CORDIS fournit des liens vers les livrables publics et les publications des projets HORIZON.
Les liens vers les livrables et les publications des projets du 7e PC, ainsi que les liens vers certains types de résultats spécifiques tels que les jeux de données et les logiciels, sont récupérés dynamiquement sur OpenAIRE .
Livrables
By building on previous and ongoing RRI projects we will develop methodological guidelines for using crowdsourcing as a radical next step towards inclusive open science
Standard operating procedure document (SOP) to engage high school students via the platform (s’ouvre dans une nouvelle fenêtre)The concept is adjusted for pupils containing guidelines how to suggest topics, vote on topics and form working groups via the project internet platform taking outputs of WPs3, 4 and 5 into account
Benchmark methodology on implementing RRI and crowdsourcing for ongoing and future projects (s’ouvre dans une nouvelle fenêtre)Develop a benchmark methodology on implementing RRI and crowdsourcing for ongoing and future projects in close collaboration with the RRI community and the RRI advisory panel (M30)JOINUS4HEALTH converges RRI and crowdsourcing to foster inclusive innovation in health research, opting for a systemic, institutional approach, combining retrospection (lessons learned) with prospective (co-constructive) approaches. Building on previous and parallel methodological developments and consciously high-lighting the methodological dimension of our activities, we develop and validate a benchmark methodology for integrating RRI and crowdsourcing in inclusive health innovation. Project results will be in line with the rules and regulations to ensure IPR. Communications will be monitored prior to release, and the entire consortium made aware of pending release of results into the public domain.
Evaluation report on implemented institutional changes (s’ouvre dans une nouvelle fenêtre)Evaluation Report will include goals, roadmap, practical examples and best practices of implemented Institutional Changes and recommendations for similar projects in the future
Online courses on RRI designed for different target groups, ranging from citizens to researchers (s’ouvre dans une nouvelle fenêtre)A core curriculum of courses on epidemiology, data science and statistics that already are available at the epidemiological teaching facility in Rotterdam will be adapted such that these are also accessible for citizens. These will be translated into online format to benefit exchangeability with participating consortium partners. This translation also facilitates RRI sustainability and maintenance of these programs in all participating institutions beyond the duration of this project. Moreover, given long-term impact of the corona pandemic on educational training, this online format can serve as proof-of-principle for other educational institutions to adapt their curricula.
Final M& E Report (s’ouvre dans une nouvelle fenêtre)The report summarizes monitoring outcomes throughout the project and results of the three evaluations in M12, 24 and 32. Perspectives of different stakeholder groups are presented collected as part of the evaluations with a special emphasis on sustainability assessment.
Report on technical implementation of the platform (s’ouvre dans une nouvelle fenêtre)The report summarizes the features implemented as part of JOINUS4HEALTH. Indicators of the use of the platform and user feedback are summarized.Strengths and weaknesses are documented along with options for future improvements.
Monitoring and evaluation (M&E) framework (s’ouvre dans une nouvelle fenêtre)The ME Framework defines key indicators and a Monitoring and Evaluation Matrix for each project objective Different levels of the project are assessed using a variety of data collected using different methods and specific indicators
Policy brief 1 (s’ouvre dans une nouvelle fenêtre)A short policy brief is communicated in month 6 The policy brief is circulated via various means eg targeted communications website social media
Report on the implementation of institutional changes (s’ouvre dans une nouvelle fenêtre)The report will include challenges and facilitators of the implementation of institutional changes by project partners. It will also consist of a report on reaching milestones assigned to this stage of the project.
Reports on ongoing initiatives that use educational training programs that teach RRI and aim to engage citizens in science (s’ouvre dans une nouvelle fenêtre)We will map ongoing initiatives at national EU and international level where educational programs have been used to teach RRI and where these have been used to engage citizens pupils and students in science We will analyse main barriers and facilitators to implement educational programs at an institutional level To carry out these activities we will conduct literature search and consult stakeholders including JOINUS4HEALTH consortium members and relevant stakeholders outside the consortium including NGOs and educational offices
Reports on the engagement of citizens in (online) scientific courses, and contributions of high school and students in scientific research (s’ouvre dans une nouvelle fenêtre)A report summarizing the communication activities and dissemination of the results throughout the project. The aim will be to verify the achievement of the assumed indicators.
