Resultado final
Overview of the tools and processes that UniPi will set up to manage the project including site specific project activities, administrative and financial activities, clinical activities, and ethics issues. Description of the methods being adopted in the project to manage the work packages, share and store working documents, communicate amongst consortium members
Update of DECO strategiesA list of DECO activities already carried out will be provided and an update of the DECO activities for the second period will be planned and updated.
IP reports 2A second IP report containing the description of main activities and findings and IP strategies adopted in the second period 1936 months of project activities will be provided
ES knowledge progress reportA report will provide the list of all the ES toolkit activities for each site planned and provided to the professionals for the ES clinical implementation
EI knowledge training progress reportA report will provide the list of all the EI toolkit activities for each site planned and provided to the professionals for the EI clinical implementation
ED knowledge training reportsA report will provide the list of all the ED toolkit activities for each site planned and provided to the professionals for the ED clinical implementation
IP report 1A first IP report containing the description of main activities and findings and IP strategies adopted in the first 18 months of project activities will be provided.
DECO strategiesA detailed plan of DECO strategies will be provided. All the consortium activities aimed to reach the maximum impact of key stakeholders, associations, governments and final users will be planned and listed.
Questionnaires and tests for ED knowledge uptake will be provided. They will explore the practitioners’ self-evaluation of current ED practices and readiness to change (ED pre-training test) and on how the learned ED knowledge has prompted behaviour change in clinical practice (ED post-training tests).
ED implementation tool-kitMaster and adapted versions of the ED implementation tool-kit will be provided as a CME product delivered online and face-to-face. The tool-kit will consist of a general overview of ED principles and specific training ED courses on GMA, HINE, Neuroimaging, Communication strategies of diagnosis to parents.
ES knowledge uptakeQuestionnaires and tests for ES knowledge uptake will be provided. They will explore the practitioners’ self-evaluation of current ES practices and readiness to change (ES pre-training test) and on how the learned ES knowledge has prompted behaviour change in clinical practice (ES post-training tests).
EI knowledge uptakeQuestionnaires and tests for EI knowledge uptake will be provided. They will explore the practitioners’ self-evaluation of current EI practices and readiness to change (EI pre-training test) and on how the learned EI knowledge has prompted behaviour change in clinical practice (EI post-training tests).
ES implementation tool-kitMaster and adapted versions of the ES implementation tool-kit will be provided as a CME product delivered online and face-to-face. The tool-kit will consist of a general overview of ES principles and specific training ES courses on : i) vision; ii) sleep; iii) motor and functional abilities; iv) neurologic, v) musculoskeletal; vi) hearing, speech and communication; vii) social-emotional viii) parent mental health, ix) nutrition.
This will be based on the FAIR principles and outline how data will be handled during and after the project, describe what data will be collected, processed or generated and following what methodology and standards, how this data will be shared and made open, where it will be deposited, and how data will be curated and preserved. In the cases where the datasets cannot be publicly shared (will 'opt-out'), the justification will be provided in their metadata descriptions (e.g. ethical, rules of personal data, intellectual property, commercial, privacy-related, security-related)
A platform dedicated to collect in an homogeneous and standardized way data of infants at risk for cerebral palsy will be delivered in order to create a common Register at least in the countries involved in the present project
Publicaciones
Autores:
Morgan, Fetters, L., Adde, L., Badawi, N., Bancale, A., Boyd, R. N., Chorna, O., Cioni, G., Damiano, D. L., Darrah, J., de Vries, L. S., Dusing, S., Einspieler, C., Eliasson, A.-C., Ferriero, D., Fehlings, D., Forssberg, H., Gordon, A. M., Greaves, S., … Novak, I.
Publicado en:
JAMA Pediatrics, Edición 175(8), 2021, Página(s) 846–858, ISSN 2168-6211
Editor:
American Medical Association
DOI:
10.1001/jamapediatrics.2021.0878
Autores:
Salavati, S., den Heijer, A. E., Coenen, M. A., Bruggink, J. L., Einspieler, C., Bos, A. F., & Spikman, J. M.
