Implementation of early detection and early intervention service delivery in infants at risk for cerebral palsy to promote infants’ psychomotor development and maternal health

Deliverables

Overview of the tools and processes that UniPi will set up to manage the project including site specific project activities, administrative and financial activities, clinical activities, and ethics issues. Description of the methods being adopted in the project to manage the work packages, share and store working documents, communicate amongst consortium members

Update of DECO strategies

A list of DECO activities already carried out will be provided and an update of the DECO activities for the second period will be planned and updated.

IP reports 2

A second IP report containing the description of main activities and findings and IP strategies adopted in the second period 1936 months of project activities will be provided

ES knowledge progress report

A report will provide the list of all the ES toolkit activities for each site planned and provided to the professionals for the ES clinical implementation

EI knowledge training progress report

A report will provide the list of all the EI toolkit activities for each site planned and provided to the professionals for the EI clinical implementation

ED knowledge training reports

A report will provide the list of all the ED toolkit activities for each site planned and provided to the professionals for the ED clinical implementation

IP report 1

A first IP report containing the description of main activities and findings and IP strategies adopted in the first 18 months of project activities will be provided.

DECO strategies

A detailed plan of DECO strategies will be provided. All the consortium activities aimed to reach the maximum impact of key stakeholders, associations, governments and final users will be planned and listed.

Questionnaires and tests for ED knowledge uptake

Questionnaires and tests for ED knowledge uptake will be provided. They will explore the practitioners’ self-evaluation of current ED practices and readiness to change (ED pre-training test) and on how the learned ED knowledge has prompted behaviour change in clinical practice (ED post-training tests).

ED implementation tool-kit

Master and adapted versions of the ED implementation tool-kit will be provided as a CME product delivered online and face-to-face. The tool-kit will consist of a general overview of ED principles and specific training ED courses on GMA, HINE, Neuroimaging, Communication strategies of diagnosis to parents.

ES knowledge uptake

Questionnaires and tests for ES knowledge uptake will be provided. They will explore the practitioners’ self-evaluation of current ES practices and readiness to change (ES pre-training test) and on how the learned ES knowledge has prompted behaviour change in clinical practice (ES post-training tests).

EI knowledge uptake

Questionnaires and tests for EI knowledge uptake will be provided. They will explore the practitioners’ self-evaluation of current EI practices and readiness to change (EI pre-training test) and on how the learned EI knowledge has prompted behaviour change in clinical practice (EI post-training tests).

ES implementation tool-kit

Master and adapted versions of the ES implementation tool-kit will be provided as a CME product delivered online and face-to-face. The tool-kit will consist of a general overview of ES principles and specific training ES courses on : i) vision; ii) sleep; iii) motor and functional abilities; iv) neurologic, v) musculoskeletal; vi) hearing, speech and communication; vii) social-emotional viii) parent mental health, ix) nutrition.

Data Management Plan

This will be based on the FAIR principles and outline how data will be handled during and after the project, describe what data will be collected, processed or generated and following what methodology and standards, how this data will be shared and made open, where it will be deposited, and how data will be curated and preserved. In the cases where the datasets cannot be publicly shared (will 'opt-out'), the justification will be provided in their metadata descriptions (e.g. ethical, rules of personal data, intellectual property, commercial, privacy-related, security-related)

A platform dedicated to collect in an homogeneous and standardized way data of infants at risk for cerebral palsy will be delivered in order to create a common Register at least in the countries involved in the present project

Publications

Early Intervention for Children Aged 0 to 2 Years With or at High Risk of Cerebral Palsy: International Clinical Practice Guideline Based on Systematic Reviews.

Author(s): Morgan, Fetters, L., Adde, L., Badawi, N., Bancale, A., Boyd, R. N., Chorna, O., Cioni, G., Damiano, D. L., Darrah, J., de Vries, L. S., Dusing, S., Einspieler, C., Eliasson, A.-C., Ferriero, D., Fehlings, D., Forssberg, H., Gordon, A. M., Greaves, S., … Novak, I.
Published in: JAMA Pediatrics, Issue 175(8), 2021, Page(s) 846–858, ISSN 2168-6211
Publisher: American Medical Association
DOI: 10.1001/jamapediatrics.2021.0878

