Project description
Collaboration for improved epileptic encephalopathies diagnosis
Epileptic encephalopathies (EE) represent a group of severe epileptic diseases with early onset that lead to progressive cerebral dysfunction. New molecular technologies have made it easier to diagnose and start treatment earlier, for better patient outcomes. The EU-funded SEED project will help the Sfax University (SU) in Tunisia form a collaboration (twinning) with two internationally leading European institutions in EE diagnosis – Aix-Marseille University in France and University of Antwerp in Belgium – to build research excellence and innovation in EE clinical and genetic diagnostics. The aim is for SU to build sustainable research networks, close knowledge gaps and integrate into international networks via training and staff exchanges.
Objective
Epileptic encephalopathies (EE) are heterogenous epilepsy syndromes associated with severe cognitive disturbance. EE vary in their onset age, seizure types, electroencephalographic patterns and etiologies. New molecular technologies increased the genetic diagnosis rate. Inline with EU orientations and Twinning requirements, the SEED project will provide Sfax University (SU), with capacity building in excellence and innovation for earlier clinical and genetic diagnosis of EE, thanks to collaboration with AMU and UA, two internationally leading organisations for the diagnosis of EE. Early clinical and genetic diagnosis allows early management, improves prognosis and reduces health costs. The SEED project will: 1) strengthen the medical and technological capacity towards innovative technologies of SU in the field of EE 2) allow access to scientific excellence at international level for members of the SU which will lead ultimately to a better integration into international networks in MENA and EU regions. The successful implementation of this strategy will rely on specific actions including: 1)enhancement of the existing and the creation of innovative scientific and technical collaborations through short-term staff exchanges and short-term on-site training activities; 2)training young researchers from SU to become trainers; 3)creating an experts’network for EE management centred at SU; 4) increasing awareness among the patient’s families through targeted dissemination and communication activities and 5) developing a strategy to sustain network activity beyond the project deadline. Through the completion of these activities, and with the support of AMU and UA, SU will be able to significantly reduce networking gaps, to increase its ability to compete for international research funds and to link further with stakeholders. In addition, thanks the SEED project, SU will become the reference center for the clinic and genetic diagnosis of EE in the MENA region.
Fields of science
Keywords
Programme(s)
- H2020-EU.4.b. - Twinning of research institutions Main Programme
Topic(s)
Funding Scheme
CSA - Coordination and support actionCoordinator
3029 Sfax
Tunisia