherita Fabbri, Miguel Coelho,Michela Garon, Roberta Biundo,Tiago A. Mestre, Angelo Antonini and on behalf of iCARE-PD Consortium
Pubblicato in: Journal of Personalized Medicine, Numero Volume 12, Numero 5, 2022, ISSN 2075-4426
Editore: MDPI
DOI: 10.3390/jpm12050813

Advance Care Planning and Care Coordination for People With Parkinson's Disease and Their Family Caregivers—Study Protocol for a Multicentre, Randomized Controlled Trial

Autori: Marjan J. Meinders, Giovanni Gentile, Anette E. Schrag, Spiros Konitsiotis, Carsten Eggers, Pille Taba, Stefan Lorenzl, Per Odin, Kristina Rosqvist, K. Ray Chaudhuri, Angelo Antonini, Bastiaan R. Bloem, Marieke M. Groot
Pubblicato in: Frontiers in Neurology, Numero 12, 2021, ISSN 1664-2295
Editore: Frontiers Research Foundation
DOI: 10.3389/fneur.2021.673893

The state of telemedicine for persons with Parkinson's disease

Autori: Robin van den Bergh, Bastiaan R. Bloem, Marjan J. Meinders, Luc J.W. Evers
Pubblicato in: Current Opinion in Neurology, Numero Publish Ahead of Print, 2021, ISSN 1350-7540
Editore: Lippincott Williams & Wilkins Ltd.
DOI: 10.1097/wco.0000000000000953

Access and Attitudes Toward Palliative Care Among Movement Disorders Clinicians.

Autori: Miyasaki, J. M., Lim, S. Y., Chaudhuri, K. R., Antonini, A., Piemonte, M., Richfield, E., ... & Task Force on Palliative Care of the International Parkinson and Movement Disorder Society.
Pubblicato in: Movement Disorder, Numero 37(1), 2021, Pagina/e 182-189, ISSN 1531-8257
Editore: Wiley Online Library
DOI: 10.1002/mds.28773

Advance care planning in discussion: a solution or challenge with pitfalls?

Autori: C. Muente, C. Eggers
Pubblicato in: Public Health, Numero 192, 2021, Pagina/e 72-73, ISSN 0033-3506
Editore: Elsevier
DOI: 10.1016/j.puhe.2020.12.015

The Effect of a Multidisciplinary Blended Learning Program on Palliative Care Knowledge for Health Care Professionals Involved in the Care for People with Parkinson's Disease

Autori: Herma Lennaerts-Kats, Anne Ebenau, Silvia Kanters, Bastiaan R Bloem, Kris C P Vissers, Bauke W Dijkstra, Marjan J Meinders, Marieke M Groot
Pubblicato in: Journal of Parkinson's Disease, Numero vol. 12, no. 8,, 2022, Pagina/e pp. 2575-2584, 2022, ISSN 1877-7171
Editore: IOS Press
DOI: 10.3233/jpd-223539

PD_PAL: Vorstellung einer Advance-Care-Planning-Intervention für PatientInnen mit Parkinson-Syndrom und deren pflegende Angehörige [226]

Autori: K Lex, CE Weck, C Münte, M Widritzki, Carsten Eggers, S Lorenzl
Pubblicato in: 13. Kongress der Deutschen Gesellschaft für Palliativmedizin, Numero 21 (05): e16-e17, 2020
Editore: © Georg Thieme Verlag KG
DOI: 10.1055/s-0040-1714993

Predictors of antidepressant and benzodiazepine treatment in Parkinson’s disease

Autori: G. Gentile, G. Zanotelli, L. Weis, R. Biundo, F. Sambataro, A. Antonini
Pubblicato in: Movement Disorders, Numero Volume 36, suppl 1, 2021, Pagina/e pp. S463-S464, ISSN 1531-8257
Editore: Wiley Online Library

Advance Care Planning - An (auto-) ethnographic approach

Autori: Muente, Paal, Widritzki, Lex, Pedrosa, Lorenzl
Pubblicato in: 20th German Congress for Health Care Research, 2021
Editore: Düsseldorf: German Medical Science GMS Publishing House
DOI: 10.3205/21dkvf107

Accessibility of end-of-life wishes – What can we learn from our Dutch neighbours?

Autori: Muente Catharina , Dijkstra Bauke, Groot Marieke , Meinders Marjan
Pubblicato in: 14th Congress of the German Society for Palliative Medicine, 2022, Pagina/e e25
Editore: Zeitschrift für Palliativmedizin

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