Deliverables
Scientific publication 2 in the form of a submitted manuscript
An identified digital challengeDescription of an identified digital challenge
Instruction/ manual on platform useInstructionmanual on platform use
Press release 4Press release 1
Operating model proposal
Description of the draft (YTD, yet to be further developed) operating model proposal
Press release 2Scientific publication 3
Scientific publication 3 in the form of a submitted manuscript
Exploitation plan for after the projectDocument describing exploitation plan for after the project
Scientific publication 1Scientific publications in the form of a submitted manuscript
Press release 3Document describing the setup roles within and processes of the CoP
Dissemination progress report 1Document describing activities and progress of Dissemination YTD
Report 1 from workshopsDocument summarizing workshop notes and conclusions
Dissemination progress report 2Document describing activities and progress of Dissemination YTD
Report on suitable role of patients/citizensReport on suitable role of patientscitizens
Reports on the consultationsDocument listing previous and on-going Projects that PiPPi has engaged with and learned from, including summarized insights gained.
Report 3 from workshopsDocument summarizing workshop notes and conclusions
Project summary report 4A 12 page summary containing major activities acomplisments and desicions made time plan adjustment identification and report on conserns
Project summary report 6A 12 page summary containing major activities acomplisments and desicions made time plan adjustment identification and report on conserns
Final diss./ comm. planDocument describing overall Dissemination and Communication plan
Report 2 from workshopsDocument summarizing workshop notes and conclusions
White paper on findings and conclusionsProject summary report 2
A 1-2 page summary containing: major activities, acomplisments and desicions made, time plan adjustment , identification and report on conserns.
Report on the procedures and criteria that will be used to identify/recruit patient stakeholdersDeliverable 2.4 will explain the procedures and criteria that will be used to identify/recruit patient stakeholders involved in the projects.
A core set of outcome indicatorsDocument describing a core set of outcome indicators
Report on stakeholder identities and roleThe deliverable will be a document that will explain the identities roles and context of the stakeholders It will also when applicable clarify and define the procedures and criteria that will be used to identifyrecruit patient stakeholders involved
Report from Kick-off meetingKick off meeting notes including; agenda, participants and primary outcomes
Dissemination progress report 4Document describing activities and progress of Dissemination YTD
Report on lessons-learnedDocument concluding lessons-learned resulting from of the background analyses.
A project plan for a cross-border PCP or PPIA high level project plan for a crossborder PCP or PPI
Results on validationDissemination progress report 5
Document describing activities and progress of Dissemination YTD
Report on the PIPPI platform system requirementDocument concluding system requirements for the PIPPI platform
Project summary report 3A 1-2 page summary containing: major activities, acomplisments and desicions made, time plan adjustment , identification and report on conserns.
Project summary report 5A 12 page summary containing major activities acomplisments and desicions made time plan adjustment identification and report on conserns
Project handbook/mamagement structureDocument describing the management procedures and processes, including such as meeting governance, documentation principles and continuous collaboration, of the Project.
Final operating modelDescription of Final operating model
A publication/ report on the feasibility of the PIPPI core set of outcomesA publicationreport on the feasibility of the PIPPI core set of outcomes
Updates on stakeholder engagement activitiesAn updated list of stakeholdernetwork interactions throughout out the duration of the entire Project
Dissemination progress report 3Document describing activities and progress of Dissemination YTD
Project summary report 1A 1-2 page summary containing: major activities, accomplishments and decisions made, time plan adjustment, identification and report on concerns.
A data management plan will be produced, taking into account the original plan set out in the application. An explanation/ description will be added of how: All of the data intended to be processed is relevant and limited to the purposes of the research project (in accordance with the ‘data minimisation ‘principle). The technical and organisational measures that will be implemented to safeguard the rights and freedoms of the data subjects involved as stakeholder/advisor patients The anonymisation/ pseudonymisation techniques that will be implemented In case of further processing of previously collected personal data, an explicit confirmation that the beneficiary has lawful basis for the data processing and that the appropriate technical and organisational measures are in place to safeguard the rights of the data subjects. The report will also include a description of the evaluation done regarding the ethics risks and an opinion of the data protection measures conducted and whether it should be done in accordance with art.35 General Data Protection Regulation 2016/679. The information included in 1.9 will include results and work conducted in WP2 and WP4 (under the responsibility of the respective WP leader).
Publications
Author(s):
Jan A. Hazelzet; Vikrant Sihag; Suzan Ikävalko; Mariet Nouri Janian; Tanja Stamm; Elettra Oleari; Rossana Alessandrello; Margaret R. Andrews; Erik M. van Raaij; Martina Ahlberg; Romualdo Ramos; Eva Aurín; Bahar Bakir; Desmond Carter; Victòria Valls-Comamalal; Maarten M. Timmermann
Published in:
Issue 1, 2019
Publisher:
medRxiv, Cold Spring Harbor Laboratory (CSHL)
DOI:
10.1101/2020.01.17.19015107
Author(s):
Andrews, Margaret R; Stamm, Tanja
Published in:
2021
Publisher:
Zenodo
DOI:
10.5281/zenodo.4905494
Author(s):
Andrews, Margaret R; Long, Preston A; Ahlberg, Martina; Balvert, Fred; Alessandrello, Rossana; Lazzari, Agnese; Timmermann, Maarten; Nouri Janian, Mariet; Rantaniska, Minerva; Valls-Comamala, Victoria; Stamm, Tanja A
Published in:
2022
Publisher:
Zenodo
DOI:
10.5281/zenodo.6596471
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