Publicado en:
Journal of the International Neuropsychological Society, Edición 29, 2023, Página(s) 80-91, ISSN 1469-7661
Editor:
Cambridge University Press
DOI:
10.1017/s1355617721001351
Autores:
Luke, Carly R., Benfer, Katherine, Mick-Ramsamy, Leeann, Ware, Robert S., Reid, Natasha, Bos, Arend F., Bosanquet, Margot, and Boyd, Roslyn N.
Publicado en:
BMJ Open, Edición 12 (1), 2022, Página(s) e053646 e053646, ISSN 2044-6055
Editor:
BMJ Publishing Group
DOI:
10.1136/bmjopen-2021-053646
Autores:
Salavat S, Salavati M, Coenen MA, Ter Horst HJ, & Bos AF
Publicado en:
Eur J Paediatr Neurol, 2020, ISSN 1661-7800
Editor:
Karger
DOI:
10.1159/000509571
Autores:
Eleonora Bieber, Bouwien CM Smits-Engelsman, Giuseppina Sgandurra, Giada Martini, Andrea Guzzetta, Giovanni Cioni, Hilde Feys, Katrijn Klingels
Publicado en:
Research in Developmental Disabilities, 2023, ISSN 0891-4222
Editor:
Pergamon Press Ltd.
Autores:
Morgan, Catherine; Fetters, Linda; Adde, Lars; Badawi, Nadia; Bancale, Ada; Boyd, Roslyn N.; Chorna, Olena; Cioni, Giovanni; Damiano, Diane L.; Darrah, Johanna; de Vries, Linda S.; Dusing, Stacey; Einspieler, Christa; Eliasson, Ann-Christin; Ferriero, Donna; Fehlings, Darcy; Forssberg, Hans; Gordon, Andrew M.; Greaves, Susan; Guzzetta, Andrea; Hadders-Algra, Mijna; Harbourne, Regina; Karlsson, Pet
Publicado en:
JAMA Pediatrics, vol 175, iss 8, Edición 5, 2021, ISSN 2168-6203
Editor:
American Medical Association
Autores:
Maria Willerslev-Olsen,
Jakob Lorentzen, Katrine Røhder,
Anina Ritterband-Rosenbaum,
Mikkel Justiniano, Andrea Guzzetta,
Ane Vibeke Lando, Anne-Mette
Bæk Jensen, Gorm Greisen, Sofie Ejlersen,
Line Zacho Pedersen, Britta Andersen, Patricia Lipthay Behrend,
Jens Bo Nielsen
Publicado en:
BMJ Open, Edición 11, 2021, ISSN 2044-6055
Editor:
BMJ Publishing Group
DOI:
10.1136/bmjopen-2020-044674
Autores:
Dibbits MHJ, Rodijk LH, den Heijer AE, Bos AF, Verkade HJ, de Kleine RH, Alizadeh BZ, Hulscher JBF, Bruggink JLM.
Publicado en:
Early Human Development, 2024, ISSN 0378-3782
Editor:
Elsevier BV
Autores:
Rebecca A. Caesar, Roslyn N. Boyd, Giovanni Cioni, Robert S. Ware, Julie Doherty, Maxine P. Jackson, Kaye L. Salthouse, Paul B. Colditz, PREMTiME Study Group
Publicado en:
Developmental Medicine & Child Neurology, Edición Vol65 Edición 3, 2022, Página(s) 346-357, ISSN 1469-8749
Editor:
Mac Keith Press
DOI:
10.1111/dmcn.15381
Autores:
Valentina Menici; Camilla Antonelli; Camilla Antonelli; Camilla Antonelli; Elena Beani; Alessandra Mattiola; Matteo Giampietri; Giada Martini; Riccardo Rizzi; Riccardo Rizzi; Alessandra Cecchi; Maria Luce Cioni; Giovanni Cioni; Giovanni Cioni; Giuseppina Sgandurra; Giuseppina Sgandurra; Caretoy-R Consortium; Claudia Artese; Veronica Barzacchi; Marta Cervo; Carlo Dani; Paolo Dario; Marco Di Galante
Publicado en:
Frontiers in Pediatrics, Edición 4, 2021, ISSN 2296-2360
Editor:
Frontiers in Pediatrics
DOI:
10.3389/fped.2021.673956
Autores:
S. Fiori, C. Ragoni, I. Podda, A. Chilosi, C. Amador, P. Cipriani, A. Guzzetta & G. Sgandurra
Publicado en:
BMC Neurology, 2022, ISSN 1471-2377
Editor:
BioMed Central
Autores:
Van Eijk, Seidel, M., Pannek, K., George, J. ., Fiori, S., Guzzetta, A., Coulthard, A., Bursle, J., Ware, R. ., Bradford, D., Rose, S., Colditz, P. ., Boyd, R. ., & Fripp, J.
