CORDIS fornisce collegamenti ai risultati finali pubblici e alle pubblicazioni dei progetti ORIZZONTE.
I link ai risultati e alle pubblicazioni dei progetti del 7° PQ, così come i link ad alcuni tipi di risultati specifici come dataset e software, sono recuperati dinamicamente da .OpenAIRE .
Risultati finali
By building on previous and ongoing RRI projects we will develop methodological guidelines for using crowdsourcing as a radical next step towards inclusive open science
Standard operating procedure document (SOP) to engage high school students via the platform (si apre in una nuova finestra)The concept is adjusted for pupils containing guidelines how to suggest topics, vote on topics and form working groups via the project internet platform taking outputs of WPs3, 4 and 5 into account
Benchmark methodology on implementing RRI and crowdsourcing for ongoing and future projects (si apre in una nuova finestra)Develop a benchmark methodology on implementing RRI and crowdsourcing for ongoing and future projects in close collaboration with the RRI community and the RRI advisory panel (M30)JOINUS4HEALTH converges RRI and crowdsourcing to foster inclusive innovation in health research, opting for a systemic, institutional approach, combining retrospection (lessons learned) with prospective (co-constructive) approaches. Building on previous and parallel methodological developments and consciously high-lighting the methodological dimension of our activities, we develop and validate a benchmark methodology for integrating RRI and crowdsourcing in inclusive health innovation. Project results will be in line with the rules and regulations to ensure IPR. Communications will be monitored prior to release, and the entire consortium made aware of pending release of results into the public domain.
Evaluation report on implemented institutional changes (si apre in una nuova finestra)Evaluation Report will include goals, roadmap, practical examples and best practices of implemented Institutional Changes and recommendations for similar projects in the future
Online courses on RRI designed for different target groups, ranging from citizens to researchers (si apre in una nuova finestra)A core curriculum of courses on epidemiology, data science and statistics that already are available at the epidemiological teaching facility in Rotterdam will be adapted such that these are also accessible for citizens. These will be translated into online format to benefit exchangeability with participating consortium partners. This translation also facilitates RRI sustainability and maintenance of these programs in all participating institutions beyond the duration of this project. Moreover, given long-term impact of the corona pandemic on educational training, this online format can serve as proof-of-principle for other educational institutions to adapt their curricula.
Final M& E Report (si apre in una nuova finestra)The report summarizes monitoring outcomes throughout the project and results of the three evaluations in M12, 24 and 32. Perspectives of different stakeholder groups are presented collected as part of the evaluations with a special emphasis on sustainability assessment.
Report on technical implementation of the platform (si apre in una nuova finestra)The report summarizes the features implemented as part of JOINUS4HEALTH. Indicators of the use of the platform and user feedback are summarized.Strengths and weaknesses are documented along with options for future improvements.
Monitoring and evaluation (M&E) framework (si apre in una nuova finestra)The ME Framework defines key indicators and a Monitoring and Evaluation Matrix for each project objective Different levels of the project are assessed using a variety of data collected using different methods and specific indicators
Policy brief 1 (si apre in una nuova finestra)A short policy brief is communicated in month 6 The policy brief is circulated via various means eg targeted communications website social media
Report on the implementation of institutional changes (si apre in una nuova finestra)The report will include challenges and facilitators of the implementation of institutional changes by project partners. It will also consist of a report on reaching milestones assigned to this stage of the project.
Reports on ongoing initiatives that use educational training programs that teach RRI and aim to engage citizens in science (si apre in una nuova finestra)We will map ongoing initiatives at national EU and international level where educational programs have been used to teach RRI and where these have been used to engage citizens pupils and students in science We will analyse main barriers and facilitators to implement educational programs at an institutional level To carry out these activities we will conduct literature search and consult stakeholders including JOINUS4HEALTH consortium members and relevant stakeholders outside the consortium including NGOs and educational offices
Reports on the engagement of citizens in (online) scientific courses, and contributions of high school and students in scientific research (si apre in una nuova finestra)A report summarizing the communication activities and dissemination of the results throughout the project. The aim will be to verify the achievement of the assumed indicators.
