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Quality of Life in Oncology: measuring what matters for cancer patients and survivors in Europe

Project description

Quality of life a daily concern for oncology patients

Cancer patients experience a variety of symptoms that include physical pain and emotional distress. In this context, the EU-funded EUonQoL project will develop, pilot and validate a unified system for the assessment of quality of life (QoL), the EUonQoL-Kit. The evaluations are based on estimations and preferences of cancer patients and survivors and will be validated in a pilot survey within this same group of people. This EUonQoL-Kit will be obtained through the combination of cancer patients' self-report evaluations and expert analysis from patient representatives, healthcare professionals, administrators, policymakers and citizens. The EUonQoL-Kit will be rolled out digitally across Europe in various languages. The objective is to provide a unified, standard European QoL assessment system.


EUonQoL aims to develop, pilot and validate the EUonQoL-Kit, a patient-driven, unified system for the assessment of quality of life (QoL) based on evaluations and preferences of cancer patients and survivors. The EUonQoL-Kit will be developed from a patient perspective, administered digitally, available in the EU27 and Associated countries languages, and applicable in future, periodic surveys to contribute to the EU’s mission on cancer. At the core of the EUonQoL there is the adoption of a multistakeholder, co-design methodology, engaging patient representatives, healthcare professionals, administrators, policymakers, and citizens in all project related activities. Existing QoL tools will be reviewed, scoping all relevant sources. This review will be used in the context of the codesign consensus with stakeholders’ and patients’ preferences to identify gaps and establish all QoL dimensions that are relevant from the perspectives of patients, clinicians, and society. A multidisciplinary researcher panel, composed by the most talented experts, will develop the EUonQoL-Kit that will be validated in a pilot survey using digital data collection within month 24 of the project. A total of 4,000 cancer patients and survivors will be enrolled through a network of EU cancer centers. An analysis of factors potentially impacting on cancer patients and survivors QoL, will also be performed. Implementation and exploitation strategies, as well as the linkage with other Cancer Mission projects and actions will be explored to develop future periodic surveys. EUonQoL is composed by research institutions, cancer centers, as well as scientific, professional, and patient representative organizations involved in cancer research, all with extensive experience and robust scientific background in the development of self-report QoL measures.This partnership fuels the ambition of EUonQoL to translate QoL information into future changes in cancer care policy and clinical practice.



Net EU contribution
€ 1 961 272,25
Via Venezian 1
20133 Milan

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Nord-Ovest Lombardia Milano
Activity type
Research Organisations
Total cost
€ 1 961 272,25

Participants (24)

Partners (2)