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Uncovering commonalities and differences: Towards a novel framework for identifying end-of-life trajectories of older people with serious chronic illness

Project description

The factors influencing older people’s end-of-life trajectories

Older adults who succumb to chronic illnesses often experience prolonged periods of illness, along with varying degrees of physical, social, psychological and existential well-being. The ERC-funded TRAJECT project seeks to explore end-of-life trajectories through a mixed-method, interdisciplinary approach. The project aims to identify similarities and differences in end-of-life trajectories across various groups, while also acknowledging individual variations. The objective is to gain a deeper understanding of the end-of-life journeys of older individuals and the factors that influence them. The project employs two scientific methods to analyse the trajectories of older individuals with chronic severe illnesses approaching the end of life. The research results are expected to contribute to achieving a satisfactory end of life in ageing societies.

Objective

Older people who die from serious chronic disease typically experience long periods (months or years) of illness and complex fluctuations in their physical health and in their social, psychological, and existential well-being. This project will conduct a mixed-method, inter-disciplinary investigation of these end-of-life trajectories. It responds to the long-standing scientific challenge of identifying commonalities in end-of-life trajectories across groups of people, without masking important inter-individual differences. Its central aim is to gain understanding of what is generalisable and what is individually specific in older peoples end-of-life trajectories and in the circumstances that shape them.
This project applies a novel methodological and analytical framework, examining trajectories through two distinct scientific lenses: a structured quantitative approach known from the biomedical sciences to capture fluctuations in a standardised way, and an experience-focused qualitative approach from the humanities to study the subjective stories and meanings behind changes in health. In a convergent mixed-methods investigation, this work combines 1) a large quantitative longitudinal study and 2) a serial narrative interview study; both with older people (70 years or over) with serious chronic illness who are nearing the end of life. The results of these two methods will be integrated through triangulation and by systematically threading key findings from one method across to the other.
This work will lead to a fundamental re-thinking of how we examine, understand, and categorise end-of-life trajectories. It will reveal the full extent of their complexity and indicate possibilities and limits of generalisation. These novel insights will propel scientific advances towards achieving a good end of life in ageing societies. They will also drive methodological innovation beyond my field, balancing the perspective of the researcher and the researched.

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Programme(s)

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Topic(s)

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Funding Scheme

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HORIZON-ERC - HORIZON ERC Grants

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Call for proposal

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(opens in new window) ERC-2022-STG

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Host institution

VRIJE UNIVERSITEIT BRUSSEL
Net EU contribution

Net EU financial contribution. The sum of money that the participant receives, deducted by the EU contribution to its linked third party. It considers the distribution of the EU financial contribution between direct beneficiaries of the project and other types of participants, like third-party participants.

€ 1 440 500,00
Address
PLEINLAAN 2
1050 BRUSSEL
Belgium

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Region
Région de Bruxelles-Capitale/Brussels Hoofdstedelijk Gewest Région de Bruxelles-Capitale/ Brussels Hoofdstedelijk Gewest Arr. de Bruxelles-Capitale/Arr. Brussel-Hoofdstad
Activity type
Higher or Secondary Education Establishments
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Total cost

The total costs incurred by this organisation to participate in the project, including direct and indirect costs. This amount is a subset of the overall project budget.

€ 1 440 500,00

Beneficiaries (1)

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