Publicado en:
American Journal of Neuroradiology, Edición 42(10), 2021, Página(s) 1870-1877, ISSN 1936-959X
Editor:
American Society of Neuoradiology
DOI:
10.3174/ajnr.a7230
Autores:
Viviana Marchi; Riccardo Rizzi; Päivi Nevalainen; Federico Melani; Silvia Lori; Camilla Antonelli; Sampsa Vanhatalo; Andrea Guzzetta
Publicado en:
Developmental Medicine & Child Neurology, Edición 64 (11), 2022, Página(s) 1375-1382, ISSN 1469-8749
Editor:
Mac Keith Press
DOI:
10.1111/dmcn.15244
Autores:
Katherine A Benfer, Roslyn N Boyd, Yvette Roe, Ruth Fagan, Carly Luke, Leeann Ramsamy, Koa Whittingham, Iona Novak, Margot Bosanquet, Lynda McNamara, Gulam Khandaker, Lucy Fogarty, Catherine Elliott, Yvonne Cadet-James, Alan Ruben, Jane Valentine, Tracy Comans, Anthony C Smith, Robert S Ware,
Publicado en:
BMJ Open, 2023, ISSN 2044-6055
Editor:
BMJ Publishing Group
DOI:
10.1136/bmjopen-2021-059531
Autores:
Barbosa VM, Einspieler C, Smith E, Bos AF, Cioni G, Ferrari F, Yong H, Urlesberger B, Marschik PB & Zhang D
Publicado en:
J. Clin. Med., 2021, ISSN 2077-0383
Editor:
Multidisciplinary Digital Publishing Institute (MDPI)
DOI:
10.3390/jcm10051069
Autores:
Salavati S, Berghuis SA, Bosch T, Hitzert MM, Baptist DH, Mebius MJ & Bos AF
Publicado en:
European Journal of Paediatric Neurology, 2021, ISSN 1090-3798
Editor:
W. B. Saunders Co., Ltd.
DOI:
10.1016/j.ejpn.2021.03.014
Autores:
Branjerdporn, Nataya, Benfer, Katherine, Crawford, Emma, Ziviani, Jenny, Boyd, Roslyn N. and Sakzewski, Leanne
Publicado en:
Disability and Rehabilitation, Edición 44(23), 2021, Página(s) 6969-6983, ISSN 1748-3107
Editor:
Taylor & Francis
DOI:
10.1080/09638288.2021.1989063
Autores:
van Dokkum, N. H., Reijneveld, S. A., de Best, J. T. B., Hamoen, M., Te Wierike, S., Bos, A. F., & de Kroon, M. L.
Publicado en:
International journal of environmental research and public health, Edición 19, 2022, Página(s) 781, ISSN 1660-4601
Editor:
International journal of environmental research and public health
DOI:
10.3390/ijerph19020781
Autores:
Bos, AF
Publicado en:
Developmental Medicine and Child Neurology, 2021, ISSN 0012-1622
Editor:
Mac Keith Press
DOI:
10.1111/dmcn.14901
Autores:
Svensson KA, Örtqvist M, Bos AF, Eliasson AC & Sundelin HE
Publicado en:
European Journal of Paediatric Neurology, 2021, ISSN 1090-3798
Editor:
W. B. Saunders Co., Ltd.
DOI:
10.1016/j.ejpn.2021.05.006
Autores:
Kwong, Amanda K.-L., Boyd, Roslyn N., Chatfield, Mark D., Ware, Robert S., Colditz, Paul B. and George, Joanne M.
Publicado en:
Journal of Clinical Medicine, Edición 11(7), 2022, ISSN 2077-0383
Editor:
Multidisciplinary Digital Publishing Institute (MDPI)
DOI:
10.3390/jcm11071833
Autores:
Katrine Røhder, Maria Willerslev-Olsen, Jens Bo Nielsen, Gorm Greisen and Susanne Harder
Publicado en:
Frontiers in Psychiatry, Edición 12, 2021, ISSN 2296-2360
Editor:
Frontiers in Psychiatry
DOI:
10.3389/fpsyt.2021.736676
Autores:
Huf, I.U., Baque, E., Colditz, P.B., Chatfield, M.D., Ware, R.S., Boyd, R.N., and George, J.M.
