Risultati finali
Project communication plan (M8): Plan for communicating the project progress and its results. It will comprise dissemination objectives, target audience, tools and planned activities.
Report on the initial core outcome setReport on the initial core outcome set (M12): Report on the initial core outcome set including results of consensus panel and learnings from the data collection pilot exercise.
Study 2 initiation packageStudy 2 initiation package (before enrolment of the first study participant) including:-Registration number of the clinical study in a registry meeting WHO Registry criteria -Final version of study protocol as approved by the regulator(s) / ethics committee(s)-Regulatory and ethics (if applicable, institutional) approvals required for the enrolment of the first study participant
Repository of use cases of the ecosystemsRepository of use cases of the ecosystems (M12): Repository of use cases use cases developed in collaboration with WP3 that will serve to provide examples of use of the ecosystems.
Scientific publication planScientific publication plan (M12): Plan development to support and promote scientific publications and participation in conferences.
Material for education and clinical implementationMaterial for education and clinical implementation (M18): This will include educational material and recommendations for patient recruitment and physician engagement.
Midterm recruitment report study 1This report is due when 50% of the study population is recruited for study 1. The report shall include an overview of the number of recruited participants by clinical sites, any problems in recruitment and, if applicable, a detailed description of implemented and planned measures to compensate for any incurred delays.
STRONG-AYA Ethics report, with interim reports following Ethics workshopsSTRONG-AYA Ethics report, with interim reports following Ethics workshops (M12)
Leaflets explaining outcomes in lay termsLeaflets explaining outcomes in lay terms (M12): Training material for PAB members to enable their informed participation in decisions on indicator selection and interpreting outcome findings.
Pubblicazioni
Autori:
Danielle Shanley; Joshi Hogenboom; Flora Lysen; Leonard Wee; Aiara Lobo Gomes; Andre Dekker; Darian Meacham
Pubblicato in:
EMBO Reports: Science and Society, Numero 25, 2024, ISSN 1469-3178
Editore:
EMBO Press
DOI:
10.1038/s44319-024-00101-0
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