Evaluation report on communication and dissemination strategy (si apre in una nuova finestra)A report summarizing the communication activities and dissemination of the results throughout the project. The aim will be to verify the achievement of the assumed indicators.
Reports on educational material to teach RRI across different educational levels (si apre in una nuova finestra)We will develop a series of online courses and webinars that are specifically dedicated to RRI. These courses are open to involved citizens and researchers, and can also serve as a network hub to bring together researchers and citizens that are interested in science.
Peer-review publication on factors affecting engagement and uptake of RRI in cohort research (si apre in una nuova finestra)Based on the results and the experiences within the project, and in interaction with evolving RRI discourse, we will contribute to RRI and inclusive open science via peer-reviewed open-access academic publications to provide relevant and validated input for similar and future projects in multiple areas of application.
Published recommendations for policy makers to integrate RRI in educational programs (si apre in una nuova finestra)We will scrutinize and summarize relevant documents that include theoretical knowledge practical abilities and relational attitudes that can be included in a core curriculum for RRI through a literature search We will subsequently consult stakeholders involving supportive partners in the participating countries and other relevant actors To identify final items to be included in this core curriculum for educational training we will conduct a Delphi survey among the different stakeholders
Report on the technical requirement including tools to be used for webinars (si apre in una nuova finestra)Technical requirements and design of the platform are specified based on which the platform is being developedTools and standards are agreed on to support webinars and online working groups
Events (si apre in una nuova finestra)This report provides information title date location content on significant events conferences seminars workshops which will be organised as part of JoinUs4Health Information is updated at each reporting period
Policy brief 2 (si apre in una nuova finestra)Second policy brief, which is circulated via various channels.
The DMP describes the data management life cycle for the data to be collected processed andor generated by JoinUs4Health FAIR principles findable accessible interoperable and reusable are applied Conditions for data management and utilization are specified
Pubblicazioni
Autori:
Ana Barbosa Mendes, Natalie Terzikhan, Pawel Sowa, Lukasz Kiszkiel, Robert Kondracki
BenjaminWinter, Katarzyna Sztop-Rutkowska, Henry Völzke, Karol Kaminski, M. Arfan5
Ikram, Hub Zwart, Birgit Schauer, Silvan Licher
Pubblicato in:
Originally submitted to Journal of RI, 2021
Editore:
OSF Preprints
DOI:
10.5281/zenodo.11045788
Autori:
Ana Barbosa Mendes, Silvan Licher, Natalie Terzikhan, Pawel Sowa, Lukasz Kiszkiel, Henry Völzke, Hub Zwart, Birgit Schauer
Pubblicato in:
2022
Editore:
OSF Preprints
DOI:
10.31219/osf.io/t47yh
Autori:
Schauer B., Steinberg J., Sowa P., Kiszkiel L., Licher S., Terzikhan N., Winter B., Sztop-Rutkowska K., Stempniak K., Teichert U., Wolejsza P., Spijkers K., Remmers G., Schmidt C., Silber H., Richter A., Ikram A., Kaminski K., Voelzke H., Zwart H.
Pubblicato in:
16th annual meeting of the German Society for Epidemiology, Numero 2021 annual meeting, 2021, Pagina/e 124
Editore:
German Society for Epidemiology
DOI:
10.5281/zenodo.11045954
Autori:
Hub Zwart*, Ana Barbosa Mendes, Vincent Blok
Pubblicato in:
Journal of Responsible Innovation, Numero 11, 2024, Pagina/e 1-18, ISSN 2329-9037
Editore:
Abingdon, Oxon, UK Taylor & Francis Group
DOI:
10.1080/23299460.2024.2326721
Autori:
Ikram A, Brouwer W, Brusselle G, Chaker L, Ghanbari M, Goedegebure A, Ikram M, Kavousi M, Klaver C, de Knegt R, Luik Avan Meurs J, Pardo Cortes L, Rivadeneira Fvan Rooij, Vernooij M, Voortman T, Kieboom B, Terzikhan N
Pubblicato in:
European Journal of Epidemiology, Numero 39(2), 2024, Pagina/e 183-206, ISSN 0393-2990
Editore:
Kluwer Academic Publishers
DOI:
10.1007/s10654-023-01094-1
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