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CORDIS - Risultati della ricerca dell’UE
CORDIS

THE STRONG-AYA INITIATIVE: IMPROVING THE FUTURE OF YOUNG ADULTS WITH CANCER

CORDIS fornisce collegamenti ai risultati finali pubblici e alle pubblicazioni dei progetti ORIZZONTE.

I link ai risultati e alle pubblicazioni dei progetti del 7° PQ, così come i link ad alcuni tipi di risultati specifici come dataset e software, sono recuperati dinamicamente da .OpenAIRE .

Risultati finali

Project communication plan and initial tool set (si apre in una nuova finestra)

Project communication plan (M8): Plan for communicating the project progress and its results. It will comprise dissemination objectives, target audience, tools and planned activities.

Report on the initial core outcome set (si apre in una nuova finestra)

Report on the initial core outcome set (M12): Report on the initial core outcome set including results of consensus panel and learnings from the data collection pilot exercise.

Study 2 initiation package (si apre in una nuova finestra)

Study 2 initiation package (before enrolment of the first study participant) including:-Registration number of the clinical study in a registry meeting WHO Registry criteria -Final version of study protocol as approved by the regulator(s) / ethics committee(s)-Regulatory and ethics (if applicable, institutional) approvals required for the enrolment of the first study participant

Operational plans for the Pan-European umbrella ecosystem (si apre in una nuova finestra)

Operational plans for the Pan-European umbrella ecosystem (M12): Operational plan containing description of main actions required for the deployment and functioning of the Pan European ecosystem.

Repository of use cases of the ecosystems (si apre in una nuova finestra)

Repository of use cases of the ecosystems (M12): Repository of use cases use cases developed in collaboration with WP3 that will serve to provide examples of use of the ecosystems.

Scientific publication plan (si apre in una nuova finestra)

Scientific publication plan (M12): Plan development to support and promote scientific publications and participation in conferences.

Material for education and clinical implementation (si apre in una nuova finestra)

Material for education and clinical implementation (M18): This will include educational material and recommendations for patient recruitment and physician engagement.

Midterm recruitment report study 1 (si apre in una nuova finestra)

This report is due when 50% of the study population is recruited for study 1. The report shall include an overview of the number of recruited participants by clinical sites, any problems in recruitment and, if applicable, a detailed description of implemented and planned measures to compensate for any incurred delays.

STRONG-AYA Ethics report, with interim reports following Ethics workshops (si apre in una nuova finestra)

STRONG-AYA Ethics report, with interim reports following Ethics workshops (M12)

Leaflets explaining outcomes in lay terms (si apre in una nuova finestra)

Leaflets explaining outcomes in lay terms (M12): Training material for PAB members to enable their informed participation in decisions on indicator selection and interpreting outcome findings.

Pubblicazioni

Getting real about synthetic data ethics: Are AI ethics principles a good starting point for synthetic data ethics? (si apre in una nuova finestra)

Autori: Danielle Shanley; Joshi Hogenboom; Flora Lysen; Leonard Wee; Aiara Lobo Gomes; Andre Dekker; Darian Meacham
Pubblicato in: EMBO Reports: Science and Society, Numero 25, 2024, ISSN 1469-3178
Editore: EMBO Press
DOI: 10.1038/s44319-024-00101-0

Protocol for the development of a Core Outcome Set (COS) for Adolescents and Young Adults (AYAs) with cancer (si apre in una nuova finestra)

Autori: Olga Husson, Silvie H. M. Janssen, Bryce B. Reeve, Samantha C. Sodergren, Christabel K. Cheung, Martin G. McCabe, John M. Salsman, Winette T. A. van der Graaf & Anne-Sophie Darlington
Pubblicato in: BMC Cancer, 2024, ISSN 1471-2407
Editore: BioMed Central
DOI: 10.1186/s12885-023-11716-2

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