Project description
Quality of life a daily concern for oncology patients
Cancer patients experience a variety of symptoms that include physical pain and emotional distress. In this context, the EU-funded EUonQoL project will develop, pilot and validate a unified system for the assessment of quality of life (QoL), the EUonQoL-Kit. The evaluations are based on estimations and preferences of cancer patients and survivors and will be validated in a pilot survey within this same group of people. This EUonQoL-Kit will be obtained through the combination of cancer patients' self-report evaluations and expert analysis from patient representatives, healthcare professionals, administrators, policymakers and citizens. The EUonQoL-Kit will be rolled out digitally across Europe in various languages. The objective is to provide a unified, standard European QoL assessment system.
Objective
EUonQoL aims to develop, pilot and validate the EUonQoL-Kit, a patient-driven, unified system for the assessment of quality of life (QoL) based on evaluations and preferences of cancer patients and survivors. The EUonQoL-Kit will be developed from a patient perspective, administered digitally, available in the EU27 and Associated countries languages, and applicable in future, periodic surveys to contribute to the EU’s mission on cancer. At the core of the EUonQoL there is the adoption of a multistakeholder, co-design methodology, engaging patient representatives, healthcare professionals, administrators, policymakers, and citizens in all project related activities. Existing QoL tools will be reviewed, scoping all relevant sources. This review will be used in the context of the codesign consensus with stakeholders’ and patients’ preferences to identify gaps and establish all QoL dimensions that are relevant from the perspectives of patients, clinicians, and society. A multidisciplinary researcher panel, composed by the most talented experts, will develop the EUonQoL-Kit that will be validated in a pilot survey using digital data collection within month 24 of the project. A total of 4,000 cancer patients and survivors will be enrolled through a network of EU cancer centers. An analysis of factors potentially impacting on cancer patients and survivors QoL, will also be performed. Implementation and exploitation strategies, as well as the linkage with other Cancer Mission projects and actions will be explored to develop future periodic surveys. EUonQoL is composed by research institutions, cancer centers, as well as scientific, professional, and patient representative organizations involved in cancer research, all with extensive experience and robust scientific background in the development of self-report QoL measures.This partnership fuels the ambition of EUonQoL to translate QoL information into future changes in cancer care policy and clinical practice.
Fields of science
Keywords
Programme(s)
- HORIZON.2.1 - Health Main Programme
Funding Scheme
RIA - Research and Innovation actionCoordinator
20133 Milan
Italy
See on map
Participants (24)
3400 Hillerod
See on map
94805 Villejuif
See on map
69120 Heidelberg
See on map
0450 Oslo
See on map
1066 CX Amsterdam
See on map
08003 Barcelona
See on map
20121 Milano
See on map
1200 Bruxelles / Brussel
See on map
75013 Paris
See on map
1800 Vilvoorde
See on map
75231 Paris
See on map
1040 Bruxelles / Brussel
See on map
1000 Bruxelles / Brussel
See on map
Legal entity other than a subcontractor which is affiliated or legally linked to a participant. The entity carries out work under the conditions laid down in the Grant Agreement, supplies goods or provides services for the action, but did not sign the Grant Agreement. A third party abides by the rules applicable to its related participant under the Grant Agreement with regard to eligibility of costs and control of expenditure.
00144 Roma
See on map
Legal entity other than a subcontractor which is affiliated or legally linked to a participant. The entity carries out work under the conditions laid down in the Grant Agreement, supplies goods or provides services for the action, but did not sign the Grant Agreement. A third party abides by the rules applicable to its related participant under the Grant Agreement with regard to eligibility of costs and control of expenditure.
80131 Napoli
See on map
Legal entity other than a subcontractor which is affiliated or legally linked to a participant. The entity carries out work under the conditions laid down in the Grant Agreement, supplies goods or provides services for the action, but did not sign the Grant Agreement. A third party abides by the rules applicable to its related participant under the Grant Agreement with regard to eligibility of costs and control of expenditure.
00144 Roma
See on map
3500 BN Utrecht
See on map
20122 Milano
See on map
10141 Tallinn
See on map
The organization defined itself as SME (small and medium-sized enterprise) at the time the Grant Agreement was signed.
1000 Bruxelles / Brussel
See on map
The organization defined itself as SME (small and medium-sized enterprise) at the time the Grant Agreement was signed.
00187 ROMA
See on map
6020 Innsbruck
See on map
1000 Sofia
See on map
030923 Bucuresti
See on map
Partners (2)
LS2 9JT Leeds
See on map
LS9 7TF LEEDS
See on map