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Real world Outcomes across the AD spectrum for better care: Multimodal data Access Platform - Sofia ref.: 116020

Objective

The aim of ROADMAP is to provide the foundation for a Europe-wide real world evidence (RWE) platform in AD by piloting multi-modal data integration tools and engaging with all key stakeholder groups for consensual definition of patient outcomes, tools and methods that are actionable and relevant. ROADMAP will leverage best practice and exploit synergies with other projects and initiatives at the national and European levels in pursue of scalable and transferable solutions for dataset characterisation, outcome classification, data standards, data sourcing, software application and guidelines on the handling and interpretation of RWE data. In parallel, the project will deepen understanding of the ethical, legal and social implications (ELSI) and health economics (HE) impact of a RWE approach for a meaningful contribution to the Big Data for Better Outcomes programme in IMI2.

The ROADMAP programme will consist of 8 integrated work packages by which the Consortium will work to (1) identify relevant AD outcomes and progression markers; (2) identify and pool AD-related RWE across data sources; (3) develop and validate disease progression models combining diverse datasets and strategies; (4) develop risk/value-based costing and health economics models for HTA/regulators, service providers, industry and carers; (5) establish stakeholder-based guidelines for RWE; (6) develop a communication strategy focussing on the needs of patients and professionals; (7) develop an ELSI framework for the development and application of RWE in AD.

The ROADMAP consortium brings together outstanding expertise, experience and traction in the field, including many of Europe’s top institutions, authorities, companies, experts in AD, biomedical informatics and analysis of epidemiologic and routinely collected health data sources, providing direct connections to key initiatives such as DPUK, EMIF, EPAD and others.

Field of science

  • /social sciences/economics and business/economics
  • /natural sciences/computer and information sciences/software
  • /social sciences/economics and business
  • /natural sciences/computer and information sciences/data science/big data

Call for proposal

H2020-JTI-IMI2-2015-06-two-stage
See other projects for this call

Funding Scheme

IMI2-RIA - Research and Innovation action

Coordinator

THE CHANCELLOR, MASTERS AND SCHOLARS OF THE UNIVERSITY OF OXFORD
Address
Wellington Square University Offices
OX1 2JD Oxford
United Kingdom
Activity type
Higher or Secondary Education Establishments
EU contribution
€ 1 073 500

Participants (25)

NATIONAL INSTITUTE FOR HEALTH AND CARE EXCELLENCE
United Kingdom
EU contribution
€ 292 500
Address
Level 1A City Tower Piccadilly Plaza
M1 4BT Manchester
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
ERASMUS UNIVERSITAIR MEDISCH CENTRUM ROTTERDAM
Netherlands
EU contribution
€ 181 000
Address
Dr Molewaterplein 40
3015 GD Rotterdam
Activity type
Higher or Secondary Education Establishments
UNIVERSITEIT MAASTRICHT
Netherlands
EU contribution
€ 291 000
Address
Minderbroedersberg 4-6
6200 MD Maastricht
Activity type
Higher or Secondary Education Establishments
SYNAPSE RESEARCH MANAGEMENT PARTNERS SL
Spain
EU contribution
€ 188 750
Address
Calle Velazquez 94 Planta 1
28006 Madrid
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
FUNDACIO INSTITUT UNIVERSITARI PERA LA RECERCA A L'ATENCIO PRIMARIA DE SALUT JORDI GOL I GURINA
Spain
EU contribution
€ 212 250
Address
Gran Via De Les Corts Catalanes 587
08007 Barcelona
Activity type
Research Organisations
KOBENHAVNS UNIVERSITET
Denmark
EU contribution
€ 252 000
Address
Norregade 10
1165 Kobenhavn
Activity type
Higher or Secondary Education Establishments
ALZHEIMER EUROPE
Luxembourg
EU contribution
€ 176 000
Address
Rue Dicks 14
1417 Luxembourg
Activity type
Other
THE UNIVERSITY OF EDINBURGH
United Kingdom
EU contribution
€ 291 000
Address
Old College, South Bridge
EH8 9YL Edinburgh
Activity type
Higher or Secondary Education Establishments
GOETEBORGS UNIVERSITET
Sweden
EU contribution
€ 250 500
Address
Vasaparken
405 30 Goeteborg
Activity type
Higher or Secondary Education Establishments
AARHUS UNIVERSITET
Denmark
EU contribution
€ 212 250
Address
Nordre Ringgade 1
8000 Aarhus C
Activity type
Higher or Secondary Education Establishments
LONDON SCHOOL OF ECONOMICS AND POLITICAL SCIENCE
United Kingdom
EU contribution
€ 178 500
Address
Houghton Street 1
WC2A 2AE London
Activity type
Higher or Secondary Education Establishments
AGENTSCHAP COLLEGE TER BEOORDELING VAN GENEESMIDDELEN
Netherlands
EU contribution
€ 122 000
Address
Graadt Van Roggenweg 500
3531AH Utrecht
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
IXICO TECHNOLOGIES LIMITED
United Kingdom
EU contribution
€ 117 000
Address
4Th Floor Griffin Court 15 Long Lane
EC1A 9PN London
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
RIJKSUNIVERSITEIT GRONINGEN
Netherlands
EU contribution
€ 50 000
Address
Broerstraat 5
9712CP Groningen
Activity type
Higher or Secondary Education Establishments
NOVARTIS PHARMA AG
Switzerland
EU contribution
€ 0
Address
Lichtstrasse 35
4056 Basel
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
Eli Lilly and Company Limited
United Kingdom
EU contribution
€ 0
Address
Lilly House, Priestley Road
RG24 9NL Basingstoke
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
BIOGEN IDEC LIMITED
United Kingdom
EU contribution
€ 0
Address
Innovation House 70 Norden Road
SL6 3AY Maidenhead
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
F. HOFFMANN-LA ROCHE AG
Switzerland
EU contribution
€ 0
Address
Grenzacherstrasse 124
4070 Basel
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
JANSSEN PHARMACEUTICA NV
Belgium
EU contribution
€ 0
Address
Turnhoutseweg 30
2340 Beerse
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
GE HEALTHCARE LIMITED
United Kingdom
EU contribution
€ 0
Address
Amersham Place
HP7 9NA Little Chalfont
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
AC IMMUNE SA
Switzerland
EU contribution
€ 0
Address
Parc Scientifique Epfl, Pse B
1015 Lausanne
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
TAKEDA DEVELOPMENT CENTRE EUROPE LTD
United Kingdom
EU contribution
€ 0
Address
Aldwych 61
WC2B 4AE London
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
H. LUNDBECK AS
Denmark
EU contribution
€ 0
Address
Ottiliavej 7-9
2500 Valby
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
ACADEMISCH ZIEKENHUIS LEIDEN
Netherlands
EU contribution
€ 110 000
Address
Albinusdreef 2
2333 ZA Leiden
Activity type
Higher or Secondary Education Establishments
CHU HOPITAUX DE BORDEAUX
France
EU contribution
€ 0
Address
Rue Dubernat 12
33404 Talence
Activity type
Higher or Secondary Education Establishments