Evaluation report on communication and dissemination strategy (s’ouvre dans une nouvelle fenêtre)A report summarizing the communication activities and dissemination of the results throughout the project. The aim will be to verify the achievement of the assumed indicators.
Reports on educational material to teach RRI across different educational levels (s’ouvre dans une nouvelle fenêtre)We will develop a series of online courses and webinars that are specifically dedicated to RRI. These courses are open to involved citizens and researchers, and can also serve as a network hub to bring together researchers and citizens that are interested in science.
Peer-review publication on factors affecting engagement and uptake of RRI in cohort research (s’ouvre dans une nouvelle fenêtre)Based on the results and the experiences within the project, and in interaction with evolving RRI discourse, we will contribute to RRI and inclusive open science via peer-reviewed open-access academic publications to provide relevant and validated input for similar and future projects in multiple areas of application.
Published recommendations for policy makers to integrate RRI in educational programs (s’ouvre dans une nouvelle fenêtre)We will scrutinize and summarize relevant documents that include theoretical knowledge practical abilities and relational attitudes that can be included in a core curriculum for RRI through a literature search We will subsequently consult stakeholders involving supportive partners in the participating countries and other relevant actors To identify final items to be included in this core curriculum for educational training we will conduct a Delphi survey among the different stakeholders
Report on the technical requirement including tools to be used for webinars (s’ouvre dans une nouvelle fenêtre)Technical requirements and design of the platform are specified based on which the platform is being developedTools and standards are agreed on to support webinars and online working groups
Events (s’ouvre dans une nouvelle fenêtre)This report provides information title date location content on significant events conferences seminars workshops which will be organised as part of JoinUs4Health Information is updated at each reporting period
Policy brief 2 (s’ouvre dans une nouvelle fenêtre)Second policy brief, which is circulated via various channels.
The DMP describes the data management life cycle for the data to be collected processed andor generated by JoinUs4Health FAIR principles findable accessible interoperable and reusable are applied Conditions for data management and utilization are specified
Publications
Auteurs:
Ana Barbosa Mendes, Natalie Terzikhan, Pawel Sowa, Lukasz Kiszkiel, Robert Kondracki
BenjaminWinter, Katarzyna Sztop-Rutkowska, Henry Völzke, Karol Kaminski, M. Arfan5
Ikram, Hub Zwart, Birgit Schauer, Silvan Licher
Publié dans:
Originally submitted to Journal of RI, 2021
Éditeur:
OSF Preprints
DOI:
10.5281/zenodo.11045788
Auteurs:
Ana Barbosa Mendes, Silvan Licher, Natalie Terzikhan, Pawel Sowa, Lukasz Kiszkiel, Henry Völzke, Hub Zwart, Birgit Schauer
Publié dans:
2022
Éditeur:
OSF Preprints
DOI:
10.31219/osf.io/t47yh
Auteurs:
Schauer B., Steinberg J., Sowa P., Kiszkiel L., Licher S., Terzikhan N., Winter B., Sztop-Rutkowska K., Stempniak K., Teichert U., Wolejsza P., Spijkers K., Remmers G., Schmidt C., Silber H., Richter A., Ikram A., Kaminski K., Voelzke H., Zwart H.
Publié dans:
16th annual meeting of the German Society for Epidemiology, Numéro 2021 annual meeting, 2021, Page(s) 124
Éditeur:
German Society for Epidemiology
DOI:
10.5281/zenodo.11045954
Auteurs:
Hub Zwart*, Ana Barbosa Mendes, Vincent Blok
Publié dans:
Journal of Responsible Innovation, Numéro 11, 2024, Page(s) 1-18, ISSN 2329-9037
Éditeur:
Abingdon, Oxon, UK Taylor & Francis Group
DOI:
10.1080/23299460.2024.2326721
Auteurs:
Ikram A, Brouwer W, Brusselle G, Chaker L, Ghanbari M, Goedegebure A, Ikram M, Kavousi M, Klaver C, de Knegt R, Luik Avan Meurs J, Pardo Cortes L, Rivadeneira Fvan Rooij, Vernooij M, Voortman T, Kieboom B, Terzikhan N
Publié dans:
European Journal of Epidemiology, Numéro 39(2), 2024, Page(s) 183-206, ISSN 0393-2990
Éditeur:
Kluwer Academic Publishers
DOI:
10.1007/s10654-023-01094-1
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