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CORDIS - Resultados de investigaciones de la UE
CORDIS

THE STRONG-AYA INITIATIVE: IMPROVING THE FUTURE OF YOUNG ADULTS WITH CANCER

CORDIS proporciona enlaces a los documentos públicos y las publicaciones de los proyectos de los programas marco HORIZONTE.

Los enlaces a los documentos y las publicaciones de los proyectos del Séptimo Programa Marco, así como los enlaces a algunos tipos de resultados específicos, como conjuntos de datos y «software», se obtienen dinámicamente de OpenAIRE .

Resultado final

Project communication plan and initial tool set (se abrirá en una nueva ventana)

Project communication plan (M8): Plan for communicating the project progress and its results. It will comprise dissemination objectives, target audience, tools and planned activities.

Report on the initial core outcome set (se abrirá en una nueva ventana)

Report on the initial core outcome set (M12): Report on the initial core outcome set including results of consensus panel and learnings from the data collection pilot exercise.

Study 2 initiation package (se abrirá en una nueva ventana)

Study 2 initiation package (before enrolment of the first study participant) including:-Registration number of the clinical study in a registry meeting WHO Registry criteria -Final version of study protocol as approved by the regulator(s) / ethics committee(s)-Regulatory and ethics (if applicable, institutional) approvals required for the enrolment of the first study participant

Operational plans for the Pan-European umbrella ecosystem (se abrirá en una nueva ventana)

Operational plans for the Pan-European umbrella ecosystem (M12): Operational plan containing description of main actions required for the deployment and functioning of the Pan European ecosystem.

Repository of use cases of the ecosystems (se abrirá en una nueva ventana)

Repository of use cases of the ecosystems (M12): Repository of use cases use cases developed in collaboration with WP3 that will serve to provide examples of use of the ecosystems.

Scientific publication plan (se abrirá en una nueva ventana)

Scientific publication plan (M12): Plan development to support and promote scientific publications and participation in conferences.

Material for education and clinical implementation (se abrirá en una nueva ventana)

Material for education and clinical implementation (M18): This will include educational material and recommendations for patient recruitment and physician engagement.

Midterm recruitment report study 1 (se abrirá en una nueva ventana)

This report is due when 50% of the study population is recruited for study 1. The report shall include an overview of the number of recruited participants by clinical sites, any problems in recruitment and, if applicable, a detailed description of implemented and planned measures to compensate for any incurred delays.

STRONG-AYA Ethics report, with interim reports following Ethics workshops (se abrirá en una nueva ventana)

STRONG-AYA Ethics report, with interim reports following Ethics workshops (M12)

Leaflets explaining outcomes in lay terms (se abrirá en una nueva ventana)

Leaflets explaining outcomes in lay terms (M12): Training material for PAB members to enable their informed participation in decisions on indicator selection and interpreting outcome findings.

Publicaciones

Getting real about synthetic data ethics: Are AI ethics principles a good starting point for synthetic data ethics? (se abrirá en una nueva ventana)

Autores: Danielle Shanley; Joshi Hogenboom; Flora Lysen; Leonard Wee; Aiara Lobo Gomes; Andre Dekker; Darian Meacham
Publicado en: EMBO Reports: Science and Society, Edición 25, 2024, ISSN 1469-3178
Editor: EMBO Press
DOI: 10.1038/s44319-024-00101-0

Protocol for the development of a Core Outcome Set (COS) for Adolescents and Young Adults (AYAs) with cancer (se abrirá en una nueva ventana)

Autores: Olga Husson, Silvie H. M. Janssen, Bryce B. Reeve, Samantha C. Sodergren, Christabel K. Cheung, Martin G. McCabe, John M. Salsman, Winette T. A. van der Graaf & Anne-Sophie Darlington
Publicado en: BMC Cancer, 2024, ISSN 1471-2407
Editor: BioMed Central
DOI: 10.1186/s12885-023-11716-2

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