Objective
Rare diseases are defined as diseases that affect not more than 1 person per 2000 in the European population. While individual rare diseases affect only a small percentage of the population, they collectively affect up to 30 million people in the EU. To facilitate access to high quality cross-border healthcare and promote and foster cooperation on rare disease healthcare between member states, 24 European Reference Networks (ERN) are currently active. The aim of the ERICA consortium, in which all 24 ERNs take part, is to build on the strength of the individual ERNs and create a platform that integrates all ERN’s research and innovation capacity. Through knowledge sharing, engagement with stakeholders in the rare disease domain and assembly of transdisciplinary research groups working across the global health spectrum ERICA strives to reach the following goals: • new intra- and inter-ERN rare disease competitive networks; • effective data collection strategies; • better patient involvement; • enhanced quality and impact of clinical trials; • increased awareness of ERN’s innovation potential; Through integration of ERN research activities, outreach to European research infrastructures to synergistically increase impact and innovation ERICA will strengthen the research and innovation capacity of the ERNs. This will result in safe, accessible and efficient access of therapies for the benefit of patients suffering from rare diseases and conditions.
Topic(s)
Call for proposal
H2020-SC1-2020-Single-Stage-RTD
See other projects for this call
Funding Scheme
CSA - Coordination and support actionCoordinator
2333 ZA Leiden
Netherlands
Participants (23)
69120 Heidelberg
28020 Madrid
08035 Barcelona
75654 Paris
69003 Lyon
40136 Bologna
52074 Aachen
75014 Paris
1090 Wien
1081 HZ Amsterdam
33100 Udine
75000 Paris
3015 GD Rotterdam
69002 Lyon
67091 Strasbourg Cedex
60596 Frankfurt Am Main
72074 Tuebingen
69373 Lyon
6525 XZ Nijmegen
1105AZ Amsterdam
20251 Hamburg
56123 Pisa
3584 CX Utrecht