The Early Motor Repertoire in Preterm Infancy and Cognition in Young Adulthood: Preliminary Findings

Author(s): Salavati, S., den Heijer, A. E., Coenen, M. A., Bruggink, J. L., Einspieler, C., Bos, A. F., & Spikman, J. M.
Published in: Journal of the International Neuropsychological Society, Issue 29, 2023, Page(s) 80-91, ISSN 1469-7661
Publisher: Cambridge University Press
DOI: 10.1017/s1355617721001351

Early detection of Australian Aboriginal and Torres Strait Islander infants at high risk of adverse neurodevelopmental outcomes at 12 months corrected age: LEAP-CP prospective cohort study protocol

Author(s): Luke, Carly R., Benfer, Katherine, Mick-Ramsamy, Leeann, Ware, Robert S., Reid, Natasha, Bos, Arend F., Bosanquet, Margot, and Boyd, Roslyn N.
Published in: BMJ Open, Issue 12 (1), 2022, Page(s) e053646 e053646, ISSN 2044-6055
Publisher: BMJ Publishing Group
DOI: 10.1136/bmjopen-2021-053646

A Parechovirus Type 3 Infection with a Presumed Intrauterine Onset: A Poor Neurodevelopmental Outcome

Author(s): Salavat S, Salavati M, Coenen MA, Ter Horst HJ, & Bos AF
Published in: Eur J Paediatr Neurol, 2020, ISSN 1661-7800
Publisher: Karger
DOI: 10.1159/000509571

Insights on action observation and imitation abilities in children with Developmental Coordination Disorder and typically developing children

Author(s): Eleonora Bieber, Bouwien CM Smits-Engelsman, Giuseppina Sgandurra, Giada Martini, Andrea Guzzetta, Giovanni Cioni, Hilde Feys, Katrijn Klingels
Published in: Research in Developmental Disabilities, 2023, ISSN 0891-4222
Publisher: Pergamon Press Ltd.

Early Intervention for Children Aged 0 to 2 Years With or at High Risk of Cerebral Palsy

Author(s): Morgan, Catherine; Fetters, Linda; Adde, Lars; Badawi, Nadia; Bancale, Ada; Boyd, Roslyn N.; Chorna, Olena; Cioni, Giovanni; Damiano, Diane L.; Darrah, Johanna; de Vries, Linda S.; Dusing, Stacey; Einspieler, Christa; Eliasson, Ann-Christin; Ferriero, Donna; Fehlings, Darcy; Forssberg, Hans; Gordon, Andrew M.; Greaves, Susan; Guzzetta, Andrea; Hadders-Algra, Mijna; Harbourne, Regina; Karlsson, Pet
Published in: JAMA Pediatrics, vol 175, iss 8, Issue 5, 2021, ISSN 2168-6203
Publisher: American Medical Association

COpenhagen Neuroplastic TRaining Against Contractures in Toddlers (CONTRACT): protocol of an open-label randomised clinical trial with blinded assessment for prevention of contractures in infants with high risk of cerebral palsy

Author(s): Maria Willerslev-Olsen, Jakob Lorentzen, Katrine Røhder, Anina Ritterband-Rosenbaum, Mikkel Justiniano, Andrea Guzzetta, Ane Vibeke Lando, Anne-Mette Bæk Jensen, Gorm Greisen, Sofie Ejlersen, Line Zacho Pedersen, Britta Andersen, Patricia Lipthay Behrend, Jens Bo Nielsen
Published in: BMJ Open, Issue 11, 2021, ISSN 2044-6055
Publisher: BMJ Publishing Group
DOI: 10.1136/bmjopen-2020-044674

Neurodevelopment in patients with biliary atresia up to toddler age: Outcomes and predictability.

Author(s): Dibbits MHJ, Rodijk LH, den Heijer AE, Bos AF, Verkade HJ, de Kleine RH, Alizadeh BZ, Hulscher JBF, Bruggink JLM.
Published in: Early Human Development, 2024, ISSN 0378-3782
Publisher: Elsevier BV

Early detection of developmental delay in infants born very preterm or with very low birthweight

Author(s): Rebecca A. Caesar, Roslyn N. Boyd, Giovanni Cioni, Robert S. Ware, Julie Doherty, Maxine P. Jackson, Kaye L. Salthouse, Paul B. Colditz, PREMTiME Study Group
Published in: Developmental Medicine & Child Neurology, Issue Vol65 Issue 3, 2022, Page(s) 346-357, ISSN 1469-8749
Publisher: Mac Keith Press
DOI: 10.1111/dmcn.15381

Feasibility of Early Intervention Through Home-Based and Parent-Delivered Infant Massage in Infants at High Risk for Cerebral Palsy.

