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CORDIS - Forschungsergebnisse der EU
CORDIS

THE STRONG-AYA INITIATIVE: IMPROVING THE FUTURE OF YOUNG ADULTS WITH CANCER

CORDIS bietet Links zu öffentlichen Ergebnissen und Veröffentlichungen von HORIZONT-Projekten.

Links zu Ergebnissen und Veröffentlichungen von RP7-Projekten sowie Links zu einigen Typen spezifischer Ergebnisse wie Datensätzen und Software werden dynamisch von OpenAIRE abgerufen.

Leistungen

Project communication plan and initial tool set (öffnet in neuem Fenster)

Project communication plan (M8): Plan for communicating the project progress and its results. It will comprise dissemination objectives, target audience, tools and planned activities.

Report on the initial core outcome set (öffnet in neuem Fenster)

Report on the initial core outcome set (M12): Report on the initial core outcome set including results of consensus panel and learnings from the data collection pilot exercise.

Study 2 initiation package (öffnet in neuem Fenster)

Study 2 initiation package (before enrolment of the first study participant) including:-Registration number of the clinical study in a registry meeting WHO Registry criteria -Final version of study protocol as approved by the regulator(s) / ethics committee(s)-Regulatory and ethics (if applicable, institutional) approvals required for the enrolment of the first study participant

Operational plans for the Pan-European umbrella ecosystem (öffnet in neuem Fenster)

Operational plans for the Pan-European umbrella ecosystem (M12): Operational plan containing description of main actions required for the deployment and functioning of the Pan European ecosystem.

Repository of use cases of the ecosystems (öffnet in neuem Fenster)

Repository of use cases of the ecosystems (M12): Repository of use cases use cases developed in collaboration with WP3 that will serve to provide examples of use of the ecosystems.

Scientific publication plan (öffnet in neuem Fenster)

Scientific publication plan (M12): Plan development to support and promote scientific publications and participation in conferences.

Material for education and clinical implementation (öffnet in neuem Fenster)

Material for education and clinical implementation (M18): This will include educational material and recommendations for patient recruitment and physician engagement.

Midterm recruitment report study 1 (öffnet in neuem Fenster)

This report is due when 50% of the study population is recruited for study 1. The report shall include an overview of the number of recruited participants by clinical sites, any problems in recruitment and, if applicable, a detailed description of implemented and planned measures to compensate for any incurred delays.

STRONG-AYA Ethics report, with interim reports following Ethics workshops (öffnet in neuem Fenster)

STRONG-AYA Ethics report, with interim reports following Ethics workshops (M12)

Leaflets explaining outcomes in lay terms (öffnet in neuem Fenster)

Leaflets explaining outcomes in lay terms (M12): Training material for PAB members to enable their informed participation in decisions on indicator selection and interpreting outcome findings.

Veröffentlichungen

Getting real about synthetic data ethics: Are AI ethics principles a good starting point for synthetic data ethics? (öffnet in neuem Fenster)

Autoren: Danielle Shanley; Joshi Hogenboom; Flora Lysen; Leonard Wee; Aiara Lobo Gomes; Andre Dekker; Darian Meacham
Veröffentlicht in: EMBO Reports: Science and Society, Ausgabe 25, 2024, ISSN 1469-3178
Herausgeber: EMBO Press
DOI: 10.1038/s44319-024-00101-0

Protocol for the development of a Core Outcome Set (COS) for Adolescents and Young Adults (AYAs) with cancer (öffnet in neuem Fenster)

Autoren: Olga Husson, Silvie H. M. Janssen, Bryce B. Reeve, Samantha C. Sodergren, Christabel K. Cheung, Martin G. McCabe, John M. Salsman, Winette T. A. van der Graaf & Anne-Sophie Darlington
Veröffentlicht in: BMC Cancer, 2024, ISSN 1471-2407
Herausgeber: BioMed Central
DOI: 10.1186/s12885-023-11716-2

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