Project description
Access to palliative care around the world
Palliative care is a relatively recent form of professional end-of-life care with cultural roots in Western Europe. Over the past decades, it has become widely practiced in North America, Europe, Australia and Japan, and presently we are seeing a rapidly increasing attention to developing palliative care services worldwide. Given the huge global diversity in approaching dying and end-of-life care, the ENDofLIFE project sets out to study why and how this particular form of end-of-life care is globalizing. It will investigate the expansion of palliative care and how practices, policies and discourses are translated, adapted and reconstituted in diverse socio-cultural settings. The project will focus on emerging palliative care services in Brazil, India and Indonesia. It will ethnographically study the interaction between the global mobility and articulation of palliative care discourses, national-level institutional care assemblages and local end-of-life care trajectories.
Objective
This project will undertake a comparative and multi-scalar medical anthropological study of the globalization and cultural mediation of palliative care practices, policies, and discourses. Its central objective is to gain insight in what is universally shared and what is culturally specific in end-of-life care, by analyzing how local end-of-life care practices impact palliative care and how globally circulating discourses of palliative care are transforming local notions of death and dying.
In a few decades, palliative care has become widely associated with a good death in high-income countries. Given the current international attention to expanding palliative care to the global south, in particular in relation to the notion of a human right to palliative care, it is essential that we better understand how palliative care does or does not translate across diverse cultural contexts.
To this end, this project will research:
1. Why palliative care is expanding globally
2. How palliative care practices, policies and discourses are translated, adapted and reconstituted in diverse socio-cultural settings
3. How this process is impacted by culturally diverse, non-institutional practices of end-of-life care and notions of good dying
The break-through scientific question that this research will address is:
What is universally shared and what is culturally specific to practices of end-of-life care and notions of good dying?
Building on the PIs previous research on morality and AIDS care, this project develops a novel analytical approach that focuses on the dynamic interaction between the global mobility and articulation of palliative care discourses, national-level institutional care assemblages, and local end-of-life care trajectories. To discover how this interaction works in practice, ethnographic research will be conducted in international organizations and three countries with emerging palliative care services: Brazil, India, and Indonesia.
Fields of science (EuroSciVoc)
CORDIS classifies projects with EuroSciVoc, a multilingual taxonomy of fields of science, through a semi-automatic process based on NLP techniques. See: The European Science Vocabulary.
CORDIS classifies projects with EuroSciVoc, a multilingual taxonomy of fields of science, through a semi-automatic process based on NLP techniques. See: The European Science Vocabulary.
- medical and health sciences health sciences infectious diseases RNA viruses HIV
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Keywords
Project’s keywords as indicated by the project coordinator. Not to be confused with the EuroSciVoc taxonomy (Fields of science)
Project’s keywords as indicated by the project coordinator. Not to be confused with the EuroSciVoc taxonomy (Fields of science)
Programme(s)
Multi-annual funding programmes that define the EU’s priorities for research and innovation.
Multi-annual funding programmes that define the EU’s priorities for research and innovation.
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H2020-EU.1.1. - EXCELLENT SCIENCE - European Research Council (ERC)
MAIN PROGRAMME
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Topic(s)
Calls for proposals are divided into topics. A topic defines a specific subject or area for which applicants can submit proposals. The description of a topic comprises its specific scope and the expected impact of the funded project.
Calls for proposals are divided into topics. A topic defines a specific subject or area for which applicants can submit proposals. The description of a topic comprises its specific scope and the expected impact of the funded project.
Funding Scheme
Funding scheme (or “Type of Action”) inside a programme with common features. It specifies: the scope of what is funded; the reimbursement rate; specific evaluation criteria to qualify for funding; and the use of simplified forms of costs like lump sums.
Funding scheme (or “Type of Action”) inside a programme with common features. It specifies: the scope of what is funded; the reimbursement rate; specific evaluation criteria to qualify for funding; and the use of simplified forms of costs like lump sums.
ERC-STG - Starting Grant
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Call for proposal
Procedure for inviting applicants to submit project proposals, with the aim of receiving EU funding.
Procedure for inviting applicants to submit project proposals, with the aim of receiving EU funding.
(opens in new window) ERC-2019-STG
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Net EU financial contribution. The sum of money that the participant receives, deducted by the EU contribution to its linked third party. It considers the distribution of the EU financial contribution between direct beneficiaries of the project and other types of participants, like third-party participants.
2311 EZ Leiden
Netherlands
The total costs incurred by this organisation to participate in the project, including direct and indirect costs. This amount is a subset of the overall project budget.