Project description
Developing health data quality standards
Unlocking the full potential of health-related data remains a challenge for researchers, innovators, and policymakers within the HealthData@EU framework, where datasets are used for secondary purposes. The absence of standardised procedures hinders progress in secondary data reuse. In this context, the EU-backed QUANTUM project is developing a groundbreaking label mechanism designed to revolutionise the discovery of high-quality health datasets within the HealthData@EU. This mechanism includes conceptualising specifications of data quality and usefulness , small-scale testing, widespread implementation, engaging the data quality user community, and outreach efforts to key stakeholders. With a diverse consortium of 27 beneficiaries, 5 affiliated entities, and 3 associated partners, QUANTUM stands at the forefront of revolutionising HealthData@EU governance and capacity building.
Objective
Context: Data users (i.e. researchers, innovators, regulation agencies and policy-makers) need high-quality data. In HealthData@EU, data holders are expected to make their datasets available for secondary use, providing a notion of their quality and utility and the maturity of their data quality procedures. In article 56 in the HealthData@EU proposed regulation, this notion would take the form of a label.
Goal: Overall, QUANTUM aims at developing and implementing a label mechanism that could be ideally adopted in the future HealthData@EU.
Methods: QUANTUM builds on 5 technical work packages (WP). WP1 conceptualises and provides technical specifications for a data quality, utility, and maturity label. WP2 designs and tests, at small-scale, the label. WP3 implements the labelling mechanism in a number of data holders. WP4 engages the data quality users’ community; and, WP5 outreaches other interested parties, including other initiatives building HealthData@EU.
Expected results: a) A common concept of datasets Quality and Utility and Data holders’ Maturity; b) Technical specifications for the label (Deliverable D1.1. and D1.2); c) A conformance checking tool that yields the label (D2.1); d) An implementation report of the label mechanism (D3.1); e) Recommendations for a large-scale implementation of the QUANTUM label mechanism (D3.2); and, f) The QUANTUM Exchange Platform and Academy (D4.2 and D4.3) as instruments for capacity building.
Consortium: For this purpose, 27 beneficiaries, 5 affiliated entities and 3 associated partners. The composition of the Consortium seeks to reflect the different roles and institutions in the governance of the HealthData@EU; virtually consider all types of data and science of interest; and gather the expertise of previous outstanding projects in the domain
Fields of science (EuroSciVoc)
CORDIS classifies projects with EuroSciVoc, a multilingual taxonomy of fields of science, through a semi-automatic process based on NLP techniques. See: https://op.europa.eu/en/web/eu-vocabularies/euroscivoc.
This project's classification has been validated by the project's team.
CORDIS classifies projects with EuroSciVoc, a multilingual taxonomy of fields of science, through a semi-automatic process based on NLP techniques. See: https://op.europa.eu/en/web/eu-vocabularies/euroscivoc.
This project's classification has been validated by the project's team.
- medical and health sciences health sciences public health
- engineering and technology electrical engineering, electronic engineering, information engineering information engineering
- social sciences economics and business business and management innovation management
- medical and health sciences health sciences personalized medicine
- medical and health sciences clinical medicine
Keywords
Project’s keywords as indicated by the project coordinator. Not to be confused with the EuroSciVoc taxonomy (Fields of science)
Project’s keywords as indicated by the project coordinator. Not to be confused with the EuroSciVoc taxonomy (Fields of science)
Programme(s)
Multi-annual funding programmes that define the EU’s priorities for research and innovation.
Multi-annual funding programmes that define the EU’s priorities for research and innovation.
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HORIZON.2.1 - Health
MAIN PROGRAMME
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HORIZON.2.1.5 - Tools, Technologies and Digital Solutions for Health and Care, including personalised medicine
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Topic(s)
Calls for proposals are divided into topics. A topic defines a specific subject or area for which applicants can submit proposals. The description of a topic comprises its specific scope and the expected impact of the funded project.
Calls for proposals are divided into topics. A topic defines a specific subject or area for which applicants can submit proposals. The description of a topic comprises its specific scope and the expected impact of the funded project.
Funding Scheme
Funding scheme (or “Type of Action”) inside a programme with common features. It specifies: the scope of what is funded; the reimbursement rate; specific evaluation criteria to qualify for funding; and the use of simplified forms of costs like lump sums.
Funding scheme (or “Type of Action”) inside a programme with common features. It specifies: the scope of what is funded; the reimbursement rate; specific evaluation criteria to qualify for funding; and the use of simplified forms of costs like lump sums.
HORIZON-CSA - HORIZON Coordination and Support Actions
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Call for proposal
Procedure for inviting applicants to submit project proposals, with the aim of receiving EU funding.
Procedure for inviting applicants to submit project proposals, with the aim of receiving EU funding.
(opens in new window) HORIZON-HLTH-2023-TOOL-05
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50009 Zaragoza
Spain
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Participants (33)
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1050 ELSENE
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75015 Paris
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Legal entity other than a subcontractor which is affiliated or legally linked to a participant. The entity carries out work under the conditions laid down in the Grant Agreement, supplies goods or provides services for the action, but did not sign the Grant Agreement. A third party abides by the rules applicable to its related participant under the Grant Agreement with regard to eligibility of costs and control of expenditure.
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31052 Toulouse Cedex 3
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33404 Talence
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Legal entity other than a subcontractor which is affiliated or legally linked to a participant. The entity carries out work under the conditions laid down in the Grant Agreement, supplies goods or provides services for the action, but did not sign the Grant Agreement. A third party abides by the rules applicable to its related participant under the Grant Agreement with regard to eligibility of costs and control of expenditure.
Net EU financial contribution. The sum of money that the participant receives, deducted by the EU contribution to its linked third party. It considers the distribution of the EU financial contribution between direct beneficiaries of the project and other types of participants, like third-party participants.
69002 Lyon
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9860 OOSTERZELE
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20123 MILANO
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8010 GRAZ
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1040 BRUXELLES
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1010 Wien
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46022 VALENCIA
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3521 AL Utrecht
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1000 BRUSSEL
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75012 Paris
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9052 ZWIJNAARDE - GENT
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10000 Zagreb
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00029 Helsinki
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00271 Helsinki
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75014 Paris
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53175 Bonn
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CITY GATE UNIT 1301 Mahon
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00161 Roma
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5058 Bergen
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Net EU financial contribution. The sum of money that the participant receives, deducted by the EU contribution to its linked third party. It considers the distribution of the EU financial contribution between direct beneficiaries of the project and other types of participants, like third-party participants.
1011 JV AMSTERDAM
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Net EU financial contribution. The sum of money that the participant receives, deducted by the EU contribution to its linked third party. It considers the distribution of the EU financial contribution between direct beneficiaries of the project and other types of participants, like third-party participants.
105 52 Athina
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0277 Oslo
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4099-002 Porto
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1050 189 Lisboa
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1000 Ljubljana
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3015 GD Rotterdam
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93326 Abensberg
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0213 Oslo
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0456 Oslo
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Partners (4)
Partner organisations contribute to the implementation of the action, but do not sign the Grant Agreement.
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NW1 2BE London
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CO4 3SQ Colchester
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75654 PARIS
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Partner organisations contribute to the implementation of the action, but do not sign the Grant Agreement.
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93218 Saint Denis La Plaine Cedex
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