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FrAmework for ClInicaL trIal participants daTA reutilization for a fully Transparent and Ethical ecosystem

Project description

Finding ways to access, use and reuse patient data

Has the EU General Data Protection Regulation (GDPR) limited Europe’s capabilities in innovative drug development? The EU-funded FACILITATE project will explore the issue. Its aim is to find an ethical and GDPR-compliant framework for returning clinical trial data to study participants. Specifically, it will look for ways to allow patients’ data to be accessed, used and reused. The project will also show how a patient-centred data-driven approach can improve the drug development and approval process. The findings will shed new light on future strategies and opportunities for medicines development and regulation.

Coordinator

UNIVERSITA DEGLI STUDI DI MODENA E REGGIO EMILIA
Net EU contribution
€ 592 348,75
Address
Via Universita 4
41121 Modena
Italy

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Region
Nord-Est Emilia-Romagna Modena
Activity type
Higher or Secondary Education Establishments
Other funding
€ 0,00

Participants (28)

VRIJE UNIVERSITEIT BRUSSEL
Belgium
Net EU contribution
€ 237 500,00
Address
Pleinlaan 2
1050 Brussel

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Region
Région de Bruxelles-Capitale/Brussels Hoofdstedelijk Gewest Région de Bruxelles-Capitale/ Brussels Hoofdstedelijk Gewest Arr. de Bruxelles-Capitale/Arr. Brussel-Hoofdstad
Activity type
Higher or Secondary Education Establishments
Other funding
€ 0,00
TAMPEREEN KORKEAKOULUSAATIO SR
Finland
Net EU contribution
€ 215 250,00
Address
Kalevantie 4
33100 Tampere

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Region
Manner-Suomi Länsi-Suomi Pirkanmaa
Activity type
Higher or Secondary Education Establishments
Other funding
€ 0,00
STICHTING EUPATI FOUNDATION
Netherlands
Net EU contribution
€ 56 137,50
Address
Daltonlaan 600
3584 BK Utrecht

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Region
West-Nederland Utrecht Utrecht
Activity type
Other
Other funding
€ 0,00
Third-party

Legal entity other than a subcontractor which is affiliated or legally linked to a participant. The entity carries out work under the conditions laid down in the Grant Agreement, supplies goods or provides services for the action, but did not sign the Grant Agreement. A third party abides by the rules applicable to its related participant under the Grant Agreement with regard to eligibility of costs and control of expenditure.

ACCADEMIA DEL PAZIENTE ESPERTO EUPATI APS
Italy
Net EU contribution
€ 25 987,50
Address
Via Pietro De Francisci 36
00165 Roma

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Region
Centro (IT) Lazio Roma
Activity type
Other
Other funding
€ 0,00
ASSOCIAZIONE CITTADINANZATTIVA ONLUS
Italy
Net EU contribution
€ 175 225,00
Address
Via Cereate 6
00183 Roma

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Region
Centro (IT) Lazio Roma
Activity type
Other
Other funding
€ 0,00
PRIVANOVA SAS
France
Net EU contribution
€ 290 000,00
Address
34 Avenue Des Champs-elysées
75008 Paris

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SME

The organization defined itself as SME (small and medium-sized enterprise) at the time the Grant Agreement was signed.

Yes
Region
Ile-de-France Ile-de-France Paris
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
Other funding
€ 0,00
ODYSSEUS DATA SERVICES SRO
Czechia
Net EU contribution
€ 381 625,00
Address
Pobrezni 249/46 Karlin
186 00 Praha

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SME

The organization defined itself as SME (small and medium-sized enterprise) at the time the Grant Agreement was signed.

Yes
Region
Jihovýchod Jihomoravský kraj
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
Other funding
€ 0,00
PRIVREDNO DRUSTVO ZENTRIX LAB DRUSTVO SA OGRANICENOM ODGOVORNOSCU PANCEVO
Serbia
Net EU contribution
€ 268 375,00
Address
Aksentija Maksimovica 3
26000 Pancevo

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SME

The organization defined itself as SME (small and medium-sized enterprise) at the time the Grant Agreement was signed.

Yes
Region
Србија - север Регион Војводине Јужнобанатска област
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
Other funding
€ 0,00
INPECO SA
Switzerland
Net EU contribution
€ 0,00
Address
Via Torraccia 26
6883 Novazzano

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Region
Schweiz/Suisse/Svizzera Ticino Ticino
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
Other funding
€ 38 000,00
Third-party

Legal entity other than a subcontractor which is affiliated or legally linked to a participant. The entity carries out work under the conditions laid down in the Grant Agreement, supplies goods or provides services for the action, but did not sign the Grant Agreement. A third party abides by the rules applicable to its related participant under the Grant Agreement with regard to eligibility of costs and control of expenditure.