Publicado en:
Pediatric Research, 2022, ISSN 1530-0447
Editor:
Springer Nature
DOI:
10.1038/s41390-022-02310-6
Autores:
Caesar, R., Colditz, P. B., Cioni, G. and Boyd, R. N.
Publicado en:
Developmental Medicine and Child Neurology, Edición 63 (4), 2021, Página(s) 387-395, ISSN 1469-8749
Editor:
Mac Keith Press
DOI:
10.1111/dmcn.14730
Autores:
Bos GJFJ, Timmer CY, Lelieveld OTHM, Scheenstra R, Sauer PJJ, Geertzen JHB & Dijkstra PU
Publicado en:
Pediatric transplantation, 2020, ISSN 1397-3142
Editor:
Blackwell Publishing Inc.
DOI:
10.1111/petr.13803
Autores:
Pangalila, R., Becher, J. G., de Moor, J., van der Burg, J., Hielkema, T., & Hadders-Algra, M.
Publicado en:
Kinderrevalitatie (Translation: Pediatric rehabilitation), Edición 6, 2021, Página(s) p3-27
Editor:
Koninklijke Van Gorcum
Autores:
Luke C, Mick-Ramsamy L, Bos A, Ware R, Gordon A, Taifalos C, Smith M, Williams H, Benfer K, Bosanquet M, Leishman S, Boyd R.
Publicado en:
2023
Editor:
Developmental Medicine & Child Neurology
Autores:
Luke C, Bos A, Jackman M, Gordon A, Finn C, Baptist D, Ware R, Boyd R.
Publicado en:
2023
Editor:
Developmental Medicine & Child Neurology
DOI:
10.1111/dmcn.15702
Autores:
Luke CR, McNamara L, Gordon A, Carlton M, Finn C, Gibson S, Morris K, Shannon B, Oakes E, Thomas R, George J, Kentish M, Ware R, Boyd RN.
Publicado en:
2023
Editor:
Developmental Medicine & Child Neurology
DOI:
10.1111/dmcn.15595
Autores:
Luke CR, Bos A, Ware R, Gordon A, Taifalos C, Williams H, Benfer K, Bosanquet M, Boyd RN.
Publicado en:
2023
Editor:
Developmental Medicine & Child Neurology
DOI:
10.1111/dmcn.15594
Autores:
Luke C, McNamara L, Gordon A, Carlton M, Finn C, Gibson S, Morris K, Shannon B, Oakes E, Thomas R, George J, Kentish M, Ware R, Boyd R.
Publicado en:
2023
Editor:
Developmental Medicine and Child Neurology
DOI:
10.1111/dmcn.15701
Autores:
Hielkema T, Borghuis E, Boomsma H, Van der Horst H, Rietveld E, Schepers F, Toonen R, Meinsma M, Meeuwisse B, Keesom E, Berghuis S, Boomgaarden C, Kraft K, Bos A
Publicado en:
2024
Editor:
Abstract Book Dutch Congress of Rehabilitation Medicine
Autores:
Örtqvist M, Bos AF, Ådén U, Einspieler C
Publicado en:
Eur J Paediatr Neurol, 2023, ISSN 1090-3798
Editor:
W. B. Saunders Co., Ltd.
Autores:
Hadders-Algra, M., Pangalila, R., Becher, J. G., van der Burg, J., Hielkema, T., & de Moor, J
Publicado en:
Kinderrevalitatie (Translation: Pediatric rehabilitation), Edición 6, 2021, Página(s) 694
Editor:
Koninklijke Van Gorcum
Autores:
A. Bos
Publicado en:
2022
Editor:
University Medical Center Groningen, Groningen, The Netherlands
Autores:
Bos, A.F.
Publicado en:
Magazine Medisch Specialist, Edición 9, 2022, Página(s) 32
Editor:
Federatie Medisch Specialisten
Autores:
A. Bos
Publicado en:
2022
Editor:
University Medical Center Groningen, Groningen, The Netherlands
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