Author(s): Valentina Menici; Camilla Antonelli; Camilla Antonelli; Camilla Antonelli; Elena Beani; Alessandra Mattiola; Matteo Giampietri; Giada Martini; Riccardo Rizzi; Riccardo Rizzi; Alessandra Cecchi; Maria Luce Cioni; Giovanni Cioni; Giovanni Cioni; Giuseppina Sgandurra; Giuseppina Sgandurra; Caretoy-R Consortium; Claudia Artese; Veronica Barzacchi; Marta Cervo; Carlo Dani; Paolo Dario; Marco Di Galante
Published in: Frontiers in Pediatrics, Issue 4, 2021, ISSN 2296-2360
Publisher: Frontiers in Pediatrics
DOI: 10.3389/fped.2021.673956

PROMPT to improve speech motor abilities in children with cerebral palsy: a wait-list control group trial protocol

Author(s): S. Fiori, C. Ragoni, I. Podda, A. Chilosi, C. Amador, P. Cipriani, A. Guzzetta & G. Sgandurra
Published in: BMC Neurology, 2022, ISSN 1471-2377
Publisher: BioMed Central

Automating quantitative measures of an established conventional MRI scoring system for preterm-born infants scanned between 29 and 47 weeks' postmenstrual age.

Author(s): Van Eijk, Seidel, M., Pannek, K., George, J. ., Fiori, S., Guzzetta, A., Coulthard, A., Bursle, J., Ware, R. ., Bradford, D., Rose, S., Colditz, P. ., Boyd, R. ., & Fripp, J.
Published in: American Journal of Neuroradiology, Issue 42(10), 2021, Page(s) 1870-1877, ISSN 1936-959X
Publisher: American Society of Neuoradiology
DOI: 10.3174/ajnr.a7230

Asymmetry in sleep spindles and motor outcome in infants with unilateral brain injury

Author(s): Viviana Marchi; Riccardo Rizzi; Päivi Nevalainen; Federico Melani; Silvia Lori; Camilla Antonelli; Sampsa Vanhatalo; Andrea Guzzetta
Published in: Developmental Medicine & Child Neurology, Issue 64 (11), 2022, Page(s) 1375-1382, ISSN 1469-8749
Publisher: Mac Keith Press
DOI: 10.1111/dmcn.15244

Study protocol: peer delivered early intervention (Learning through Everyday Activities with Parents for Infants at risk of Cerebral Palsy: LEAP-CP) for First Nation Australian infants at high risk of cerebral palsy - an RCT study

Author(s): Katherine A Benfer, Roslyn N Boyd, Yvette Roe, Ruth Fagan, Carly Luke, Leeann Ramsamy, Koa Whittingham, Iona Novak, Margot Bosanquet, Lynda McNamara, Gulam Khandaker, Lucy Fogarty, Catherine Elliott, Yvonne Cadet-James, Alan Ruben, Jane Valentine, Tracy Comans, Anthony C Smith, Robert S Ware,
Published in: BMJ Open, 2023, ISSN 2044-6055
Publisher: BMJ Publishing Group
DOI: 10.1136/bmjopen-2021-059531

Clinical Implications of the General Movement Optimality Score: Beyond the Classes of Rasch Analysis

Author(s): Barbosa VM, Einspieler C, Smith E, Bos AF, Cioni G, Ferrari F, Yong H, Urlesberger B, Marschik PB & Zhang D
Published in: J. Clin. Med., 2021, ISSN 2077-0383
Publisher: Multidisciplinary Digital Publishing Institute (MDPI)
DOI: 10.3390/jcm10051069

A comparison of the early motor repertoire of very preterm infants and term infants

Author(s): Salavati S, Berghuis SA, Bosch T, Hitzert MM, Baptist DH, Mebius MJ & Bos AF
Published in: European Journal of Paediatric Neurology, 2021, ISSN 1090-3798
Publisher: W. B. Saunders Co., Ltd.
DOI: 10.1016/j.ejpn.2021.03.014

Efficacy of early interventions with active parent implementation in low-and-middle income countries for young children with cerebral palsy to improve child development and parent mental health outcomes: a systematic review.