INPECO TPM SRL
Italy
Net EU contribution
€ 0,00
Address
Localita Piscinamanna Snc
09010 Pula

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Region
Isole Sardegna Sud Sardegna
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
Other funding
€ 10 000,00
ADERA SAS
France
Net EU contribution
€ 91 500,00
Address
Av Du Docteur Albert Schweitzer 162
33600 Pessac

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Region
Nouvelle-Aquitaine Aquitaine Gironde
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
Other funding
€ 0,00
AZIENDA OSPEDALIERA UNIVERSITARIA POLICLINICO DI MODENA
Italy
Net EU contribution
€ 72 500,00
Address
Via Del Pozzo 71
41124 Modena

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Region
Nord-Est Emilia-Romagna Modena
Activity type
Research Organisations
Other funding
€ 0,00
MEDIZINISCHE UNIVERSITAT GRAZ
Austria
Net EU contribution
€ 134 625,00
Address
Neue Stiftingtalstrasse 6
8010 Graz

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Region
Südösterreich Steiermark Graz
Activity type
Higher or Secondary Education Establishments
Other funding
€ 0,00
UNIWERSYTET JAGIELLONSKI
Poland
Net EU contribution
€ 77 750,00
Address
Ul. Golebia 24
31-007 Krakow

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Region
Makroregion południowy Małopolskie Miasto Kraków
Activity type
Higher or Secondary Education Establishments
Other funding
€ 0,00
INSTITUT ZA MEDICINSKA ISTRA IVANJA
Serbia
Net EU contribution
€ 83 062,50
Address
Dr Subotica 4 Prizemlje
11129 Belgrade

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Region
Србија - север Београдски регион Београдска област
Activity type
Research Organisations
Other funding
€ 0,00
SPITALUL CLINIC COLENTINA BUCURESTI
Romania
Net EU contribution
€ 54 675,00
Address
Soseaua Stefan Cel Mare 19-21 Sector 2
020125 Bucuresti

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Region
Macroregiunea Trei Bucureşti-Ilfov Bucureşti
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
Other funding
€ 0,00
ST ANTONIUS HOSPITAL GRONAU GMBH
Germany
Net EU contribution
€ 87 938,75
Address
Mollenweg 22
48599 Gronau

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Region
Nordrhein-Westfalen Münster Borken
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
Other funding
€ 0,00
ACCADEMIA EUROPEA DI BOLZANO
Italy
Net EU contribution
€ 275 250,00
Address
Viale Druso 1
39100 Bolzano

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Region
Nord-Est Provincia Autonoma di Bolzano/Bozen Bolzano-Bozen
Activity type
Research Organisations
Other funding
€ 0,00
EURORDIS - EUROPEAN ORGANISATION FOR RARE DISEASES ASSOCIATION
France
Net EU contribution
€ 140 250,00
Other funding
€ 0,00
SANOFI-AVENTIS RECHERCHE & DEVELOPPEMENT
France
Net EU contribution
€ 0,00
Address
Pierre Brossolette 1
91380 Chilly Mazarin

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Region
Ile-de-France Ile-de-France Essonne
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
Other funding
€ 1 100 000,00
MDSOL EUROPE LTD
United Kingdom
Net EU contribution
€ 0,00
Address
12 Hammersmith Grove
W6 7AP London

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Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
Other funding
€ 200 000,00
ABBVIE INC
United States
Net EU contribution
€ 0,00
Address
North Waukegan Road 1
60064 North Chicago Il

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Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
Other funding
€ 62 807,00
ASTRAZENECA AB
Sweden
Net EU contribution
€ 0,00
Address
Vastra Maelarhamnen
151 85 Sodertaelje

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Region
Östra Sverige Stockholm Stockholms län
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
Other funding
€ 200 000,00
BAYER AKTIENGESELLSCHAFT
Germany
Net EU contribution
€ 0,00
Address
Kaiser-wilhelm-allee 1
51373 Leverkusen

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Region
Nordrhein-Westfalen Köln Leverkusen, Kreisfreie Stadt
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
Other funding
€ 350 000,00
PFIZER LIMITED
United Kingdom
Net EU contribution
€ 0,00
Address
Ramsgate Road
CT13 9NJ Sandwich

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Region
South East (England) Kent East Kent
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
Other funding
€ 500 000,00
TAKEDA PHARMACEUTICALS INTERNATIONAL AG
Switzerland
Net EU contribution
€ 0,00
Address
Thurgauerstrasse 130
8152 Glattpark

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Region
Schweiz/Suisse/Svizzera Zürich Zürich
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
Other funding
€ 500 000,00
ALMIRALL SA
Spain
Net EU contribution
€ 0,00
Address
General Mitre 151
08022 Barcelona

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Region
Este Cataluña Barcelona
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
Other funding
€ 215 904,00
INSTITUT DE RECHERCHES SERVIER
France
Net EU contribution
€ 0,00
Address
3 Rue De La Republique
92150 Suresnes

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Region
Ile-de-France Ile-de-France Hauts-de-Seine
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
Other funding
€ 450 000,00