Author(s): Branjerdporn, Nataya, Benfer, Katherine, Crawford, Emma, Ziviani, Jenny, Boyd, Roslyn N. and Sakzewski, Leanne
Published in: Disability and Rehabilitation, Issue 44(23), 2021, Page(s) 6969-6983, ISSN 1748-3107
Publisher: Taylor & Francis
DOI: 10.1080/09638288.2021.1989063

Criterion Validity and Applicability of Motor Screening Instruments in Children Aged 5–6 Years: A Systematic Review

Author(s): van Dokkum, N. H., Reijneveld, S. A., de Best, J. T. B., Hamoen, M., Te Wierike, S., Bos, A. F., & de Kroon, M. L.
Published in: International journal of environmental research and public health, Issue 19, 2022, Page(s) 781, ISSN 1660-4601
Publisher: International journal of environmental research and public health
DOI: 10.3390/ijerph19020781

Early neuromotor performance and later cognition in children born preterm

Author(s): Bos, AF
Published in: Developmental Medicine and Child Neurology, 2021, ISSN 0012-1622
Publisher: Mac Keith Press
DOI: 10.1111/dmcn.14901

Usability and inter-rater reliability of the NeuroMotion app: A tool in General Movements Assessments

Author(s): Svensson KA, Örtqvist M, Bos AF, Eliasson AC & Sundelin HE
Published in: European Journal of Paediatric Neurology, 2021, ISSN 1090-3798
Publisher: W. B. Saunders Co., Ltd.
DOI: 10.1016/j.ejpn.2021.05.006

Early motor repertoire of very preterm infants and relationships with 2-year neurodevelopment.

Author(s): Kwong, Amanda K.-L., Boyd, Roslyn N., Chatfield, Mark D., Ware, Robert S., Colditz, Paul B. and George, Joanne M.
Published in: Journal of Clinical Medicine, Issue 11(7), 2022, ISSN 2077-0383
Publisher: Multidisciplinary Digital Publishing Institute (MDPI)
DOI: 10.3390/jcm11071833

Parent-Infant Interactions Among Infants With High Risk of Cerebral Palsy: A Protocol for an Observational Study of Infant and Parental Factors for Dyadic Reciprocity

Author(s): Katrine Røhder, Maria Willerslev-Olsen, Jens Bo Nielsen, Gorm Greisen and Susanne Harder
Published in: Frontiers in Psychiatry, Issue 12, 2021, ISSN 2296-2360
Publisher: Frontiers in Psychiatry
DOI: 10.3389/fpsyt.2021.736676

Neurological examination at 32-weeks postmenstrual age predicts 12-month cognitive outcomes in very preterm-born infants

Author(s): Huf, I.U., Baque, E., Colditz, P.B., Chatfield, M.D., Ware, R.S., Boyd, R.N., and George, J.M.
Published in: Pediatric Research, 2022, ISSN 1530-0447
Publisher: Springer Nature
DOI: 10.1038/s41390-022-02310-6

Clinical tools used in young infants born very preterm to predict motor and cognitive delay (not cerebral palsy): a systematic review

Author(s): Caesar, R., Colditz, P. B., Cioni, G. and Boyd, R. N.
Published in: Developmental Medicine and Child Neurology, Issue 63 (4), 2021, Page(s) 387-395, ISSN 1469-8749
Publisher: Mac Keith Press
DOI: 10.1111/dmcn.14730

Motor development in children 0-2 years pre- and post-LTX, a prospective study

Author(s): Bos GJFJ, Timmer CY, Lelieveld OTHM, Scheenstra R, Sauer PJJ, Geertzen JHB & Dijkstra PU
Published in: Pediatric transplantation, 2020, ISSN 1397-3142
Publisher: Blackwell Publishing Inc.
DOI: 10.1111/petr.13803

Kinderrevalidatie in Nederland (Translated title of the contribution: Pediatric rehabilitation in The Netherlands)

Author(s): Pangalila, R., Becher, J. G., de Moor, J., van der Burg, J., Hielkema, T., & Hadders-Algra, M.
Published in: Kinderrevalitatie (Translation: Pediatric rehabilitation), Issue 6, 2021, Page(s) p3-27
Publisher: Koninklijke Van Gorcum

Predictive accuracy of early screening in First Nations infants at risk of adverse neurodevelopmental outcomes in the LEAP-CP study.

Author(s): Luke C, Mick-Ramsamy L, Bos A, Ware R, Gordon A, Taifalos C, Smith M, Williams H, Benfer K, Bosanquet M, Leishman S, Boyd R.
Published in: 2023
Publisher: Developmental Medicine & Child Neurology

Reproducibility of Prechtl’s General Movements Assessment and the Motor Optimality Score – revised (MOS-R) in infants ‘at risk’ of adverse neurodevelopmental outcomes.

Author(s): Luke C, Bos A, Jackman M, Gordon A, Finn C, Baptist D, Ware R, Boyd R.
Published in: 2023
Publisher: Developmental Medicine & Child Neurology
DOI: 10.1111/dmcn.15702

Implementation of the state-wide Queensland Early Detection Network (QEDIN-CP) – prediction of outcomes for infants at risk of adverse neurodevelopmental outcomes.

Author(s): Luke CR, McNamara L, Gordon A, Carlton M, Finn C, Gibson S, Morris K, Shannon B, Oakes E, Thomas R, George J, Kentish M, Ware R, Boyd RN.
Published in: 2023
Publisher: Developmental Medicine & Child Neurology
DOI: 10.1111/dmcn.15595

Relationship between infant motor repertoire at 3-5 months and early neurodevelopment on the hammersmith infant neurological examination in a cohort of ‘at risk’ Aboriginal and Torres Strait Islander infants.

Author(s): Luke CR, Bos A, Ware R, Gordon A, Taifalos C, Williams H, Benfer K, Bosanquet M, Boyd RN.
Published in: 2023
Publisher: Developmental Medicine & Child Neurology
DOI: 10.1111/dmcn.15594

Absolute reliability of the gait outcomes assessment list (GOAL) questionnaire

Author(s): Luke C, McNamara L, Gordon A, Carlton M, Finn C, Gibson S, Morris K, Shannon B, Oakes E, Thomas R, George J, Kentish M, Ware R, Boyd R.
Published in: 2023
Publisher: Developmental Medicine and Child Neurology
DOI: 10.1111/dmcn.15701

“BornToGetThere: implementation of uniform care for infants at high risk of cerebral palsy”

Author(s): Hielkema T, Borghuis E, Boomsma H, Van der Horst H, Rietveld E, Schepers F, Toonen R, Meinsma M, Meeuwisse B, Keesom E, Berghuis S, Boomgaarden C, Kraft K, Bos A
Published in: 2024
Publisher: Abstract Book Dutch Congress of Rehabilitation Medicine

“Fidgety-like movements” in extremely preterm infants - a new entity of spontaneous movements.

Author(s): Örtqvist M, Bos AF, Ådén U, Einspieler C
Published in: Eur J Paediatr Neurol, 2023, ISSN 1090-3798
Publisher: W. B. Saunders Co., Ltd.

Kinderrevalidatie (Translated title of the contribution: Pediatric rehabilitation)

Author(s): Hadders-Algra, M., Pangalila, R., Becher, J. G., van der Burg, J., Hielkema, T., & de Moor, J
Published in: Kinderrevalitatie (Translation: Pediatric rehabilitation), Issue 6, 2021, Page(s) 694
Publisher: Koninklijke Van Gorcum

World Prematurity Day. Raising awareness of premature birth and the impact it can have on families.

Author(s): A. Bos
Published in: 2022
Publisher: University Medical Center Groningen, Groningen, The Netherlands

AI helpt arts en ouders

Author(s): Bos, A.F.
Published in: Magazine Medisch Specialist, Issue 9, 2022, Page(s) 32
Publisher: Federatie Medisch Specialisten

Artificial intelligence and video as a resource to timely discover anomalies in premature babies

Author(s): A. Bos
Published in: 2022
Publisher: University Medical Center Groningen, Groningen, The Netherlands

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Deliverables

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